Radiation Anxiety

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C Roberts
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Radiation Anxiety - Thursday, January 26, 2006 8:47 PM
I had my first consultation with the radiology oncologist tuesday. He seems ok, answered all my questions and took lots of time with me. He said they will do a CT scan to help plan the radiation. He also said I will have a small area of my lung pemanently damaged due to the way they have to radiate (he said most people never notice it, even it they are exercising). He also said because I had chemo, I will probably have more fatigue than someone who didn't have chemo.

I have my last taxol treatment on the 1st, and I think I am more afraid of radiation than I was of chemo.

The doctors all act like all the treatments are no big deal, so I don't have alot of faith in any of them. He said very few of his patients get burns.

Anybody have any advice? What can I expect? Is it easier than chemo?

Thanks
Cherie R

sharon davidson
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Re: Radiation Anxiety - Thursday, January 26, 2006 9:04 PM
Hi there if you can endure chemo you brease thru radiation. My sessions where short. about 6 minutes on the table. 15 to 20 min for appointment the doctors will follow you weekly ask for a rx cream biafine it helped me alot im a red head and very fair skined best of look. god bless sharon


> >I had my first consultation with the radiology oncologist
> tuesday. He seems ok, answered all my questions and took
> lots of time with me. He said they will do a CT scan to help
> plan the radiation. He also said I will have a small area of
> my lung pemanently damaged due to the way they have to
> radiate (he said most people never notice it, even it they
> are exercising). He also said because I had chemo, I will
> probably have more fatigue than someone who didn't have
>
> I have my last taxol treatment on the 1st, and I think I am
> more afraid of radiation than I was of chemo.
>
> The doctors all act like all the treatments are no big deal,
> so I don't have alot of faith in any of them. He said very
> few of his patients get burns.
>
> Anybody have any advice? What can I expect? Is it easier
> than chemo?
>
> Thanks
I'm new here just finished chemotherapy and getting ready to stat radiation. need to get more involved with possible support group south bay san diego can any one help

Mary D
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Re: Radiation Anxiety - Thursday, January 26, 2006 9:13 PM
Cherie, Relax -- if it's possible. I had the full 30+ rad treatments for 4 CM DCIS tumor. Before the actual treatments started my radiation oncologist told me to apply Fruit of the Earth 100% aloe vera gel four times daily. I did faithfully. (I started a few days before treatments actually began.) He also said bathe with a mild soap -- Basis or Ivory. I am fair skinned. I had very little skin reaction to the rads. My skin got only pink and dry. Nothing more. Not at all sore or itchy. And no fatigue.

I wish my rads experience for you and every one.

Mary D.
Chicago suburbs
DCIS / stage 0 - 11/18/02
Lumpectomy (clean margins) - 12/02/02
Rads - 1&2/03
Tamoxifen - 1/13/03 thru 1/12/08
Biopsies - 5/03 & 11/05 - both benign

Karen Monier
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Re: Radiation Anxiety - Thursday, January 26, 2006 9:40 PM
I will finish my third week of radiation tommmorrow and compared to chemo it is a piece of cake. I am doing the aloe vera several times a day and aquaphor at night and so far have no reaction. I sometimes feel a little like a bug with people looking at me through a magnifying glass but that is my only complaint. I finished chemo on December 9 (4 rounds of AC dose dense) and have fairly normal energy at this point. Hang in there...it will be ok!

Karen


> >I had my first consultation with the radiology oncologist
> tuesday. He seems ok, answered all my questions and took
> lots of time with me. He said they will do a CT scan to help
> plan the radiation. He also said I will have a small area of
> my lung pemanently damaged due to the way they have to
> radiate (he said most people never notice it, even it they
> are exercising). He also said because I had chemo, I will
> probably have more fatigue than someone who didn't have
>
> I have my last taxol treatment on the 1st, and I think I am
> more afraid of radiation than I was of chemo.
>
> The doctors all act like all the treatments are no big deal,
> so I don't have alot of faith in any of them. He said very
> few of his patients get burns.
>
> Anybody have any advice? What can I expect? Is it easier
> than chemo?
>
> Thanks
Karen Monier

Kathy Delgado
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Re: Radiation Anxiety - Friday, January 27, 2006 5:02 AM
Cherie,
You've endured the toughest part of treatment, chemo!
I'm not saying that radiation is not tiring, the fact that you must go everyday for 6-7 weeks, but a walk in the park compared to chemo.
Just remember to use whatever ointments given, biafine and aquaphor is what I used, and gets lots of rest.
Be good to yourself during treatments. I found that my hair, eyebrows, and lashes grew back during this phase of treatment. Something positive to look forward to.
You'll be fine.

Kathy




> >I had my first consultation with the radiology oncologist
> tuesday. He seems ok, answered all my questions and took
> lots of time with me. He said they will do a CT scan to help
> plan the radiation. He also said I will have a small area of
> my lung pemanently damaged due to the way they have to
> radiate (he said most people never notice it, even it they
> are exercising). He also said because I had chemo, I will
> probably have more fatigue than someone who didn't have
>
> I have my last taxol treatment on the 1st, and I think I am
> more afraid of radiation than I was of chemo.
>
> The doctors all act like all the treatments are no big deal,
> so I don't have alot of faith in any of them. He said very
> few of his patients get burns.
>
> Anybody have any advice? What can I expect? Is it easier
> than chemo?
>
> Thanks
Kathy
Stage II
Age 50 at diagnosis
IDC-2/10 lymph nodes positive - 1.7cm
triple negative-Dose-dense A/C & Taxol-completed 8/5/05
Radiation 9/6/05-10/21/05
new cysts(benign) found in both breasts during mammo 10/06

Susan10891
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Re: Radiation Anxiety - Friday, January 27, 2006 7:59 AM
Hi:
I finished radiation in December, and after chemo, it's a piece of cake! I applied the lotion they give faithly, 3 times a day, and I never had burns. The skin got tight and itchy, but not bad. I also made sure I'd exercise everynight, and I never had fatigue either. I'd put my headphones on, and walk, walk, walk. I work and have 3 young kids, and this was my time. I'd look forward every evening to my 45 minutes of alone time with my music. It was great for my mental health too. So if my house and dishes weren't as clean as before, so what! I am clean mentally!

I actually miss the great radiation people I had! After seeing the same people, 5 days a week, for 6 weeks, they become part of your day. I've gone back in a few times just to visit. ( and to show them my hair growth too)

Don't be scared, after chemo and all the other junk, this was easy.

Good Luck, Sue


> >I had my first consultation with the radiology oncologist
> tuesday. He seems ok, answered all my questions and took
> lots of time with me. He said they will do a CT scan to help
> plan the radiation. He also said I will have a small area of
> my lung pemanently damaged due to the way they have to
> radiate (he said most people never notice it, even it they
> are exercising). He also said because I had chemo, I will
> probably have more fatigue than someone who didn't have
>
> I have my last taxol treatment on the 1st, and I think I am
> more afraid of radiation than I was of chemo.
>
> The doctors all act like all the treatments are no big deal,
> so I don't have alot of faith in any of them. He said very
> few of his patients get burns.
>
> Anybody have any advice? What can I expect? Is it easier
> than chemo?
>
> Thanks
Lumpectomy 5/05
Sentinal node - all neg
ER+
HER2+
4 DD A/C
Herceptin 1 year
33 radiation doses

trish helfrich
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Re: Radiation Anxiety - Friday, January 27, 2006 8:36 AM
Hi
I've had 5 out of 33 treatments. So far it is definitely a piece of cake compared to chemo. You are on the table for such a short time. I'm usually out of there w/in 10 mins. My rad said I should start seeing a little redness in about 2 weeks or so. He also told me about the small portion of the lung that would be damaged and pretty much stated the same thing your rad did. Just use those creams they give you and you'll breeze right on through.
Best of Luck!
Trish


> >I had my first consultation with the radiology oncologist
> tuesday. He seems ok, answered all my questions and took
> lots of time with me. He said they will do a CT scan to help
> plan the radiation. He also said I will have a small area of
> my lung pemanently damaged due to the way they have to
> radiate (he said most people never notice it, even it they
> are exercising). He also said because I had chemo, I will
> probably have more fatigue than someone who didn't have
>
> I have my last taxol treatment on the 1st, and I think I am
> more afraid of radiation than I was of chemo.
>
> The doctors all act like all the treatments are no big deal,
> so I don't have alot of faith in any of them. He said very
> few of his patients get burns.
>
> Anybody have any advice? What can I expect? Is it easier
> than chemo?
>
> Thanks
Trish
ILC
dx'd @48 - 8/9/05
lumpectomy (left side)& 10 nodes 8/24/05
Stage 1- 0/10 neg. 1.5 cm
Grade 2 Triple Negative
A/C completed 12/9/05
Radiation completed 3/6/06

G. Mensing
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Re: Radiation Anxiety - Friday, January 27, 2006 1:27 PM
Dear C. Roberts,



> >I had my first consultation with the radiology oncologist
> tuesday. He seems ok, answered all my questions and took
> lots of time with me. He said they will do a CT scan to help
> plan the radiation. He also said I will have a small area of
> my lung pemanently damaged due to the way they have to
> radiate (he said most people never notice it, even it they
> are exercising). He also said because I had chemo, I will
> probably have more fatigue than someone who didn't have
>
> I have my last taxol treatment on the 1st, and I think I am
> more afraid of radiation than I was of chemo.
>
> The doctors all act like all the treatments are no big deal,
> so I don't have alot of faith in any of them. He said very
> few of his patients get burns.
>
> Anybody have any advice? What can I expect? Is it easier
> than chemo?
>
> Thanks
G. Mensing

Jodi Andreini
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Re: Radiation Anxiety - Friday, January 27, 2006 1:58 PM
Hi there C. Roberts,

I really do hope that your radiation is not hard for you. It is totally different than chemo that is for sure.

I think like everything else it depends on each individual. I had a little bit harder time than some and kind of felt bad because I heard so much about it being a breeze and sooo easy.

For some it is. The every day thing got to me. I had more skin reaction than some and not as much as others but for me it was tricky. I was up on the table for a minumum of 25 minutes and sometimes on days they took x rays it was 45 minutes or so. I had 6 fields a day radiated which not everyone has that many. I would find out how long they predict you being on the table.I took Ibuprofin on the long days and this made it much easier.

I faithfully did the lotions too which helped a lot. I was told that for some of us our skin is going to break down no matter what we do, but this keeps it from being any harder than it needs to be.

I wish you all the best and if you need any more support feel free to contact me.

Jodi :)








> >I had my first consultation with the radiology oncologist
> tuesday. He seems ok, answered all my questions and took
> lots of time with me. He said they will do a CT scan to help
> plan the radiation. He also said I will have a small area of
> my lung pemanently damaged due to the way they have to
> radiate (he said most people never notice it, even it they
> are exercising). He also said because I had chemo, I will
> probably have more fatigue than someone who didn't have
>
> I have my last taxol treatment on the 1st, and I think I am
> more afraid of radiation than I was of chemo.
>
> The doctors all act like all the treatments are no big deal,
> so I don't have alot of faith in any of them. He said very
> few of his patients get burns.
>
> Anybody have any advice? What can I expect? Is it easier
> than chemo?
>
> Thanks
Jodi Andreini,44
Stage 3C IDC
Er, Pr, and Her2 receptor Negative
14/20 nodes +
DD-A/C and Taxol(last 2 Abraxine)
36 Radiation treatments
Lymphadema
Finished treatment 01/2006 :)

Judy1
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Re: Radiation Anxiety - Friday, January 27, 2006 7:29 PM
Hi Cherie,

I had 28 rads from September to December 2004. Compared to the chemo, radiation for me was a breeze. I know a lot of the gals have used creams. I used pure aloe plus really cold compresses 3 times a day for 20 minutes to draw the heat. No blistering or burning. Just looked (and still does) like I got a sunburn on my chest and underarm areas. Hope my input helps a bit. Best wishes.




> >I had my first consultation with the radiology oncologist
> tuesday. He seems ok, answered all my questions and took
> lots of time with me. He said they will do a CT scan to help
> plan the radiation. He also said I will have a small area of
> my lung pemanently damaged due to the way they have to
> radiate (he said most people never notice it, even it they
> are exercising). He also said because I had chemo, I will
> probably have more fatigue than someone who didn't have
>
> I have my last taxol treatment on the 1st, and I think I am
> more afraid of radiation than I was of chemo.
>
> The doctors all act like all the treatments are no big deal,
> so I don't have alot of faith in any of them. He said very
> few of his patients get burns.
>
> Anybody have any advice? What can I expect? Is it easier
> than chemo?
>
> Thanks
Diagnosed April 2004; 11 cm. invasive lobular tumor with 5/6 + nodes and fatty tissue involvement; dose dense A/C & Taxol; radiation; arimidex switched to aromasin May 2005; SURVIVOR!!

testRachel Esther
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Relax! - Saturday, January 28, 2006 7:59 AM
> >I had my first consultation with the radiology oncologist
> tuesday. He seems ok, answered all my questions and took
> lots of time with me. He said they will do a CT scan to help
> plan the radiation. He also said I will have a small area of
> my lung pemanently damaged due to the way they have to
> radiate (he said most people never notice it, even it they
> are exercising). He also said because I had chemo, I will
> probably have more fatigue than someone who didn't have
>
> I have my last taxol treatment on the 1st, and I think I am
> more afraid of radiation than I was of chemo.
>
> The doctors all act like all the treatments are no big deal,
> so I don't have alot of faith in any of them. He said very
> few of his patients get burns.
>
> Anybody have any advice? What can I expect? Is it easier
> than chemo?
>
> Thanks


For me, radiation was a BREEZE, a walk in the park, a day at the beach!

The rads do not hurt when you are getting them - like an xray at the dentist, you don't feel a thing.

You will probably get an itchy rash about 4 weeks into it. Annoying, but not terrible. Use hydrocortisone cream.

I got red, sensitive, like a bad sunburn, in the last week of rads, and it continued to get worse for 2 more weeks, then went away. It was ok, I got silver sulfadiazine for the burning.

During the ENTIRE time, from Day 1, you must moisturize. Morning, evening, and after your radiation. You can use Biafine, or Eucerin, or whatever your rad onc suggests. But use it religiously.

If you had a lumpectomy, and your breast skin touches your other skin at the crease, the place where the skin touches is a prime place for irritation, and you must be extra careful to prevent rubbing. And in any case, wearing a bra makes for irritation around the bottom as it is tight. You are much better off not wearing a bra during this time. I wore soft cotton tank tops with over shirts to disguise the floppiness, and that is what alot of women do.

I never got tired, never had any other side effects.

Good luck! I think you are going to be pleasantly surprised by what a non-event the radiation is.

Rachel

G. Mensing
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Re: Re: Radiation Anxiety - Friday, January 27, 2006 1:41 PM
Dear C. Roberts,
I just completed my last of 30 radiation treatments on January 16th. I too was terrified of the long term effects of radiation. I had to will myself to show up every day for the treatment. I had to come in for a simulation at which time they did the CT scan and then mapped out the areas they would irradiate. It is not that the treatment itself is difficult, it is quite easy and only lasted 10 to 15 minutes a time after they first set things up. I had a harder time with radiation than with chemo probably because of all the years I have been told to stay out of the sun and that radiation is bad for you. Emotionally, it was more difficult for me. I was very afraid to damage my lung. So far, I only had a cough for a few weeks. I have very light brown skin. It turned very dark in the area under the arm and to the outside of my right breast which is where I was treated. I also had the supraclavicular area treated. Where my shoulder folded when I held it in position is where I had the worst burn. It did not blister, only peeled. You can email me if you want more details.
G. Mensing

Tricia Keegan
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Re: Re: Radiation Anxiety - Friday, January 27, 2006 2:19 PM
HI Cherie
I just want to wish you well with your Rad treatments.I finish chemo next Mon week so due to begin Rads in roughly a month from then so was glad you put this post up as all the positive feedback has reassured me too.Please let me know how you get on.Good luck and hope it is a breeze for you.:)
Tricia


> >Hi there C. Roberts,
>
> I really do hope that your radiation is not hard for you. It
> is totally different than chemo that is for sure.
>
> I think like everything else it depends on each individual.
> I had a little bit harder time than some and kind of felt
> bad because I heard so much about it being a breeze and sooo
>
> For some it is. The every day thing got to me. I had more
> skin reaction than some and not as much as others but for me
> it was tricky. I was up on the table for a minumum of 25
> minutes and sometimes on days they took x rays it was 45
> minutes or so. I had 6 fields a day radiated which not
> everyone has that many. I would find out how long they
> predict you being on the table.I took Ibuprofin on the long
>
> I faithfully did the lotions too which helped a lot. I was
> told that for some of us our skin is going to break down no
> matter what we do, but this keeps it from being any harder
> than it needs to be.
>
> I wish you all the best and if you need any more support
>
> Jodi :)
>
>
>
>
>
>
>
>
> > >I had my first consultation with the radiology oncologist
> > tuesday. He seems ok, answered all my questions and took
> > lots of time with me. He said they will do a CT scan to
> help
> > plan the radiation. He also said I will have a small area
> of
> > my lung pemanently damaged due to the way they have to
> > radiate (he said most people never notice it, even it they
> > are exercising). He also said because I had chemo, I will
> > probably have more fatigue than someone who didn't have
> >
> > I have my last taxol treatment on the 1st, and I think I
> am
> > more afraid of radiation than I was of chemo.
> >
> > The doctors all act like all the treatments are no big
> deal,
> > so I don't have alot of faith in any of them. He said very
> > few of his patients get burns.
> >
> > Anybody have any advice? What can I expect? Is it easier
> > than chemo?
> >
> > Thanks
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Peggy70
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Re: Radiation Anxiety - Tuesday, March 10, 2015 3:01 PM
I am having surgery tomorrow and the radiation treatments are scaring me more than the surgery!   I had no idea your lung could get damaged.   I have stage 0 dcis and chose lumpectomy but now wondering if i should have had mastectomy?   Any advise welcomed!

Tricia Keegan
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Re: Radiation Anxiety - Wednesday, March 11, 2015 6:05 AM
The chances of any lung or heart damage is slim to none really and these machines are very precise indeed, they have to tell you all the risks of course but the worst I had was a slight cough ten days in which only lasted a few days. Some of these posts you're reading are up to ten years out of date so hope this reassures you and good luck.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Peggy70
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Re: Radiation Anxiety - Monday, April 13, 2015 6:20 AM
Thank you!
<message edited by Peggy70 on Monday, April 13, 2015 6:22 AM>