Winter chemo ladies!

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donnapetry
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Re:FEC x 3; Taxotere x 3 ?? - Thursday, October 13, 2011 4:18 PM
Well I made it...last chemo today!! We wore my pink wigs and made cookies for everyone. They were a hit!! So looking forward to my nasty shot tomorrow....NOT!!! But glad to know that it is my last one and that I will not need to take these steriods any longer too.... YIPPIE!!
Was told that I will contiune the herceptin every 21 days for 12 appointments, and will start taking hormone therapy meds Arimidex for the next 5 years. I have some tests scheduled for next week, MRI, CT, Bone Density Scan.
So now we have moved onto a new adventure. Just wonder what kind of side effects these will bring on. Time to do some resarch on these.

For now I am looking forward to my trip home to Nashville on Oct. 29th to walk in the Race for a Cure down there. Since I have been having problems with shortness of breath a friend of mine has lent me there wheel chair. This will help me a lot. My daughter and soon to be daughter-in-law have put together a team for me. "Mama D's & her Boobette Buddies". What a perfect name!!

Hope everyone has a great rest of the week and weekend.
DCIS, IDC Diag 4/12/11
Left Mastectomy 3 nodes positive removed 5/26/11
Stage 2, Triple positive (ER 80%, PR 70%, Her2 +3)
Chemo 6/30/11 Carboplatin/Taxotere/Herceptin Completed chemo 10/13/11
BRCA 1 & 2 Negative 
Herceptin for 1 year - completed 5/10/12
Arimidex for 5 years starting 11/3/11
Right simple Masectomy 11/29/12
Take one day at a time and always try to find something positive out of the negative!

Tricia Keegan
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Re:FEC x 3; Taxotere x 3 ?? - Thursday, October 13, 2011 5:17 PM
Donna huge congrats on finishing chemo, no mean feat!!!!!
 
I've just signed up for another two years of arimidex making seven in total as prefer the minor side effects of this to bc, (bone loss and some stiffness but do able!)
 
However if you feel you need a wheel chair due to that shortness of breadth I'd ask the onc to check that out as that does'nt sound the norm to me, its probably nothing but best to have it looked into and have a great time with your son and DIL!!!Pals
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

donnapetry
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Re:FEC x 3; Taxotere x 3 ?? - Thursday, October 13, 2011 9:09 PM
They did a CT on my lungs and a Echo Cardiograham about 2 weeks ago and they call came back clean. The onco said to just mark it up to one of those wonderful side effects to chemo. However today he did say that if I hadn't got my breath back in order in about 6 weeks he was going to send me to specialist just to make sure things are ok.
I did look on the internet tonight on the herception and her2neu websites too see what kind of side effects people were dealing with. Basically like you said Tricia, bone pain/stiffness, sinus headaches, running noses, some mouth sores, brittle nails. Most of the complaints seemed pretty close to what most of us have experienced during chemo, so its not anything too surprising. I have my supply of claritin so I am ready for the bone discomfort, and runny noses. I still have my supply of stuff for mouth sores which luckly I only experienced after my 1st treatment, so I'm good to go for that. As for brittle nails, I have extremely strong nails and figured if I find them to getting soft I can always put that hard as nails stuff on them.
My biggest thing is my eye sight and needed to get my teeth cleaned. My onco said that I needed to wait 6 - 8 weeks after this last treatment before I go and have that.
Well like I said its a new adventure and I am go glad to have all you wonderful ladies on here to help guide me and support me.
THANKS TO YOU ALL!! PalsPals
DCIS, IDC Diag 4/12/11
Left Mastectomy 3 nodes positive removed 5/26/11
Stage 2, Triple positive (ER 80%, PR 70%, Her2 +3)
Chemo 6/30/11 Carboplatin/Taxotere/Herceptin Completed chemo 10/13/11
BRCA 1 & 2 Negative 
Herceptin for 1 year - completed 5/10/12
Arimidex for 5 years starting 11/3/11
Right simple Masectomy 11/29/12
Take one day at a time and always try to find something positive out of the negative!

Tricia Keegan
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Re:FEC x 3; Taxotere x 3 ?? - Friday, October 14, 2011 4:43 AM
Most side effects did lesson for me in time Donna, my onc suggested a daily supplement of Glucosamine/Chondroitin to help with any joint aches, walking too helps a lot and do wish you luck as you begin this next step!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

RSBendy
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Re:FEC x 3; Taxotere x 3 ?? - Saturday, October 15, 2011 12:41 PM
Donna
Belated congrats on completing chemo! Keep us posted on how the recovery goes from the treatments.
Ronnie 
"A Pink Warrior"

Diagnosed - 6/7/11
DIEP Flap Procedure, Double Mastectomy - 7/19/11
BRCA I +
Left Breast - 7mm, 1 Sentinal Node - .9mm
Chemo - 
Adriamycin/Cytoxan 4X's every 2 weeks (followed by Neulasta)
1  2  3  4
Taxol 4X's every 2 weeks
5  6  7  8 DONE!
Hormone Therapy (Anastrozol) for 5 years st

SKalsta
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Re:FEC x 3; Taxotere x 3 ?? - Tuesday, October 18, 2011 4:51 PM
Chemo treatment #2 tomorrow.  Little nervous but I know now that I will not let things get s bad as they did last time.  Today I graduated from the surgeon (phase I) to the oncologist(phase II) even though I already had 1 treatment.  My mouth has so many canker sores from the first treatment. I am rinsing and swishing but it does not last long before it is bothering me again.  Maybe they will give me something stronger than the magic wash. 
 
Today I wore one of my funky hats (see my profile pic).  Got a lot of thumbs up.  I lost my hair exactly 7 days after first treatment and I decided that I was not going to allow cancer to define me.  I was going to define cancer depending on my mood.  So, today I felt a little fruity.  I might change pictures often because I have about 20 funky hats and about 20 nice normal hats and 3 wigs.  See I am armed and ready for battle. 
 
Take care all and winter chemo ladies - hope you are handling the treatments well. 
Sue K
Invasive Ductal Carcinona
Diagnosed 7/1/2011
Stage III Grade 2
Tumor Size 6cm
2+/18 nodes
ER+/PR+
HER2 Negative
7/28/2011 - Right Modified Mastectomy w/ lymph nodes removed.  Left Prophylactic Mastectomy
Not a candidate for reconstructive surgery. 
Chemo 5 out 8 completed.
Radiation completed.
Lymphedema and scar tissue issues

Nancy Jones
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Re:FEC x 3; Taxotere x 3 ?? - Thursday, October 20, 2011 2:08 PM
Here goes my second go round with chemo.  First one 5 1/2 years ago.  A/C that time.  Side effects for me were pretty mild. Hair loss, fatigue (oh, so much).  No mouth sores, or any of the other stuff some of you have had to endure.   This one, however, has me a lot more nervous.  Taxotere.  My oncologist and the internet don't mesh.  Onco says very little side effect except for a little thingy with the hands and feet (can't think of name), a little hair loss, and not much else.  Well, the internet has all sorts of side effects including total loss of hair (do I have to do this again), weight gain (I'd rather be dead, and I have told my onco this), etc, etc.
Wish me luck.  I don't even know how many treatments I will have to get.  Oh, by the way, I have mets to the bones.  Maybe 3 to 6 or 7.  Depends on CA 27-29 score.  Faslodex did absolutely NADA.  
I know I have to change my signature, just give me some time.

Found lump at age 65 - 9-05; DX 11-05; Surgery 12-05; Port installed - 3-06; chemo - 1st 4-10-06, last - 7-10-06; Arimidex - 8-1-06, went topless - 9-23-06; port removed - 3-20-07

Mets to the bones, official diagnosis June 2011,  Faslodez failed me;  Port reinserted 10/11/11; Taxotere 10/24/11,
Xeloda, 3 or 4 cycles, couldn't tolerate it at all. 10 cycles of Halavan. Next up: back to Faslodez for 1 year.

Nancy Jones
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Re:FEC x 3; Taxotere x 3 ?? - Thursday, October 20, 2011 2:14 PM
Can anybody tell me how to change my signature.  It's been awhile since I have done it and can't seem to find the right link.  TIA.

Found lump at age 65 - 9-05; DX 11-05; Surgery 12-05; Port installed - 3-06; chemo - 1st 4-10-06, last - 7-10-06; Arimidex - 8-1-06, went topless - 9-23-06; port removed - 3-20-07

Mets to the bones, official diagnosis June 2011,  Faslodez failed me;  Port reinserted 10/11/11; Taxotere 10/24/11,
Xeloda, 3 or 4 cycles, couldn't tolerate it at all. 10 cycles of Halavan. Next up: back to Faslodez for 1 year.

Tricia Keegan
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Re:FEC x 3; Taxotere x 3 ?? - Thursday, October 20, 2011 2:19 PM
Nancy I'm so sorry you've had this recurrance, I think I was dx just before you in July 2005....a/c killed me at that time but I also had Taxol which is a sister drug of Taxotere and found it fairly easy to tolerate after a/c but of course we're all different.  My hair grew back on Taxol but I did lose my eye brows and lashes!!
I also had some neuropathy in my hands but none in my feet, and did'nt need anti nausea meds or shots to boost my white cell count so all in all I got through it okay although did have a smaller dose (12 weekly with herceptin) rather than the dose dense. Its a shame the Faslodex did'nt work but do wish you luck with the Taxotere and hope any side effects are few if any!!
 
Sue, love the pic and your hat!!!!:)   Sorry for the mouth sores but did you read the post on this from "For my sis"??  I'll try to find it and post for you as this method seemed to work well for Jenn's sister so you could try that:)
 
P.S  Sue, here it is http://apps.komen.org/Forums/tm.aspx?m=336014
<message edited by Tricia Keegan on Thursday, October 20, 2011 2:22 PM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

SKalsta
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Re:FEC x 3; Taxotere x 3 ?? - Sunday, October 23, 2011 5:43 AM
Treatment #2 chemo was better than the first.  Minor nausea.  Bigget complaint is shortness of breath (caused by both zofran and Adriamycin) and non-focusing eyes.  But, nausea and Vomiting are under wraps.  When exhaustion hits, it hits immediately, but that is ok.  I feel like this one went okay and only how many more, 6, 8 or 14.  Still not sure after the first 4 what regimen and frequency I will be on.  

Always seems if there is a slight risk, I am the one that gets hit with it.

Tricia - thanks for the link.  I will call the dentist/doctor and get this stuff.  They were bad last time, but have calmed down and hoping that they don't come back. 

Had some friends come over yesterday to help clean and help hubby with yard work.  We had a fun day - we all tried on all my crazy hats.  So Laughter is sometimes the best medicine a person can have. 
Sue K
Invasive Ductal Carcinona
Diagnosed 7/1/2011
Stage III Grade 2
Tumor Size 6cm
2+/18 nodes
ER+/PR+
HER2 Negative
7/28/2011 - Right Modified Mastectomy w/ lymph nodes removed.  Left Prophylactic Mastectomy
Not a candidate for reconstructive surgery. 
Chemo 5 out 8 completed.
Radiation completed.
Lymphedema and scar tissue issues

Tricia Keegan
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Re:FEC x 3; Taxotere x 3 ?? - Sunday, October 23, 2011 6:31 AM
Hope it helps Sue!

Nancy, click on user control at the top of the page and that will give you options to edit your signature or avatar etc....
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

marianwolf
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Re:FEC x 3; Taxotere x 3 ?? - Sunday, October 23, 2011 7:44 AM
Hi Sue!

Wonderful on having an easier time of it, Round 2! I'm hoping for the same, but then, you never really know.  I really wouldn't give the neuropathy a second glance presently.  For me, I dreaded the anticipated side effects because I already suffer from crippling arthritis in my back as well as arthritis in all my joints, and diarrhea. 

My "side effects" were lessened joint pain (exception spine), unnoticeable changes to neuropathy, constipation instead of diarrhea.  I had only a slight flu-like feeling on day 3.  I stayed indoors primarily to wait for the bomb to drop and it never did. I'm a week or 2 behind you so we'll see with round 2.

Please just anticipate whatever works for you.  I think I kind of always anticipate the worst so that I'm pleased when it doesn't happen, rather than the other way around.

Stay positive tho!  Now, if that doesn't sound all conflicted! LOL!

Marian 

DX June 20, 2011
IDC, E+P-, HER2-, Ki67 49%
Lumpectomy 7/26/11 & 8/23/11   
Lymph nodes clear!   
BRCA 1-/2-
Stage 1, Grade III 
Oncotype: 36%
Taxotere/Cytoxn 1 2 3 4 12/12/11
33 Rads completed 3/16/12
Start Arimidex 3/17/12    

[link=http://www.caringbridge.org/visit/

ElaineQW
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Re:FEC x 3; Taxotere x 3 ?? - Sunday, October 23, 2011 8:11 AM
Hi ladies,

Wishing you all an easy time with chemo and want you to know I'm thinking about you all even though I don't post on this thread very often.

Have to admit I feel a bit "guilty" because I had an easy time with chemo.  I went into it knowing that I would lose my hair for sure and decided I would deal with the side effects, IF they happened to show up.  I got lucky -- hardly any nausea, no fatigue to speak of (went to the gym as usual), ate anything I wanted, etc.

I wish you all the same experience I (and I know others) have had.  GO WARRIORS!!

Hug
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Nancy Jones
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Re:FEC x 3; Taxotere x 3 ?? - Monday, October 24, 2011 12:47 AM
Thanks Tricia.  We'll see if it works.

Found lump at age 65 - 9-05; DX 11-05; Surgery 12-05; Port installed - 3-06; chemo - 1st 4-10-06, last - 7-10-06; Arimidex - 8-1-06, went topless - 9-23-06; port removed - 3-20-07

Mets to the bones, official diagnosis June 2011,  Faslodez failed me;  Port reinserted 10/11/11; Taxotere 10/24/11,
Xeloda, 3 or 4 cycles, couldn't tolerate it at all. 10 cycles of Halavan. Next up: back to Faslodez for 1 year.

SKalsta
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Re:FEC x 3; Taxotere x 3 ?? - Monday, October 24, 2011 1:43 PM
Marian,
I like you will look for the worse possible case to be prepared and armed and then love it when I am pleasantly surprised.  This chemo round was so much better and no bomb dropping with the exception of the SOB (Shortness of breath) and the eyes focusing.  That is really disturbing me the most because I read a lot, I work on the computer and I can't focus.  Grrrrrr. 

I am actually going to see the oncologist again on Wed just to discuss the side effects.  I want to know what each of the side effects are caused from (chemo or the drugs to help with chemo side effects).  Just so I can get a handle on things.  With the steroids, My A/S is doing well.  But that Tired/Wired feeling is driving me crazy.

All in All, I can take all of this versus nausea and vomiting.  But, I still think it can be better controlled.  Keep in touch and keep us posted.  We will be comparing all along the journey.
Sue K
Invasive Ductal Carcinona
Diagnosed 7/1/2011
Stage III Grade 2
Tumor Size 6cm
2+/18 nodes
ER+/PR+
HER2 Negative
7/28/2011 - Right Modified Mastectomy w/ lymph nodes removed.  Left Prophylactic Mastectomy
Not a candidate for reconstructive surgery. 
Chemo 5 out 8 completed.
Radiation completed.
Lymphedema and scar tissue issues

marianwolf
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Re:FEC x 3; Taxotere x 3 ?? - Tuesday, October 25, 2011 10:20 AM
Hey Sue,

Btw, your hat is mon-scrumptious!  (My dad's origination.)

Yes, the vision impairment is tragic.  My mom is now blind and I truly sympathize with her since she was always a voracious reader.  She cannot walk by herself, cannot see tv and cannot read.  Can't convince her to look into audio books so I may just buy her one anyway.

New (probably unfounded) scare is that I have ovarian cancer b/c of some aches and slight pains down there.  I get my 2nd treatment Monday and my onc will be there for this one so I'll see what she says.

Otherwise just cannot complain.  It's another gorgeous God-given day in Atlanta, colors are out-doing themselves.  It looks as if every tree is in competition with the other for 1st prize.  Or, better yet, they're all in unison giving thanks to God!

Warmly, Marian

Marian 

DX June 20, 2011
IDC, E+P-, HER2-, Ki67 49%
Lumpectomy 7/26/11 & 8/23/11   
Lymph nodes clear!   
BRCA 1-/2-
Stage 1, Grade III 
Oncotype: 36%
Taxotere/Cytoxn 1 2 3 4 12/12/11
33 Rads completed 3/16/12
Start Arimidex 3/17/12    

[link=http://www.caringbridge.org/visit/

donnapetry
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Re:FEC x 3; Taxotere x 3 ?? - Tuesday, October 25, 2011 1:15 PM
I had my last chemo treatment on the 13th. I was on Taxotere too, and some of the side effects are a major pain in the you know what. I was always out of breath, couldn’t walk 10 steps without being out. My onco did order a CT on my lungs and a Echo Cardiogram to make sure things were ok, which they were. I also had problems with my legs swelling too. As for the eye sight I was told that, that too is a side effect. My onco told to wait 6-8 weeks after chemo to have my eyes checked and to also go to the dentist. I learned that most of the weird stuff that I was experiencing was due to chemo, but I also had a list to go over with my onco at all my appointments. You just never know. I am waiting to get my taste buds back in order, everything tastes like metallic….yep another one of those wonderful side effects.
 
Hang in there ladies…just remember it’s all temporary, before you know it you will be done with chemo and on to a new experience. At times I didn’t know if I could or would make it thru it, but I have all the wonderful ladies on here to thank. They are truly my Komen angels, with the love, support, and knowledge they gave me I feel blessed.


DCIS, IDC Diag 4/12/11
Left Mastectomy 3 nodes positive removed 5/26/11
Stage 2, Triple positive (ER 80%, PR 70%, Her2 +3)
Chemo 6/30/11 Carboplatin/Taxotere/Herceptin Completed chemo 10/13/11
BRCA 1 & 2 Negative 
Herceptin for 1 year - completed 5/10/12
Arimidex for 5 years starting 11/3/11
Right simple Masectomy 11/29/12
Take one day at a time and always try to find something positive out of the negative!

NotMe
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Re:FEC x 3; Taxotere x 3 ?? - Tuesday, October 25, 2011 4:29 PM
Congrats Donna on your chemo completion, woo hoo!! As I wrote on my radiation post, I can't remember or too tired to remember how to insert the nanners, I am sure Trish will come to our rescue, lol!!
Thank Trish, I can always count on you!

My last chemo was August 3rd & I am still dealing with side affects of Taxtore/Cytoxan & sitting down & getting up & walking hurts, still getting physical therapy on my right arm & my back/legs.  I can't wait for the day when the pain goes away....

Marian & Skalsta, hang in there, it's rough but it is doable!!!
Sorry if I miss anybody else here!, it's been a while since I read everybody's posts.

Take care, y'all.
Dx 3/3/11 IDC
ER+, PR+, HER2-
Stage 2B, 4/18 nodes positive
4/13/11 lumpectomy, 5/3/11 re-incision for clean margins & ancil.
Nodes removal
Port 5/3/11, staph infection
Chemo Taxotere/Cytoxan 4 round x 3 wks (done)
Rads x 30 including boosts (done)

Tamoxifen ? I am stalling....

Tricia Keegan
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Re:FEC x 3; Taxotere x 3 ?? - Tuesday, October 25, 2011 5:08 PM
Donna I think I may already have sent the 'nanners to you but what the heck lol
 
Its a huge achievement to finish this and know you ladies are giving yourself every chance of a wonderful healthy life and cancer will be a memory that only rises at yearly appts!
 
Marian, I'm sorry and just saw your post now, praying for clear results for you and have some friends with Ovarian cancer, I had my ovaries removed after my bc tx as was highly positive but know the same symptoms can be due to much lessor and easily treated things so hoping thats the case for you and please keep us posted!Pals
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

SKalsta
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Re:FEC x 3; Taxotere x 3 ?? - Saturday, October 29, 2011 4:19 AM
I did go to the Dr on Wed. I have a touch of bronchitis. As soon as I used the inhaler, I felt so much better. I could actually take a deep breath. So at least there was an explanation for the shortness of Breath. I know that there is light at the end of the tunnel and that I will get thru this. But there are days when you just want to scream. I wrote on my Caringbridge site that I was tired of all the side effects of chemo, and I wanted my life back etc. Next thing I know, I am getting a ton of phone calls and emails and responses back with people concerned that I am depressed. Of course I am depressed. My entire life changed. This is the toughest thing I have ever had to experience and yet, they don't understand. I try to explain but they don't understand. You women understand because you are or have gone thru this. My nurse told me in a couple of years, I could plan and go on a mountain climb and that would seem like a walk around the block compared to this. Yet, I am bombarded with concern that I am depressed and now having to justify my emotions and comments. And assure people that I am not depressed to the point of concern. When you are an active person and then realize that you eat breakfast and are exhausted and need a nap, you will get depressed. Because that is not who you are. Anyway - as usual, thanks for being here for me. I encourage others to sign in and post. Because this is a wonderful site to belong to even though none of us chose to wear these shoes.
Sue K
Invasive Ductal Carcinona
Diagnosed 7/1/2011
Stage III Grade 2
Tumor Size 6cm
2+/18 nodes
ER+/PR+
HER2 Negative
7/28/2011 - Right Modified Mastectomy w/ lymph nodes removed.  Left Prophylactic Mastectomy
Not a candidate for reconstructive surgery. 
Chemo 5 out 8 completed.
Radiation completed.
Lymphedema and scar tissue issues

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