Radiation Tips and Experiences

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Tricia Keegan
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Re: Krista - Monday, May 05, 2014 12:32 PM
Cynthia, the skin continues to burn for up to two weeks after you've finished rads so do continue using the cream or pads if its helps but it will get easier.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
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Qryche33
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RE: Radiation Tips and Experiences - Saturday, July 12, 2014 12:46 PM
Is radiation done every day?  Or how many times a week?  I am terribly worried about gas. I don't see on the American Cancer Society's website where to sign up for this.  I will be starting radiation in a few months after my surgery, so this thread has been very helpful!!!

Tracy

Tricia Keegan
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RE: Radiation Tips and Experiences - Saturday, July 12, 2014 3:12 PM
Tracey, radiation is usually done daily about a month after chemo or surgery, I'm sorry but didn't understand your question about gas or signing up for something ???
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
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Leah1907
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RE: Radiation Tips and Experiences - Saturday, July 12, 2014 9:53 PM
Hi Tracy ~ I believe you're referring to gasoline gift cards which the American Cancer Society often gifts to individuals needing help with their expenses.  I was gifted several hundred dollars worth of gas cards from my nurse navigator.  The hospital where I received treatment is 60 miles one way.  Needless to say, driving 120 miles 5 days a week for 6 weeks was becoming very expensive.  The gas cards were a tremendous help!  Talk to your nurse navigator or perhaps the rad techs and they should be able to help you.  If  you go onto the ACS website, you might find a link directing you as well.

Best wishes,
Leah
Leah - Wisconsin
2/8/13 DCIS in left breast, ER+ PR+
3/11/13 skin and nipple sparing mast of left breast with expander
5/9/13 expander replaced with saline implant
5/28/13-7/5/13 radiation 
11/26/13 augmentation of the right, healthy breast with implant
12/2/13 LCIS in right, "healthy" breast
2/5/14 skin and nipple sparing mast of right breast with final implant

slinguser
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Re:Radiation Tips and Experiences - Wednesday, August 06, 2014 3:30 PM
Hi Susan:


You sound much more together than I was!  I was so terrified to begin radiation therapy. 


But I got through it and - so far - have been cancer free.


My surgical wound was on the underside of my breast and I was very worried about perspiration and skin abrasion making the effects of the radiation so much worse.  I tried using the BreastComfort Sling as much of the day and night as I could and amazed my doctors - and myself!  The sling definitely got me through a very difficult period with minimal side effects.  I can't recommend it enough!


Good luck!




Karilou
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Re:Radiation Tips and Experiences - Saturday, August 09, 2014 10:16 AM
I had a lumpectomy with radiation treatments in 2011/2012. It was to be followed with hormone inhibitor therapy for 5 years. After much trial and error I haven't been able to tolerate the Rx of most. My question is this, about the same time as I was going through all this I developed a bumpy rash on the back of both arms, the length of my arms. It remained that way up until this year and now has spread over other body areas. My dermatologist didn't recognize it. It is not dry,scaly or itchy. It doesn't hurt. It looks like contact dermatitis. Is this an after effect of radiation treatment?

Tricia Keegan
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Re:Radiation Tips and Experiences - Saturday, August 09, 2014 2:16 PM
I haven't heard of anyone getting this after rads but you could ask to see your rad onc and he may be able to tell you what it is.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
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RaiderGirl
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RE: Radiation Tips and Experiences - Friday, September 05, 2014 9:18 PM
"psychological response" my as*. Radiation kills cells, dead cells are toxins and toxins causes fatigue. Now add to that the stress of the BC diagnosis and physical assault of surgery and other treatments. My Rad Onc said many patients don't experience fatigue but that I should be prepared for it. If the fatigue is debilitating I should let him know but mostly some rest will be enough.I felt nothing the first week. Now at the end of week two I was tired. Now how can two MD in the same field vary so much in opinion? Frankly its scary.
DX July 26 2014, IDC- StageII-3.2cm, grade 1, no lymph, ER+PR+ HER- Oncotype-DX 12. Lumpectomy 7/2/14 both breasts. Radiation, AI inhibitors therapy.

RaiderGirl
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RE: Radiation Tips and Experiences - Friday, September 05, 2014 9:22 PM
I am having a treatment every day, 5 days a week for 35 treatments. 8 complete so far. My skin is very pale so I feared burns. So far my Brst is barely pink for a few hours afterwards. I use aloe 3 times a day and A&D ointment at night. The last two days I have felt tired but a short nap fixed that. Its going to be ok, you'll see. Good luck.
DX July 26 2014, IDC- StageII-3.2cm, grade 1, no lymph, ER+PR+ HER- Oncotype-DX 12. Lumpectomy 7/2/14 both breasts. Radiation, AI inhibitors therapy.

Penny H
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Re:Radiation Tips and Experiences - Monday, September 29, 2014 4:44 PM
I've completed 19 radiation treatments with 14 to go. I am wondering about the fatigue. I have not really experienced this and would like to know if anyone can tell me something about it and when it should kick in. I'm noticing some redness and I feel some soreness every now and then. But, so far, I feel really good. Thanks! Penny

Tricia Keegan
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Re:Radiation Tips and Experiences - Monday, September 29, 2014 5:00 PM
Penny, if you're still feeling okay its likely you'll be fine and I think most of the fatigue we experience is from chemo rather than the rads so good luck with the rest of your treatments.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
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slinguser
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Re: Krista - Monday, October 06, 2014 11:35 AM
For me, radiation was more frightening in concept than in actual experience, although by the end of treatment I did experience sudden and dramatic fatigue. I am large-breasted and my lumpectomy was on the underside of my breast making me a serious candidate for some very raw and sore areas. I was instructed to put the colorless, odorless gels (they gave me samples) on the top of my breast and cornstarch beneath. Assuming that the gel would have some healing properties and the cornstarch would simply be a drying aid, I ignored their instructions by eliminating the cornstarch and putting the gel over my entire breast. I lay on my back exposing the underside of my breast until the gel was completely absorbed - this only took seconds. Once the area was completely dry I put on a BreastComfort Single sling and wore it as much as I could, especially at night as I slept. My skin became slightly reddened, but I had no burning or rawness whatsoever. Granted, skin types and reactions vary, but I believe the sling played a very important role in protecting my skin. I used it as long as necessary. Since then I have become a believer and I wear their double sling every night. No rashes; no problems; a miracle!

ckr1956
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Re: Krista - Wednesday, January 14, 2015 6:19 PM
Hi, anyone out there? the posts on this forum are so old, I don't know if anyone will see this or not... I will be starting radiation next week. I was diagnosed Nov 11, had bilateral mastectomies with implants on December 10. Was initially told no chemo or radiation but the tumor was larger than expected and so now looking at 5 days a week for 6 weeks. I'm terrified of the skin issues as well as what this means for the implants. I am still pretty tender from the surgery, especially under my breasts. Has anyone gone through similar? How about anyone with long-term results?

Peggy70
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Re: Krista - Sunday, March 22, 2015 4:58 PM
Are there different amounts of rads?   Just curious if i would get a smaller dose for dcis than someone with ibc?

Tricia Keegan
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Re: Krista - Sunday, March 22, 2015 5:24 PM
I'm not sure Peggy but don't think so, I think with dcis you'd only have it directed to one area, as I had invasive with positive nodes I had it in three area's so think that's the difference.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
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Nuzzys Nana
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Re: Krista - Sunday, March 22, 2015 6:41 PM
This response is for ckr1956***********I can only speak for myself, but 10 years ago I was diagnosed and underwent a lumpectomy, chemo and radiation. During and directly after radiation I had no problems i.e. no fatigue, no redness. Nothing! But as time passed, my affected breast became smaller than the the other and the skin looked like it had been badly burned (which it had been). The tissue atrophied and as a result my breasts are very lopsided and the treated one itches a lot.**********I have often wondered what would have happened if I had opted for implants or some sort of surgery to make things more symmetrical. In other words, what would it look like today if one breast (or both) were altered and then the skin shrinkage and tissue atrophy still took place? Would I still have been a lopsided candidate for yet more corrective surgery?**********I would like a response from any one who has experienced any of this. I just wonder if I would have only set myself up for continuous surgery. Thank you.
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

Peggy70
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Re: Krista - Friday, May 15, 2015 9:42 AM
I just finished four weeks of radiation.  I thought my skin was doing good.  Now i am two days out and it is worse than it ever was during the treatments!   I use miaderm, aloe, and aquafor but none seem to be helping that much as it is getting redder by the day.   How long will it continue to get worse and when does it start healing up?  
Peggy
March 1, 2015 DCIS Stage 0 Grade 3
Partial March 11, 2015 right breast
Reexcision March 18, 2015
Radiation four weeks


Tricia Keegan
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Re: Krista - Friday, May 15, 2015 1:10 PM
Hi Peggy,

The skin continues to burn for up to ten days approx after rads are finished so be sure to continue using your creams.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
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LanyE
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Re: Krista - Thursday, July 09, 2015 4:55 PM
Has anyone quit treatment early?  I would like to miss my last two treatments (28total prescribed ) so that I can be with my daughter for the inducement of her first child. She is alone in another state and I really want to be with her.  Will it be really a bad idea?

Tricia Keegan
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Re: Krista - Thursday, July 09, 2015 6:13 PM
Lanye, talk to your rad Onc as he may be able to re arrange the last two treatments or at least advise if its okay to skip them. I think I would too under the circumstances unless your daughters Dr can delay the birth??
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

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