Stage iv?? This thread is for you!

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Tricia Keegan
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Re:Stage iv?? This thread is for you! - Friday, March 13, 2015 10:28 AM
Hi,

If you hover your curser over Marcia's name to the left where her avatar is you'll get a drop down menu giving you a choice of sending her a private message so you could contact her that way if she doesn't see your post here.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

tazeandrox12
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Re:Stage iv?? This thread is for you! - Thursday, April 02, 2015 1:55 AM
Hello!!

 I am not new to this site, just new to posting!

I was diagnosed 9/14 with Stage IV.    I was diagnosed 1/2007 with Stage I. I am soo interested in getting to know you and others in my position!  My cancer has metastised to my bones.

Tricia Keegan
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Re:Stage iv?? This thread is for you! - Thursday, April 02, 2015 6:40 AM
Hi Bev, I'm so sorry for your dx, you sound very positive which I'm sure helps a lot. There are a few members here with mets to bones and doing well, I hope you have a great response to treatment and keep us posted.


Just a fyi, you may prefer to change your user name rather than post your personal e mail address, we often find its better to send someone a private message rather than type your e mail where anyone can see it.Pals

<message edited by Tricia Keegan on Thursday, April 02, 2015 6:41 AM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

tazeandrox12
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Re:Stage iv?? This thread is for you! - Thursday, April 02, 2015 11:33 PM
Hi Tricia. Thanks so much for the info! Sooo, I' m trying to change my username but having a difficult time!! I' m not quite finding how to change username -- just password!!
<message edited by Tricia Keegan on Friday, April 03, 2015 5:59 AM>

Tricia Keegan
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Re:Stage iv?? This thread is for you! - Friday, April 03, 2015 6:01 AM
Bev, I think you may need Komen admin to do this for you, will you send a pm or e mail to komenforums@komen.org   if you have any trouble or don't get a reply let me know and I'll contact them for you.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

tazeandrox12
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Re:Stage iv?? This thread is for you! - Monday, April 06, 2015 11:28 PM
Tricia. Thank you so much for your help with this. I will do that and, hopefully I can successfully get on these boards and get to know everyone!

Tricia Keegan
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Re:Stage iv?? This thread is for you! - Tuesday, April 07, 2015 4:29 AM
You're welcome and let me know if you don't get a reply but they should be able to sort it out for you.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

tazeandrox12
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Re:Stage iv?? This thread is for you! - Friday, April 10, 2015 11:11 PM
Hi Tricia. -- I have tried to change my username but not getting a response. I do need to change that but what I've done is not working. It allows me to change password but not username

Tricia Keegan
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Re:Stage iv?? This thread is for you! - Saturday, April 11, 2015 9:32 AM
I think the admin in Komen are the only one's that can do this for you, will you try sending an e mail to the address in the above message and ask them?  It'll be Monday before they respond though as there's no one in the office over the weekend.

P.S  I've e mailed Komen admin for you and they will be in touch to help you next week!
<message edited by Tricia Keegan on Saturday, April 11, 2015 5:06 PM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Sasha0124
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Re:Stage iv?? This thread is for you! - Friday, May 08, 2015 4:40 PM
Hi everyone! I am new to this website and forum. My 62 year old mom was just diagnosed with triple negative metastatic breast cancer. She had a <2cm primary tumor (right breast at 7 o'clock) and 20 lymph nodes under her arm removed (only 3 were positive for cancer cells). The pathology report from the surgery indicated that lymph vascular invasion was present. Her cancer was considered grade 2 from the core biopsy report, but is now grade 3 from the surgery report. Since the surgery, she has had a CT scan & bone scan of her body (head CT upcoming). The oncologist told us that a spot was found on her L4 pedicle that had a high uptake, which makes them suspect it's metastasized cancer from the breast. She has no physical symptoms of this (ie. no pain). Therefore, she has been diagnosed with Stage IV metastatic breast cancer - without treatment she has maybe 1 year, with treatment maybe 2-3 years as the cancer is extremely aggressive. The oncologist felt that it had been present for less than a year before it was caught. My question is - how likely is it that the spot found in the CT/bone scan on her L4 pedicle is breast-to-bone cancer? My understanding is that bone mets don't usually show up for a good length of time from the initial diagnosis and breast cancer tends to invade the visceral organs first. And if the cancer is, in fact, that aggressive, shouldn't we expect to see more mets in more than one spot right now? Thank you in advance for your time

Tricia Keegan
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Re:Stage iv?? This thread is for you! - Saturday, May 09, 2015 3:26 PM
Hi Sasha,

I'm not sure if I replied to you already as thought I had, I'm sorry for your Mom's diagnosis and hope she does well. If cancer has already spread to the bone it will show up at first dx, however a bone scan can show other things like old injuries and arthritis etc so she may need more scans and a biopsy to be sure.

Bone mets are the easiest to treat, far easier than in a major organ so I think your Mom needs to get another opinion. Triple neg is aggressive but usually has a great response to chemo and I hope your Mom does.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

arfrcemom
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Re:Stage iv?? This thread is for you! - Monday, May 11, 2015 8:47 PM
Hello, I am Sue and new to this forum. I was recently diagnosed with stage IV breast cancer with bone mets. I recently started taking Femara, one pill daily, to help slow down any spread. I would like to talk to others about how you have been handling your diagnosis in hopes that I might learn something. I have a very positive outlook, even though I know that I cannot be cured. My doctor has me off work for the next year and I am trying to enjoy each day as it comes. I am fortunate at this time that the pain medication they have me on is working and I am starting my fourth week of feeling well.

Tricia Keegan
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Re:Stage iv?? This thread is for you! - Tuesday, May 12, 2015 12:26 AM
Hi Sue,

I'm not stage iv but just wanted to say hello and hope the Femara keeps you pain free and stops any spread, the boards a little quiet right now but hopefully someone will be along who has a similar dx.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

tazeandrox12
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Re:Stage iv?? This thread is for you! - Wednesday, May 27, 2015 11:49 PM
Hello Everyone! I have not posted in a while, due to probs. I was having with my username, password, etc.. I have that figured out (thanks Tricia!). Now just need to learn how to list my background? Anyway, I am Stage IV, as of 9/14, mets to bone, and liver. Was on Afinitor,-- for 6 months -- now on Ibrance. So far so good. Need to get weekly blood draws and my White count is low. Feeling super tired lately which is not something I' m used to. Looking forward to meeting you all. Tricia -- I'm confused (which doesn't take much LOL!). You recently posted that you are not Stage IV, but your signature ending states that you are. Have a great weekend Bev
<message edited by tazeandrox12 on Wednesday, May 27, 2015 11:51 PM>

Tricia Keegan
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Re:Stage iv?? This thread is for you! - Thursday, May 28, 2015 4:06 AM
Hi again,

Sorry but I can't see anywhere in my signature where it says I'm stage iv??  If you want to post your info just scroll to the top of the page and click on "User Control", it will give you options to do various things but when you post your info be sure to scroll down to the bottom of the page and click "Save"....hope that helps and if not I'll post more info for you.

I'm glad you're doing well, will you continue on the Ibrance for now or something else? as to your low cell count are you receiving a shot of Neulasta or Neupogen which should solve that issue for you?
<message edited by Tricia Keegan on Thursday, May 28, 2015 4:08 AM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

arfrcemom
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Re:Stage iv?? This thread is for you! - Saturday, June 06, 2015 11:59 AM
Hello all. I am still feeling good and on my way to New Orleans for some fun sister time. I have recently started taking Ibrance and i am doing well with so far no serious side effects. Take care all.

Tricia Keegan
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Re:Stage iv?? This thread is for you! - Saturday, June 06, 2015 1:40 PM
Hi Sue,

I'm glad you're tolerating it well and hope you do well on this drug, have fun!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Marcia Louise
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Re:Stage iv?? This thread is for you! - Tuesday, September 15, 2015 2:54 PM
Hello there Tricia. I've been on Anastrozole for about a year and have begun noticing quite marked hair loss. Is this due to the Anastrozole? I am wondering if you have had a similar experience with it. 
Have a great day.
Stage lV advanced BC. ER+/PR+/HER2-/ mets to nodes traveling up neck. Dx in April, 2014. Previously on Taxol. Currently taking Arimidex.

Tricia Keegan
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Re:Stage iv?? This thread is for you! - Tuesday, September 15, 2015 4:23 PM
Hi Marcia Louise,

I didn't have this side effect but it can happen although very rare, if you're not on chemo or other drugs that could cause this see your Onc and ask to switch to another AI which may not have the same side effects for you, keep us posted!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Marcia Louise
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Re:Stage iv?? This thread is for you! - Tuesday, September 15, 2015 5:37 PM
Thanks for your reply Tricia. I have been researching this since posting. I have recently stopped taking Terbinafine for a skin rash and I gather that this has a very high incidence of causing hair loss, from what I have read anyway. I'll hope that was the cause and it will come back. Again, thank you and have a good day.
Stage lV advanced BC. ER+/PR+/HER2-/ mets to nodes traveling up neck. Dx in April, 2014. Previously on Taxol. Currently taking Arimidex.

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