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 Radiation Tips and Experiences
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Cindy D.

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RE: Radiation Tips and Experiences - Monday, February 18, 2008 6:34 PM
I finished rads a few months ago, two tips:
 
1. I had a mastectomy and the aquaphor cream stained my clothes. I cut up some old t-shirts and draped the cloth over my shoulder to cover the radiation area, then would put on my bra with prosthesis. This prevented staining my bra and my shirts.
 
2. a gentleman that I met during radiation was there to radiate his head because of a brain tumor, the skin on his head looked great all during his radiation. He was using a cream called Recovery Cream, and he gave me some, it was awesome, not as heavy as the aquaphor, no staining clothes, it smelled nice and best of all, it worked great, no problems with my skin.  The nurses at the radiation center will now start recommending it to others. You can find it online at
http://www.recoverycream.com/.
 
best of luck to everyone,
cindy d.
Mass. 
56 yrs old
dx 1/10/07
Stage IIIa
ER/PR +,Her2 -
chemo: 4ac/4 taxol  5/24/07
lump: 6/18/07
mast: 7/16/07
tamoxifen: 7/25/07-2/9/09
rads:  10/25/07
clinical trial: avastin and xeloda, 12/07-11/08
arimidex/lupron: 2/09/09-12/28/11
clinical trial: femara 1/1/12 9 months on, 3 months off
Sandefeet

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RE: Radiation Tips and Experiences - Monday, February 18, 2008 8:26 PM
As of today I have completed 26/36 rad treatments.  The last 6 are scheduled to be boosts.  
1 - I felt tired by the third week.  I can have days of feeling wonderful, then other days like a slug that doesn't want to get off the chair. 
2 - My chest has had a rash since end of week 3.  I am a red head with fair skin.  My nipple hurts at times.
3 - I have spent a lot of money on creams, etc.  Started with pure aloe gel at CVS with no alcohol or perfume. 
4 - Now use CVS 1% cortisone for the itch.  Alternate with
 SBS 40, a medicated skin cream.
5 - also use Domeboro soaks for itch
 
One thing not mentioned here so far are the supplements you take.  My rad onc (and I've read many places) not to take antioxidants during your rad treatments.  Dr. Weil and Dr. Link advise no multi vitamins during treatments.  Dr. Link suggests taking them on your off days (the weekend).  My rad onc said okay to take vitamins but I haven't since I am quite a follower of Dr. Weil.  My vitamins have antioxidants. 
 
Good advise by all since we all react differently.  Thanks for all the sharing!
A Test of Courage~

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RE: Radiation Tips and Experiences - Monday, February 18, 2008 8:26 PM
I am nearing my radiation therapy next week and the hardest part about it was finding a parking space!!  It has not been bad at all but that fatigue does zap you all of a sudden for some strange reason.  I was given sample of the Aqufor lotion at radiation and its good.  I am the worlds worst for applying stuff when needed so I am actually not applying anything at all but I am fine with that.  I try to do it at night so I don't feel gulity about not applying something.  They did recommend something called Domeboro Soaks that you can ask your pharmacist for.  It's an over the counter item but they usually have it behind the counter.  It is tablets or packers that dissolve in one pint of water.  You keep the water refrigerated and just soak a wash cloth in the solution and apply to the affected area as needed for ten minutes, three times daily.  I have not used it but they say it is good stuff! 
38 Years Young :)
Biopsy: 9/11/07 Dx: 9/14/07 IDC 1.3cm Mass
Lumpectomy 10/8/07
STG-1 0-Nodes
Chemo: 11/1-12/13/07 4 Rounds
Radiation: 33 rounds
"God makes a promise. Faith believes it.
Hope anticipates it. Patience awaits it."
Susan

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RE: Radiation Tips and Experiences - Tuesday, February 19, 2008 7:54 AM
Update on my first radiation yesterday. I am being treated from three directions, hence the 10 tattoos.  I was also told that every other day the will use a gel pad on my skin since I had a mastectomy. It is to keep the radiation at the skin surface. With no breast, there is no fat to absorb some of the radiation. She told me it would look and feel like jello. Ruthie says it looks like a gel mouse pad. I never saw anyone post about this gel pad before, so I thought I would let everyone know.
I have my perscription Biafine and found the 100% aloe gel yesterday. I am still searching for deo. that is minus aluminum and mineral salts. I have been using a cake deo. for quite awhile with no aluminum, but she told me yesterday, she thinks I should find one without the mineral salts as well. For now, I only use my cake deo. on the untreated side. Glad it is winter!!! Don't want to get smelly. A friend suggested baking soda...may have to resort to that. HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue
Sue W.

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RE: Radiation Tips and Experiences - Tuesday, February 19, 2008 8:41 AM
Lots of great advice here.  I did rads. about a year ago and this time of year is bringing back all the memories of it.  Just a couple of things to add:  I worked 1/2 days during rads. and for about 3 weeks after to help with the fatigue.  If you work and if it's possible, I would suggest cutting back on work.  Having treatments in the afternoon, then having a couple of hours to rest/relax/walk/exercise before supper helped me make it through busy evenings. Also, I always took a bottle of water or juice and a healthy snack to have on the drive home.  Some days my husband would even put a surprise snack in my van for me--always something healthy and something I really liked.  I would think about this snack during rads. and actually looked forward to enjoying whatever it was on the ride home.  It sounds kind of trivial, but it helped me a lot.  Concerning parking---my hospital had 3 or 4 designated parking spaces just for rads. patients.  I thought that was nice, especially when in a hurry or running late.
 Good luck to everyone who is doing this now. Oh one more thing--I found that my back and arm hurt, probably from lying so still in one position every day, even if it was for a short time.  Be aware of this possiblity if you get a backache or arm ache--it took me a while to figure out why my back hurt so much.  I then did Physical Therapy for a while and tried to step up my exercising and walking, but it hurt for a long time afterwards.
Sue W.--now 55
WI
dx 12/21/06 at age 50
DCIS w/ microinvasion, lumpectomy 12/21/06
SNB 1/12/07, 0+/4
ER, PR +, HER2-
26 Rads. 2/26/07-4/03/07
Tamox. 4/13/07-6/28/07
Ooph. 7/25/07
Arimidex started 8/16/07
Judith

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RE: Radiation Tips and Experiences - Tuesday, February 19, 2008 8:52 AM
Hello Susan,
 
I still use the same deodorant I did when getting radiation" Naturally Fresh Deodorant Crystal" Target carries it and also the GNC store's(I think that is the initials). The "Pink"ribbon is on the cover. I see someone noted that Aquafor stained but I never had a problem with it and I went braless(had the perfect tops they were puckered so it hid me well).
 
Judy
JudyHendricks-
Lino Lakes,Mn
Dx:3-25-05@age 58
5-2-05 Lumpectomy DX:invasive ductal carcinoma& extensive dcis
33 rads Arimidex started 7/05 July 2010 stopped
carepage:judyhendricks
Dx Spine- osteopenia 7-06
12-06 started Boniva inj.every 3 months
Cindy D.

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RE: Radiation Tips and Experiences - Tuesday, February 19, 2008 11:58 AM
Hi Susan,
   I also had the gel pad every other day. It's no big deal, at some point in the process the techs come back in and lay it on you, sometimes they need to tape it to you so it doesn't slide down your side... Hope all goes well for you... I can't say enough about the Recovery Cream I mentioned earlier....It's amazing...
best of luck,
cindy d.
Mass. 
56 yrs old
dx 1/10/07
Stage IIIa
ER/PR +,Her2 -
chemo: 4ac/4 taxol  5/24/07
lump: 6/18/07
mast: 7/16/07
tamoxifen: 7/25/07-2/9/09
rads:  10/25/07
clinical trial: avastin and xeloda, 12/07-11/08
arimidex/lupron: 2/09/09-12/28/11
clinical trial: femara 1/1/12 9 months on, 3 months off
Indiana

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RE: Radiation Tips and Experiences - Tuesday, February 19, 2008 1:56 PM
I had my 17th of 33 rads today and one thing that wasn't mentioned about the gel pack is that it is COLD.  Brrr.  Also, I have been faithful with the prescription cream and Aquaphor, but am burning on my back around the armpit.  I didn't think of that area while putting on the creams. 
Vickie
39 yrs old
dx 7-18-07 @ 38 yrs old
8-10-07 rt lumpectomy
nodes 7+ of 33 removed
er+/pr+/her2 -
8-29-07 rt side mastectomy
chemo started 9-25-07
4 A/C 4 Taxol Done 1-2-08!
radiation done 3-12-08
tamoxifen to start soon
JulieS

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RE: Radiation Tips and Experiences - Tuesday, February 19, 2008 2:07 PM
Hi All,
One thing I did remember was that my rad onco wanted me to stretch my arm out daily so it wouldn't get tight from the rads.  I did it daily while in the shower, so I wouldn't forget.  I still feel a little tightness under my arm but think it is getting better.
Good luck to all you rads ladies!
Take care
Julie S
codetwinmom

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RE: Radiation Tips and Experiences - Tuesday, February 19, 2008 3:19 PM
What about tips for good bras?  I am 38C and have worn underwire all my life.  I dont' know what will give me good support and comfort.  Is that possible?  I work in an office and I dont' think sports bras are going to be the answer...help!
Mona
45 years old
Stage 1/Grade 1 IDC
Lumpectomy and sentinel node removal 1/16/08
Clear margins
Start rads 2/20 (36 total, 28/8 boost), done 4/9/08
Tamoxifen and Lupron started 2/14/08
Living with NED
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