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 Stage iv?? This thread is for you!
Change Page: < 12345678910.. > | Showing page 7 of 13, messages 61 to 70 of 129
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jeanmac

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Re:Stage iv?? This thread is for you! - Friday, June 13, 2014 8:28 AM
Hi Trish, I must say, you seem to have a positive attitude, which can only help you on your bc journey! I, too, was diagnosed in Feb. 2014 with stage 4, tumors on my vertebrae. The shock is wearing off now, but not completely. I, also am HER2+ and ER+. My original treatment plan was lumpectomy, chemo(grade3), then radiation. I even had negative lymph nodes..then I'm told I'm stage 4! The plan changed after the vertebrae news. I am on Herceptin, Arimidex, and X-geva. Presently I am getting radiation to my spine for pain. I feel for you, and I hope it helps to know that you are not alone, especially with your stage 4 status at diagnosis. Hearing your story makes me feel not so alone, and so I thank you for sharing. I would like to stay in touch with you as our stories are similar. I am a bit older, however, 58 years young. It looks as though our lives will revolve around treatment and scans now. I hope to hear from you, Trish. Hugs to you! Love, Jeanmac
NEWBY63

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Re:Stage iv?? This thread is for you! - Tuesday, June 17, 2014 11:51 PM
You do have a great attitude! I was diagnosed in February of this year, Stage IV Metastatic Breast Cancer. The news hits you hard at first, but you quickly do what is necessary. I will receive my last Taxotere in a few weeks (yeah)! Hugs
Tricia Keegan

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Re:Stage iv?? This thread is for you! - Wednesday, June 18, 2014 3:05 AM
Great news on finishing the Taxotere Newbye and hope you have a great response!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
nikkiw1973

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Re:Stage iv?? This thread is for you! - Saturday, June 21, 2014 4:18 PM
Hi Jeanmac. Thanks for responding. It has been tough. Depression comes and goes. I have an adult son. He has not been taking all of this well. I read someone say that she keeps taking it one day at a time. That is such an accurate statement of my life right now. It helps that I can come here for answers to questions that seem to be neverending and that extra support when I begin to feel like I am not going to make it through this.
jeanmac

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Re:Stage iv?? This thread is for you! - Saturday, July 19, 2014 1:38 PM
Hi Nikkiw. I hope you are doing well. I know what you mean about the depression coming and going..today I am having a bad day. I had radiation to treat my bone mets to spine, to relieve pain. Guess what? still have pain. They say it may be a matter of more time is needed. The radiation ended 4 weeks ago! I am getting discouraged. I continue to take pain meds. And continue to pray for pain relief and for strength. I will have scans the end of July to see progress after 3 months of Herceptin. Let me know how you are doing on your journey! Hugs to you! Jeanmac
Tricia Keegan

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Re:Stage iv?? This thread is for you! - Saturday, July 19, 2014 2:48 PM
Jeanmac I'm sorry you still have pain, have you tried Fentenyl patches?  I think some people had relief with that, do ask also to be referred to a pain management specialist who should be able to help.  I'm hoping for good results on your scans but there are other meds if Herceptin fails you, check out the www.her2support.org 
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
suz777

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Re:Stage iv?? This thread is for you! - Thursday, July 24, 2014 5:25 AM
Well, I had a good four year run on Faslodex. Now I have new mets on my spine again. One at L5 has been given me sciatica pain and they will probably do radiation for that spot. (Brief history: cancer 3x in four years and then managed for 4 years on Faslodex...till now.) I've only had Femara and Faslodex previously (plus chemo), so my oncologist is thinking about Arimidex or Tamoxifen (I lean toward arimidex). She mentioned Xeloda (oral chemo) but would rather try an AI rather than the chemo that may be harder on my system right now (save that for a possible future recurrence). I didnt even make it a year on Femara before disease progression, so I'll admit I'm a little nervous about taking what I perceive is something similar...Arimidex/Tamoxifen...but I'm trying to do some research to educate myself a bit more, plus I will talk with doctor again too. My spirits are still good; of my 3 grown children 2 took the news well and one sobbed. (This is my 4th cancer occurence; 3rd time with mets.) It's just part of managing this chronic condition. Still grateful for many things: I can still work, still do my dragon boating, etc. Will have CTs and/or bone/PET scan to confirm it's only in bones, so things may change, but so far it just looks like a 3rd bone occurrence. But I'm certainly open to any advice. :-) Suzanne
10/3/6 DX 1.1cm IDC +DCIS
Lumpectomy 10/26/6; SNB clear; ER/PR+; HER2neu-
Radiation/Mammosite 11/6-11/10/6
Alternative IV vitamin C infusions for over 1 yr
10/22/8-Bone mets to spine/sacrum@L5/S1&2,  fracture S1&S2
22 rads 11/24-12/24/8; 4 T/C chemo 1/22/9-3/26/9
BRCA1&2 neg
Monthly Zometa started 4/30/9
Femara 5/15/9; OOPH 6/26/09
5/2010: 12+ new spinal mets; swapped F
Tricia Keegan

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Re:Stage iv?? This thread is for you! - Thursday, July 24, 2014 3:44 PM
Hi Suzz,

Seeing the positive's (as we must do with this disease) its thankfully still contained to bones so still treatable although as I said earlier I'm really sorry you've had this progression.  This is  the link I was looking for earlier http://www.cancerresearchuk.org/cancer-help/about-cancer/treatment/cancer-drugs/everolimus

If you decide on  Arimidex you may need Lupron shots or an ooph if pre menopausal, I only came off Arimidex after eight years last month and feeling a bit nervous about that but it served me well, good luck with whatever you decide on and please keep us posted.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
ElaineQW

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Re:Stage iv?? This thread is for you! - Friday, July 25, 2014 1:30 PM
Hi everyone - I need your help for an acquaintance.  She has Stage IV originally diagnosed with Her2.  Did Herceptin and is now on TDM-1 (part of the Amelia Study - Perjeta).  I'm only able to parrot what I've been told and don't have any more details except that the TDM-1 is not working. She did connect with Dr. Slamon.  Now she's heard there is a Dr. Pergram at Stanford who supposedly would like to use TDM-1 with another chemo drug (no idea which one).  No clinical trials yet because they can't find the right population.  

I'm sorry for such sketchy info, but what I'm asking is does anyone have any information that might be helpful to her? 

Thanks for you help ladies!
Hug
Elaine 
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 





Tricia Keegan

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Re:Stage iv?? This thread is for you! - Friday, July 25, 2014 2:03 PM
Elaine a few of the ladies on the her2 site I go to have been having these meds and all the usual up to date info on Treatment are posted there, try checking it out www.her2support.org and hope she finds something to help.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
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