Triple Negative-How are you doing?

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Sadie Rose
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RE: Triple Negative-How are you doing? - Saturday, January 26, 2008 12:10 AM
Hi Kathy,
Welcome to our thread.  You will find everyone here willing to help.  Please ask any questions you have.  We have a lot of information to share. 
Warmly,
Sadie

Sadie Rose
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RE: Triple Negative-How are you doing? - Wednesday, January 30, 2008 8:47 AM
Good Morning Ladies.
Just wanted to check in and see how everyone is doing?
 
Warmly,
Sadie

Coco
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RE: Triple Negative-How are you doing? - Wednesday, January 30, 2008 9:22 AM
Hi All,  I just had my last Chemo treatment yesterday and am feeling good.  Went to the gym yesterday and this morning.  I really think it helps with the tiredness.  It doesn't seem to help with the sleeplessness.  I got a prescription for ambient today and will try that.
I am looking forward to my hair growing back.  I plan to start applying rogain for men on Sunday.  My husband did a pilot study at Penn and it was shown to make hair grow in twice as fast.  I'll let you know if this is true.
On to radiation
Claudette
Age 67
DX 10/8/07
10/29/07 LUMPECTOMY RT BREAST INVASIVE DUCTAL CARCINOMA
LYMPH NODES NEG Stage 1 Grade 3
Triple negative
4 cycles of Taxotere and Cytoxan Finished 1/29/08
35 Rads finished 4/11/08
Malvern, Pa

Rena
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RE: Triple Negative-How are you doing? - Wednesday, January 30, 2008 2:22 PM
Hi Sadie and Claudette and everyone. Claudette, I'm glad to hear you're done with chemo and moving on. I'll be interested in knowing if the Rogaine helps. Sadie, how have you been? I guess this is kind of funny, but here I am a 21-year survivor, and now that I'm 58, all sorts of "late middle age" (that's my story and I'm sticking to it!) ailments are kicking in. Now my cholesterol is soaring, as well as my blood sugar. I'm not surprised about the cholesterol--runs in the family--but I've never had blood sugar problems, so I have to be very careful with my diet and start getting more exercise. The bottom line--as annoying as these things are, they can be corrected, and I'm damn lucky to be alive to go through them! Breast cancer sure gives us perspective on things, doesn't it? Wishing you all well. I'm off to eat my celery stick and take a walk! Love, Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Sadie Rose
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RE: Triple Negative-How are you doing? - Wednesday, January 30, 2008 10:25 PM
Hi Claudette,
 
Just wanted to say congratulations on finishing you treatments!!yippee!
 
Hope you get to do something wonderful for yourself.  I live fairly close to the beach, so when I finished radiation I went to the beach for a week.  It was great.
 
Now you can focus on good health.
 
Warmly,
Sadie

Sadie Rose
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RE: Triple Negative-How are you doing? - Wednesday, January 30, 2008 10:41 PM
Hi Rena,
I am doing really well.  My recent PET scan came back clear and all good.  I have to do another one in March because I had a pulmonary embolism three months ago and my oncologist wants to be sure my lungs are clear.  I guess it is different than the regular PET scans I have been having. 
 
I also had my blood sugar rise after treatment.  I have heard this can be a consequence of chemotherapy. Diabetes runs in my family, but  I never had any concern before treatment.  I am taking medication now.
I feel good and have lost some weight, but I have a ways to go.
 
Tell me more about how you are doing.
 
Warmly,
Sadie
 
 
 
 

karey
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RE: Triple Negative-How are you doing? - Thursday, January 31, 2008 12:55 AM
Hi Everyone!

I just had my lumpectomy today and I am doing amazingly well. Historically, I have a great deal of trouble
with the anesthetic and prior surgery has required hospitalization due to illness. I only had two mild upsets
when I try to sit up and once when I first got up. Other than that, I was pretty good actually. In fact, I ended
up going out to dinner on the way home.

My surgery was slightly longer than usual. My husband told me my surgeon had to go down to the lab
during my surgery. It seems that they were unable to find my tumor in the sample she sent down. So, she
had to go down and find it for them!

I only had two lymph nodes removed and the preliminary findings showed them to be negative. I'm keeping
my fingers crossed!
Kathy
Diagnosed at age 47
DX: 12/13/07 IDC Stage IIa Grade 3 3.5 cm TN
Lumpectomy 1/30/08 SNB neg
Chemo-2/29/08: 4 A/C 4 Taxol-Done 6/6/08! NED!
33 Rads 7/7/08-8/20/08 Done!
12/10/09 Now Ruptured Brain Aneurysm Survivor!

Sadie Rose
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RE: Triple Negative-How are you doing? - Thursday, January 31, 2008 8:26 AM
HI Kathy,
 
Wonderful news and no nodes involved!!! I'm glad you had an easy time of it.  Hope you get to have a relaxing day today.
 
I'll hold you in my thoughts.
 
Warmly,
Sadie

Coco
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RE: Triple Negative-How are you doing? - Thursday, January 31, 2008 9:22 AM
Hi Sadie,  My husband has a meeting in Paris in Feb so we are going for a few days.  Bald in Paris.  Imagine that.  Take care.  Claudetteyippee!
Age 67
DX 10/8/07
10/29/07 LUMPECTOMY RT BREAST INVASIVE DUCTAL CARCINOMA
LYMPH NODES NEG Stage 1 Grade 3
Triple negative
4 cycles of Taxotere and Cytoxan Finished 1/29/08
35 Rads finished 4/11/08
Malvern, Pa

sunbearz
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RE: Triple Negative-How are you doing? - Thursday, January 31, 2008 9:14 PM
coco, I work for a Dermatologist and we have hair growth formula. You can get it at the health food stores. It has sawgrass and a multitude of other things.It seems to work better for women.But its not a miracle. It makes hair thicker, but not really growing faster. Rogaine has some of the chemicals,but honestly nothing helps hair grow faster, its a nature thing.They only give the appearance of growing faster because the hair comes in thicker.
sig Jill
age 54
Dx98,Mast 12 pos nodes
Her- ER-pr-BRCA-
Stage iv bone mets 2003 rads to hip
chemo-A/C Xeloda,Zometa,Taxol. Taxotere
Gemsar,Doxil-Abraxine
Spot liver and lung-gone
2008 met to subclav nodes-Rads
5/08 Taxotere
Faslodex
Taxols again,scalp mets
Liver,lung, lymph mets 2009
Femara
Ixempra
Testosterone ,Zometa-stable

Coco
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RE: Triple Negative-How are you doing? - Friday, February 01, 2008 11:20 AM
Jill,  thanks.  I'll let you know if the Rogaine does anything.
Claudette
Age 67
DX 10/8/07
10/29/07 LUMPECTOMY RT BREAST INVASIVE DUCTAL CARCINOMA
LYMPH NODES NEG Stage 1 Grade 3
Triple negative
4 cycles of Taxotere and Cytoxan Finished 1/29/08
35 Rads finished 4/11/08
Malvern, Pa

Sadie Rose
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RE: Triple Negative-How are you doing? - Friday, February 15, 2008 10:37 PM

Sadie Rose
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RE: Triple Negative-How are you doing? - Saturday, March 15, 2008 7:50 AM
Hi Everyone,
 
Just wanted to check in with all our triple negative friends.  How is everyone doing?
 
Warmly,
Sadie

Coco
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RE: Triple Negative-How are you doing? - Saturday, March 15, 2008 10:06 AM
Hi Sadie,  So far so good.  I've had 14 out of 35 rads and am going strong.  I go at 7am and then go to the gym.  I really think this helps with the tiredness.  I am usually ok until the weekend and then I just relax and catch up on sleep.  How are you.
Claudette
Age 67
DX 10/8/07
10/29/07 LUMPECTOMY RT BREAST INVASIVE DUCTAL CARCINOMA
LYMPH NODES NEG Stage 1 Grade 3
Triple negative
4 cycles of Taxotere and Cytoxan Finished 1/29/08
35 Rads finished 4/11/08
Malvern, Pa

Sadie Rose
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RE: Triple Negative-How are you doing? - Saturday, March 15, 2008 10:29 AM
Hi Coco,
It’s so nice to hear you are just sailing through radiation. I went first thing in the morning too. The nurses played Mexican Hat Dance music every morning. They all had fun with their work.
 
I've been doing great. I'm working my full schedule. I go home mid day because my clients come in the morning and late afternoon to late evening. It works well for me because I get a little rest.
 
I've had more concern with a pulmonary embolism after I had surgery in October. I just had to do another CT scan and some genetic testing on Friday to see if I have a genetic predisposition towards forming blood clots. I have two veins that are collapsed so I am doing some breathing exercises. It doesn't really have much impact on what I do. I wouldn't even have known I had a problem except for the CT.
My daughter is carrying twin little girls and we are going to see her ultra sound today. They can make the picture 3D. You can see the babies yarn and move. It should be pretty exciting.
 
Have a great weekend.
Warmly,
Sadie

Rena
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RE: Triple Negative-How are you doing? - Saturday, March 15, 2008 11:10 AM
Hi Sadie and Coco. I'm glad to hear you're both doing well. Coco, good for you for going to the gym after your treatment--can you email me some of that motivation?! Sadie, I hope your genetic tests come back OK. How great that you're going to be a "double grandma." That's so exciting! I'm doing well. I just passed my 21 and a half year anniversary (but who's counting?) and am so grateful for all these years I've had to watch my daughter grow up. She's 23 now. I hope that sometime in the next decade she'll meet a wonderful man and start her own family. Right now I'm trying to get cholesterol and blood sugar under control with diet and medication--one of the many side effects of getting older. Also trying to lose a few (or 20) pounds. I've been fairly busy with work--I'm a freelance copy editor, so the workload is unpredictable, sometimes swamped and sometimes nothing. I've also been painting my daughter's room (aka the guest room now that she's moved out) and re-caulking the bathtub. I like painting (except for the ceilings), so I'll probably find another room to paint when I finish the guest room. That's my exciting life! Take care. Love, Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Gail Srebnik
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RE: Triple Negative-How are you doing? - Saturday, March 15, 2008 1:02 PM
Hi Sadie...Just checking in (as you requested)I am doing well. I'm approaching my second check-up mammo and ultra sound this coming week.It has been a bit over 6 months since the last check in. I am struggling some with my weight and am, I'm afraid,my own worst enemy. I also have been battling(though not aggressively) depression and all I seem to have time for is work and hibernating. My best to you and all the triples! Gail
dx 8/11/06- 58 yrs young
62! yrs young now
lumpectomy 8/22/06
triple negative!
Clinical trial -AC and taxol with Avastin
Chemo done 1/25/07
33 rads done 3/30/07
Now - leukemia! 4/7/2008 carepage-GailSrebnikMeade

Coco
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RE: Triple Negative-How are you doing? - Sunday, March 16, 2008 11:35 AM
Dear Rena and Gail,  I understand about the weight issue.  My best friend and I, whom I have known for almost 60 years(We met in third grade) decided last summer that we were getting a bit chunky.  We joined weight-watchers an each lost about 15lbs.  I think it is the easiest plan to follow.  It is all about portion control so you are not depriving yourself of anything.  I even have a glass of wine with dinner most nights. The other nice thing about weight watchers is that your are eating much heathier foods which can only be good with the cancer issue.  Check them out on the web and there are many convenient meeting places in most cities.
Good luck and get out there and take a walk.
Claudette
Age 67
DX 10/8/07
10/29/07 LUMPECTOMY RT BREAST INVASIVE DUCTAL CARCINOMA
LYMPH NODES NEG Stage 1 Grade 3
Triple negative
4 cycles of Taxotere and Cytoxan Finished 1/29/08
35 Rads finished 4/11/08
Malvern, Pa

Gail Srebnik
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RE: Triple Negative-How are you doing? - Sunday, March 16, 2008 7:58 PM
Hi Claudette! Years ago I was a WW member and did very well with the plan.My problems now are not that I don't know what to eat but rather that my motivation is so low and I am doing no exercise at all. I keep trying to get going but depression stops me in my tracks. What's funny is that I let our area WW meet at my school! Thanks for posting though I think eventually something will help me off this spot. Blessings, Gail
dx 8/11/06- 58 yrs young
62! yrs young now
lumpectomy 8/22/06
triple negative!
Clinical trial -AC and taxol with Avastin
Chemo done 1/25/07
33 rads done 3/30/07
Now - leukemia! 4/7/2008 carepage-GailSrebnikMeade

Rena
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RE: Triple Negative-How are you doing? - Sunday, March 16, 2008 8:37 PM
Hi Claudette and Gail. I, too, had success with WW some years ago. Right now I'm working on getting my blood sugar under control, so I'm on a special diet on which I have to avoid a lot of foods. I'm actually eating better than I ever have, and I feel good. My biggest problem is exercise. I have trouble getting motivated, but I'm working on it. Gail, I wish we lived near each other--maybe we could help each other get going. Thanks for the advice, Claudette. Take care. Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

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