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 Kadcyla
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nikkiw1973

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Kadcyla - Saturday, May 27, 2017 11:17 AM
Has anyone tried this targeted therapy and if so, what has been your experience with it? I just started it yesterday and any information would be helpful.
Tricia Keegan

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Re:Kadcyla - Saturday, May 27, 2017 1:39 PM
Hi Nikki,

Please try our closed facebook group which is far busier where you'l find many others that have taken this drug https://www.facebook.com/groups/1588741974737166/?ref=bookmarks

Also there are some members on www.her2support that have taken it too.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
nikkiw1973

  • Total Posts : 28
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Re:Kadcyla - Saturday, October 28, 2017 4:59 PM
Hey Tricia. I'm not on Facebook. Well, it's a mute point now because I am now off the kadcyla. The side effects were not good. Horrible migraines, nosebleeds, extreme fatigue, had increased fluid build up in my lungs, pneumonia. Started having vision issues, facial numbness and after brain MRI and ct scans , have discovered that there has been progression and it has metastasized to my brain. I meet with radiation oncologist next week. Still praying, still fighting.
Tricia Keegan

  • Total Posts : 19215
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Re:Kadcyla - Monday, November 06, 2017 2:31 PM
I'm so sorry to read this Nikki, I really hope you do well and have a good response to the treatment. If you post on www.her2support.org I know there are many women who can help support and advise you about brain mets.  
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Tricia Keegan

  • Total Posts : 19215
  • Reward points : 13520
  • Joined: 1/1/2005
  • Location: Ireland
  • Status: offline
Re:Kadcyla - Monday, November 06, 2017 4:07 PM
P.S  Just saw this although it may not be available for a while but discuss with your Onc http://www.eveningtimes.co.uk/news/15642513.City__39_s_Beatson_cancer_team_in_brain_tumour_drug_breakthrough/
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

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