Radiation Tips and Experiences

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ElaineQW
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RE: Krista - Monday, September 22, 2008 11:22 AM
Hi everyone,

This is a great thread and I was glued to it before I started my radiation therapy. I'm probably repeating myself but my radioonco doc prescribed a cream called Xclair, which should be applied 3 times a day. I actually apply it in the morning, faithfully before my rad therapy and sometimes at night before I go to bed. Anyway, I think it must be working because I have what I would describe as a 'pink boob'...no sunburn, no peeling, no pain. I'm not having fatigue to speak of, but I think that's just me...didn't have much with chemo either. I need to add "so far" to my positive effect.....I'm going in today for #18 and who know what awaits me.... :)

Good luck sisters.

Hug,
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






JulieS
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RE: Krista - Thursday, September 25, 2008 11:39 PM
bumping up for newbies to rads.....good luck all!!!!

Cindy D.
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RE: Krista - Tuesday, September 30, 2008 6:37 PM
bump
Mass. 
56 yrs old
dx 1/10/07
Stage IIIa
ER/PR +,Her2 -
chemo: 4ac/4 taxol  5/24/07
lump: 6/18/07
mast: 7/16/07
tamoxifen: 7/25/07-2/9/09
rads:  10/25/07
clinical trial: avastin and xeloda, 12/07-11/08
arimidex/lupron: 2/09/09-12/28/11
clinical trial: femara 1/1/12 9 months on, 3 months off

happywonn
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RE: Radiation Tips and Experiences - Sunday, October 12, 2008 9:19 PM
bump
Cynthia
Cynthia-bx April 10 2008
stage IIa or III tumor 5cm
right breast mast.
Infiltrating Ductal Carcinoma Grade III
Axilltry Node +
currenly taking chemo fourth cycle
no surgery yet

vacc98
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RE: Radiation Tips and Experiences - Sunday, October 12, 2008 11:00 PM
Good evening, I am sure you have received alot of good advice from the caring, supportive group of ladies on this board.  The only thing I would repeat, again and again ~ is keep applying lotion! 
 
From the very first day, even though you will not really see changes right away.  My radio- oncologist office has packets of aquaphor waiting by the door as you leave the treatment area.  Even though I used those faithfully, you will most likely still burn.  I ended up with scripts for clotrim, also for yeast infection, and silvadine that was a God send! 
 
Yes, you will be tired, I  noticed it about 1/2 thru.  But don't push yourself.  I did keep up with all my normal activities, in fact went to radiation every day during my lunch! I just finished 36 treatments this past Wednesday.  26 whole breast, last 10 on the tumor site alone.
 
I know it can be terrifying, but sometimes I think our greatest fear is fear of the unknown. 
 
Take care, and we will all be routing for you!
 
Diagnosed 05/08
48 turned 49 b4 treatment
ER+, PR+ BRCA 1 & 2 NEG.
Oncotype DX 18
Stage II, Grade II
Extremely High Family History
Comp.36 Rads 10/08/08

ElaineQW
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RE: Radiation Tips and Experiences - Monday, October 13, 2008 9:56 AM
BUMP.....
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






June A.
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RE: Krista - Monday, October 13, 2008 10:20 AM
Hi everyone,
 
I am very new at this and have only sent one other reply, so if I make a mess of this, please excuse me and I will (try) to get better.
 
Everyone has been such a help to me and I sure wish I had read your posts before now.  I started last week with the positioning and everything and did not know anything.  I am 61 and things like this should not bother me, but I had a very bad childhood and so when they left me uncovered to do their stuff and the markings and the pictures it put me over the edge. By the time I got to my car I was shaking and crying and it took almost an hr before I could drive.  This happened when I went for the breast MRI. Not sure why it happened but it was not good.  I started the actual radiation on October 9th and had a very good team that were respecful and did not uncover unless necessary and I felt comfortable.  I think I must be the only one who has had these reactions.  You all seem to be so strong and handle things so well and kept your sense of humor.
 
The daily radiation treatments do not scare me now, but my radiologist does not seem to be giving me the information you all are getting. So you are invaluable to me.
 
My oncologist said for me to take tamoxifen but I have refused, with no regrets. I have dealt with cancer since 1982 - Thyroid Cancer- and have had many operations on my throat because it keeps recurring.  Many cancerous lymnodes removed and this last operation in Nov 07 ruined the muscles in my left arm.  But, this BC is something else.
 
I just want everyone to know that you all are my heros for telling your stories, giving advice and letting us look into the window of your world. It is a GREAT help.
 
So I am all smiles and will come to you all for comfort, advice and a hand up.
 
Love and Prayers, June

CEBsblueeyes
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RE: Krista - Tuesday, October 14, 2008 1:31 AM
I have one hint and one question.   Corn starch is really great and helped me a lot.  I ended up using a old spice bottle for my corn starch.  It worked really well.  Try to get one with good size holes so that the corn starch comes out.  The one that I used at first clogged because the corn starch clumped.
 
My question is this.  I just finished 6 1/2 weeks of rads.  Durning rads my skin was fine. It was a little red and my nipple was red, sore and felt funny but it was nothing I could not handle.  I had my last treatment on October 1st and since then the skin under my breast is read and really sore.  I haI have tried using my aloe and it really burns.  Even the cream that my rads doctor gave me has not helped.  I though that after rads your skin was suppose to feel better not worse.  I called the doctor on Thuresday but she has not returned my call yet.  I will give her a call tomorrow but I was wondering if anyone had any hints.  There are times that I have shooting pains in my breast as well.  It hurts to ware cloths and it hurt not to have them on. Please let me know.  Thanks!       
Carol
DCIS stage 0
Age 47
I have 3 boys, 24,21,&19
Live in Southern Maryland
REMBER ALL THINGS HAPPEN FOR A REASON

June A.
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RE: Krista - Tuesday, October 14, 2008 1:43 PM
Hi everyone!  You all do not realize (or maybe you do) how wonderful it is to have a place to go and find such good answers.  Everytime I have a problem I just go back and read and there is my answer.  Today will be my 4th treatment.  I go late in the day because I work a one woman office and my boss said to start and close the office at 4 so I could get my treatments.  But the problem I am having is no deodorant, but after reading, I have come to the conclusion that I am stopping by the Health store on my way home. 
 
I am glad to hear that others are tired after just a few treatments, because it hit me this afternoon.  I had to get up and walk around the office, to keep awake.  I work 9 hour days with no breaks and then I have a 1 hr drive time each way to work, so I need to keep my energy up. 
 
One of you all said that you sometimes will lose weight because you are not that hungry for awhile.  Well, this will be my silver lining and can't wait for that to happen.... almost.
 
good luck to you all and I will be back because you make me laugh and cry, but I know things will be OK..
 
Love and Prayers, June

Vera
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RE: Krista - Tuesday, October 14, 2008 2:03 PM
Carol please tell me more about the corn starch. I have read a post from Jeanne I think that she mixed the corn starch with the Aquaphor. Do you mix it or just apply it dry? Thanks!
Vera 54yrs - NE Ohio
married to a great guy
dx 5/27/08
IDC Stage II
Er+PR+Her2-
Lumpectomy clear margins 6/20/08
Tumor 2.3cm
2/9 nodes+
4 A/C &12 Taxol Done - Rads -DONE
Putting on the BIG GIRL PANTIES and Combat Boots

CEBsblueeyes
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RE: Krista - Thursday, October 16, 2008 12:31 AM
Vera,
I just put the corn starch on dry.  It helps keep you dry.  I have been using it under my breast so they do not rub so much.  I have put it on after I have put the Aquaphor on by just sprinkle it on.  I also found that Dove has a body wash that is called pro-age that is really great.  It is really thick and feels so good going on.  I got mine at Big Lots but hope it can be bought at Walmart or other places.  Good luck to everyone.   My skin was worse after I got done radiation up to about yesterday.  I finally see a difference for the better.  Thank God. 
Have a great night.
<message edited by CEBsblueeyes on Thursday, October 16, 2008 12:39 AM>
Carol
DCIS stage 0
Age 47
I have 3 boys, 24,21,&19
Live in Southern Maryland
REMBER ALL THINGS HAPPEN FOR A REASON

Vera
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RE: Krista - Thursday, October 16, 2008 9:16 AM
Thanks Carol & I'll check at Big Lots for the Dove to see if mine carries it. I just like to be prepared for when I start rads in January. I'm fair skinned to begin with so no idea how my poor breast will handle this radiation.
 
Thanks again & good luck everyone!
Vera 54yrs - NE Ohio
married to a great guy
dx 5/27/08
IDC Stage II
Er+PR+Her2-
Lumpectomy clear margins 6/20/08
Tumor 2.3cm
2/9 nodes+
4 A/C &12 Taxol Done - Rads -DONE
Putting on the BIG GIRL PANTIES and Combat Boots

June A.
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RE: Krista - Thursday, October 16, 2008 9:56 AM
Just want to say thank you to all of you wonderful ladies for the information and encouragment you give.  Whenever I feel down or can't sleep, you all are there and I can read and read and learn and feel better.
 
Last night was one of those nights and it helps a lot.  Today will be my 6th treatment, and already the tiredness has set in and I am becoming sore and a little red.  Plan to look into that recovery cream tonight.  A neighbor gave me an aloe plant, so if I can keep it alive, it will be wonderful.
 
Hang in there everyone and many, many thanks for your support. It certainly was an inspired idea for this wonderful outlet.
 
Love and Prayers, June

kakz28
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RE: Radiation Tips and Experiences - Thursday, October 16, 2008 7:35 PM
I just finished my radiation (28 + 5) on October 6. I didn't get tired at all. Made my appts. right around lunch, so I could use some of my lunch hour and worked everyday. I only had to drive about 20 minutes one way to the facility, which wasn't bad at all. I think the worst part was having to change clothes. Once I got there I was generally in and out in about 20-30 min.. This place did between 80-100 a day. I was allowed to use regular deodorant, since they weren't doing under my arm and was allowed to put it on in the morning as long it was longer then 3 hours from my treatment time. Then I would put it on after treatment and then before bed at night. Mine also got bright red, but never hurt. Was also told to go without a bra, but when I needed to wear one I would use one of my husbands hankies and folded it twice to make a square and put that in my bra. Especially underneath so it didn't rub. The creme they gave me was biafine (3x daily) and then when I was starting to burn underneath they gave me SSD silver sulfadiazine cream. They were both very good. The SSD started clearing up my underneath burn the next day. On my last day, I also got a diploma and a stuffed white fluffy teddybear with a hankerchief around his next with the facility name on it. Hope all you ladies that are getting done goes as well as mine did.

Gretchen40
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RE: Radiation Tips and Experiences - Friday, October 17, 2008 8:37 AM
I have a question for our radiation "experts." Can anyone give me an idea of how long I can expect to be discolored?
 
I had radiation the week of July 14th and I'm still dark on one side. Louise is white and Thelma is latino? haha.
 
So like I said,it's been 3 months and I'm still discolored. Any thoughts?
DCIS dx 12/20/07
Grade2 ER+100% PR+50% HER2-
BRCA1/BRCA2 neg.
5/23/08 needle loc/lumpectomy rt side
07/08 10 rounds  Rads
12/08 Tamoxifen

carepage:Gretchen1967

kakz28
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RE: Radiation Tips and Experiences - Friday, October 17, 2008 10:04 AM
Hi Gretchen, I finished mine on 10/6. The red went away on the whole area except where my boosts are done after 1 week of not having the whole area done.  Then I started my boosts and today that area is still a little red, but not much.

babynurse
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RE: Radiation Tips and Experiences - Friday, October 17, 2008 11:58 AM
Hi ladies - I am about to start rads on Mon., 10-20.  I was told absolutely NOT to wear a bra at all for the entire time I was getting treatments.  My breasts are not small but I am petite and feel like I need more support than a little cami with a shelf provides.  Did any of you continue to wear a bra at least part of the time?  Also, those of you who had left breast treated, did you experinece any cardiac problems after (possibly showing up from a MUGA scan)?
Thanks for all this great info!
di
Diane
54 years young
Houston, TX
Dx 3-4-08 IDC & DCIS 1.3 cm left breast
Node negative, triple negative
Stage 1, Grade 3
Lumpectomy 3-12-08
Port placed 5-7-08
Chemo finished 10-02-08!
Rads completed 12-9-08!

kakz28
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RE: Radiation Tips and Experiences - Friday, October 17, 2008 12:21 PM
babynurse,
The only time I didn't wear a bra was when I got home from work and whenever I was home on Sat & Sun. Otherwise I wore one. Like I mentioned I put one of my husbands hankies in my bra so it didn't rub especially at the bottom. Mine was also left and I didn't experience any problems that I know of. I just finished mine 2 weeks ago.

Karebear
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RE: Radiation Tips and Experiences - Friday, October 17, 2008 3:43 PM
Di,
 
I'm large busted so I bought a soft sports bra. It's comfortable and gives me the support I need. The only thing they told me was to not wear a underwire bra, so I'm not sure why you can't wear one.
 
Thanks ladies for this thread. I just finished my second week of rads. I'm a little tender today and tired. The fatigue is probably because I've scheduled my rads for early in the morning so that I can work full time. I took 4 months off for chemo so I really didn't want to miss anymore work for rads. I'm just going to be a lot earlier in the evenings.
 
Hugs,
Karen
Karen-Age 44
IDC-Grade 3 Stage 1 (lefty)
dx 2/29/08
Lumpectomy-3/24/08
4/4/08-SBN (neg) & re-excision
4/28/08-3rd Re-excision-Clear margins!!!!
Chemo-5/27/08(TC X2-bad reaction) CMF-(X3)
Rads-Oct. 08' (34)
Tamoxifen-Oct. 08'

CEBsblueeyes
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RE: Radiation Tips and Experiences - Saturday, October 18, 2008 2:26 AM
I wore a bra for most of the time I was going through rads.  Some of the time I would ware a mens wife beater t under my bra.  I got done with rads on October 1st and I have not wore a bra except to go out.  For some reasion my skin was fine durning rads but wanted to give me probles after.  Under my breast has finally started to feel at least a little better.  The doctor told me on Monday that it just takes time for the skin to heal and to keep babying that area.  One of the things I do to keep my bra's from getting messed up from the auqafor is to put a sanatery pad in the bra.  It helps also helps the rubbing.  Good luck!
Hugs
Carol
DCIS stage 0
Age 47
I have 3 boys, 24,21,&19
Live in Southern Maryland
REMBER ALL THINGS HAPPEN FOR A REASON

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