Sounds like we are off to a good start here. THANKS ALL. I would like to comment on a few of the suggestions made here and also post again what all my rad. onc. told me COULD happen.
First of all, from lots of others going through radiation during this past 10 months I have been around these boards, I went and purchased cheap t-shirts as bra substitutes for radiation. I remembered about the dye getting on the clothes and how the gels and creams can soak into the contact clothing. I found the cheap shirts at Big Lots, two to a pack for about $8.00. I can use them for this and throw them away if they won't clean up to suit me. Since I have only "one girl" I just wear big shirts over the t-shirts so no one can tell I am braless. I guess the lopsided still is obvious, but I have learned to live with it (something I thought I would not be able to accomplish).
Twice, my rad. onc. went over the side effects with me. I certainly hope I remember them all right now. First, and at the top of the list was fatigue. He just told me to listen to my body and when it said to nap...to nap. He said weight loss was rather common as often people lose their appetite...ok...good diet plan for me.
He says getting pink, then red, then brown and oozing was possible for me, since he feels it will take that much radiation to benefit me. He said my ribs on the right side (radiated side) will get weak/brittle. He told me to avoid car accidents, as the air bag could break some ribs for up to two years. (Don't think anyone plans this little event). I ASKED him about lung damage. He says NO, but I KNOW it has happened to others here, I have read it, so we will see. Of course, he HAD to tell me that radiation can cause cancer. I am sure the law makes them tell this, as chemo can also do this. I have 10 tattoos, so they will not be drawing on me anymore. They line me up with the tattoo marks, so I won't have to deal with the ink issues that some do.
My first visit for simulation took an hour and one half. He drew all over me and made x-rays with the simulation machine. We then went to the CT scan, where he used wire to outline the radiation area. Before I left he placed glue in 5 spots, drew black X's and then put clear stickers over them. I was instructed to make sure these stayed in place until my next visit, or it would all have to be redone. I was instructed to have my back to the shower water, no soap on them, etc. I had to go back 4 days later to have one redone. My bra was rubbing it and made it loose, so I began wearing my t-shirts. The second visit, was more drawing, more precise this time, and then my lovely tattoo marks. They made actual photographs of the area to be radiated and also pictures of this "mystery rash" I have. This second visit took an hour. My third and final visit before I actually begin the treatments, took about 20 minutes. They actually took me into the radiation room and lined up the machine that will actually radiate me. They took more x-rays. Then the nurse gave me the perscription for the BIAFINE cream that I am to use as a preventative measure for burning. It is to postpone the burn for as far into the future as possible. NO DEODERANTS with aluminum...that is a no no. No rubbing in the shower or with a towel in the radiated area. I will see a nurse and the rad. onc. on Monday after my first treatment. I will then see a nurse and the rad. onc. once a week until I finish.
I really fear this lung issue. I had plurisy (sp?) at age 12. Bronchitis twice a year that eventually lead to pnemonia twice a year, until the pnemonia shot came out...what a life saver for me. I am being radiated on the same side as I had the plurisy. They are radiating up to my neck, I have the tattoo to prove it, so as to get the lymph nodes above my collar bone. My tumor was so high in my breast, the rad. onc. says it needs to be done. Since no lymph nodes were removed under my arm, he is getting that area too, along with the nodes between my breasts and all the way down to where my drains exited my body. Basically, the whole right side rib area and my neck. For those that know me here and have kept up with all my ODD troubles, I think I am about due something EASY and I sure hope radiation is it. HUGS.