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 Triple Negative-How are you doing?
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Sadie Rose

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Triple Negative-How are you doing? - Monday, November 12, 2007 10:44 PM
Triple Negative Folks,
 
I just wanted to communicate with other women who have been diagnosed with triple negative breast cancer.  If you are triple negative, I wonder if you would share what your treatment has been and how far out you are from treatment.  I would love to hear your stories.
 
I am triple negative and three years out from treatment.  I had surgery to remove several nodes and then did chemotherapy.  I had 3 rounds of AC and there was no change in my tumor size.  My oncologist changed my cocktail to T and Carboplatin. My tumor did reduce in size and I had a lumpectomy.  Next I did 33 radiation rounds with boost at the end.  So far I am doing well.  All of my scans come back good.
 
Sadie
Alison Irwin

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RE: Triple Negative-How are you doing? - Tuesday, November 13, 2007 1:41 PM
Hi Sadie,
 
Another triple neg survivor here!  I am a 15 month survivor!  I had a left mastectomy, 4 AC chemos, 1 Taxol, 3 Taxotere and 36 rads.  I'm doing great so far.  I did have 1 lymph node involved.
 
Right now I'm just enjoying life and trying to put my cancer worries behind me.  I know my life will never be the same, but I am determined to make it as normal as possible.  I will be having reconstructive surgery sometime later this winter.
 
Congrats on reaching the 3 year mark.  My onc. told me that triple neg's have a higher recurrence rate the first 2-3 years.  Once you make it past that your rate of recurrence goes down significantly.  Finally some good new for us!
 
Take care,
Alison
Alison, 45. Woodland, WA.
DX 08/14/06, Left Mast, Nodes13-/1+, 4-AC/1-Taxol/3-Taxotere, Rads, BRCA neg.,Tram flap. Medullary carcinoma, triple negative.
Karan

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RE: Triple Negative-How are you doing? - Tuesday, November 13, 2007 5:12 PM
Hi, I just found out last week that I ws triple negative also.  I am not a survivor, yet.....just one in training.  I will be having a bilateral mast. with tram flap reconstruction on 11/30.  I am Braca 2 positive, with invsive breast cancer, found with an MRI and then biopsy.   so decided to do both becuase of the recurrance rate with the gene.  I have been searching the message board for people with triple negative and would love any advice or information you might have.  It is so supportive to see how far along others are in this journey.  Valerie
Texas Granny

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RE: Triple Negative-How are you doing? - Tuesday, November 13, 2007 5:48 PM
Diagnosed 2-15-07
3-7-07 single, simple mastectomy
1 cm. 4 nodes negative
Stage 1
grade 3 triple negative
4 ac finished 6-20-07
 
I haven't quite made 5 months since the end of treatment, but I feel good and am doing everything that I was doing before diagnosis and treatment.  - Still working 40 + hours a week - I am 66. I haven't been able to decide if triple negative is good or bad.
 
Texas Granny
<message edited by Texas Granny on Tuesday, November 13, 2007 5:53 PM>
Rena

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RE: Triple Negative-How are you doing? - Sunday, November 18, 2007 10:10 AM
Hi Sadie. I'm a 21-year triple negative survivor. My treatment consisted of mastectomy, chemo and radiation. It was such a long time ago that I don't think they use the same kind of chemo anymore (it was CMF). My cancer was not found early--it had spread to 22 lymph nodes, but they say that triple negatives respond well to chemo, and it seems to have worked for me. Good luck, Sadie. Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!
Sadie Rose

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RE: Triple Negative-How are you doing? - Friday, November 23, 2007 9:32 PM
oo
<message edited by Sadie on Friday, November 23, 2007 9:38 PM>
Sadie Rose

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RE: Triple Negative-How are you doing? - Friday, November 23, 2007 10:27 PM
Hi Alison'
It was so nice to hear from you.  It sounds like you are on the road to rcovery.  I'm glad to hear life is getting back to normal for you.  It does get easier and easier to feel like you can attend to typical daily events and not have to be so focused on cancer.  Every time a screening test comes back okay it is easier to belief you have beat cancer this time. 
 
Thankyou for sharing!
Sadie
Sadie Rose

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RE: Triple Negative-How are you doing? - Friday, November 23, 2007 10:30 PM
Hi Valerie,
I just got back to reading this message board.  I noticed you have your surgery coming up soon.  I will hold you in my thoughts and am sending you positive vibes~~~~~~~~~.
 
I hope you get to enjoy the week and can pamper yourself.
Warmly,
Sadie
Sadie Rose

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RE: Triple Negative-How are you doing? - Friday, November 23, 2007 10:34 PM
Rena,
Your a 21 year survivor! Wow!!!  Did you doctors identify your cancer as triple negative then?  It is so encouraging to hear that you have done so well.   What advice would you give to those of us only a few years out from treatment?
 
Thank you so much for sharing!
Sadie
Rena

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RE: Triple Negative-How are you doing? - Friday, November 23, 2007 10:54 PM
Hi Sadie. Back then, they could tell that I was ER/PR negative, but there was no HER test. Much later, I asked my oncologist if he thought I was triple negative, and he said yes because I was diagnosed young and eventually tested positive for the BRCA2 genetic mutation. He said that these are consistent with triple negative. As for advice, I think the best I can give is this: keep working on your mental/emotional health so that you can deal with stress, and try to enjoy your life and do the things that make you happy. As much as possible, surround yourself with loving people. There's no magic bullet, unfortunately, but I think that being happy helps promote healing. I wish you all the best, Sadie. Love, Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!
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