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 Triple Negative-How are you doing?
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Texas Granny

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RE: Triple Negative-How are you doing? - Wednesday, September 17, 2008 8:52 PM
Hello everyone
 
Rena, I am so sorry that you are having problems. hope that you will get some answers and good results soon.
 
Sadie, thanks for starting this thread.  Several years ago my blood sugar was elevated and I brought it down with diet and exercise, but have not kept up with them recently.  My blood tests still show it higher than it should be. 
 
Recently I had been having lower back pain, but after an x ray, the diagnosis was arthritis.  The arthritis since chemo has been worse in the knees and hips, but I don't know if it was due to the chemo or just aging.  Also I have not been attending my water fitness classes which helped so much.
 
But on the bright side, I feel good most days, still working over 40 hrs per week and bringing work home each nite. ( I will be 67 in a few weeks).  It is so good to hear about other triple negatives.
 
Last nite I attended a Komen Survivor Celebration.  The mistress of ceremonies was a breast cancer survivor and currently battling bile duct cancer with chemo and radiation.  She wore a fanny pack and I wondered if that was her chemo pump.  One of the ladies on the program kept carrying around a back pack  - and then I discovered she had a large bandage on her forearm with a tube attached.   Their courage and determination is to be admired.
 
Take care everyone and hugs to each of you.
 
Texas Granny
Sadie Rose

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RE: Triple Negative-How are you doing? - Thursday, September 18, 2008 8:38 AM
Hi All,
 
I've been moving my office and trying to get a new one painted and set up.  It has been a little stressful.  I have been reading to keep up with everyone.  I just haven't posted in a while.  Just wanted yoiu to know you all have been on my mind.  I'll write more on the weekend.
 
Warmly,
Sadie
Gail Srebnik

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RE: Triple Negative-How are you doing? - Thursday, September 18, 2008 8:02 PM
Hi folks! I'm not moving like Sadie but school is very busy right now but I think about all of you often and send out my positive vibes to one and all with lots of love attached. Blessings, Gail
dx 8/11/06- 58 yrs young
62! yrs young now
lumpectomy 8/22/06
triple negative!
Clinical trial -AC and taxol with Avastin
Chemo done 1/25/07
33 rads done 3/30/07
Now - leukemia! 4/7/2008 carepage-GailSrebnikMeade
Rena

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RE: Triple Negative-How are you doing? - Friday, September 19, 2008 12:11 AM
Granny, Sadie and Gail, it's good to hear from you. Granny, what kind of work do you do? I hope to never retire completely because I feel happier when I'm working. Sadie and Gail, don't work too hard!! I hope you all have a good weekend. xoxo Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!
Sadie Rose

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RE: Triple Negative-How are you doing? - Friday, September 19, 2008 8:58 AM
Hi Rena,
Thanks for the weekend wish.  I go to see my oncologist in a couple of hours.  I haven't worried about it much until a couple of days ago.  I feel pretty good except every time I eat anything my whole adominal area destends and can be quite tight and uncomfortable.  I stopped taking one of my medications and that is helping some.  Maybe my oncologist will have an idea of what is going on. 
 
How are you doing today?
 
Gail and Granny and all.  I hope you are getting to enjoy some of the touches of fall approaching.  Have a fun weekend.
 
Warmly,
Sadie
 
 
Rena

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RE: Triple Negative-How are you doing? - Friday, September 19, 2008 10:00 AM
Sadie, I'll be thinking about you. I hope your oncologist can help you with the bloating problem. Let us know. I'm doing OK, thanks. I'm hoping to get some helpful answers from my doctors over the next few days, too. I'm grateful it's nothing serious--just uncomfortable and annoying. The sun is shining this morning, and my beautiful boy Joey is atop his cat tree by the window where the sun is streaming in. It's a very peaceful scene and just the way I'd like life to be all the time! With the exception of having to "wrangle" Audrey into the cat carrier and haul her off to the vet (where they run for cover when 'bad' Audrey comes in), I expect to have a very peaceful day. Can't say the same for poor Audrey--or for the vet. Keep smiling, everyone!! Love, Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!
lesanna

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RE: Triple Negative-How are you doing? - Saturday, September 20, 2008 2:23 PM
I am trying to survive chemo.  It seems I have a new disease a week...
3 cm. tumor triple negative removed by lumpectomy
Nodes and margins negative
Stage 2A
53 years old
 
I have had 4 ACT treatments.  Two more to go.  In the meantime, have experienced infection due to low white blood count, lost 10 pounds in one week, came down with shingles, this week had DVTs in one leg.  Shingles infection treated and did not have severe symptoms, DVT treated as well and clots seem to be dissolving.  Having some concerns about two additional treatments and then radiation.  Original port never worked and had to have it replaced. 
I am trying to look forward, but hoping I have no more surprises. 
 
Originally told, I would not miss much work, but am ending up missing 8 days each three week cycle due to complications. 
 
A few days after chemo started, my grandmother broke her hip and was in and out of hospital for 6 weeks and eventually died, also had to put dog asleep during the chemo.  Stress has been high.
 
With all of this, still have good morale, but wonder if I should be more worried.
 
 
 
 
 
 
 
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Lisa11388

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RE: Triple Negative-How are you doing? - Saturday, September 20, 2008 3:28 PM
Holy cow Lesanna!  Sometimes bad things seem to come in groups.  I'm sorry for the loss of your grandmother, and your dog too. Its good you are trying to keep your morale up.  A good attitude is crucial.  I'm sorry you have had such a rough time.  I had A/C also, but had 6 treatments instead of 4.  Best of luck with the remaining treatments.  Are you having Taxol after the A/C?  Are you getting Nuelasta shots for you white blood cells?  Check in here often to vent, ask, or whatever.  We understand.
Lisa Long
Central Illinois
dx 8-29-05 age 43
mast & lat flap 9-30-05
triple neg brca neg
4.5 cm node neg
6 a/c followed by 5 taxol 10/05-3/06
28 rads 5/06-6/06
Currently NED
lesanna

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RE: Triple Negative-How are you doing? - Saturday, September 20, 2008 5:53 PM
Thanks for your comment.  I have had 4 AC plus Taxotere with the plan to have 6 AC plus taxotere treatments.  At the time this was planned, I was told this treatment provided the best outcome for the BC I had.  It is a little tougher regimen.  On the positive side, the doctors have been able to address everything, but I wonder what might happen next. However, some symptoms have decreased as the treatments continued, so that is positive.  I am taking the Neulesta shots, but that did not work the first treatment, but must be working overall, because when I come in for Chemo, my blood is always ok.  
 
This is a helpful board to talk to people who have triple negative as I run into few who are. 
 
 
Rena

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RE: Triple Negative-How are you doing? - Saturday, September 20, 2008 8:02 PM
Hi Lesanna. You ask if you should worry more. No! You've been given enough to worry about, and you've dealt with everything as best you could. And it sounds as though you're doing a great job of it. Your good morale will go a long way toward helping you get through the rest of your treatments. I'm very sorry about your grandmother and about your dog. As Lisa said, troubles do seem to come in bunches. I hope that your stress lightens soon. Im glad you found this thread. Take care. Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!
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