Radiation Tips and Experiences

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Kim S
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RE: Radiation Tips and Experiences - Saturday, June 07, 2008 8:47 PM
I will be starting radiation on Monday the 9th of June. Fortunately the cancer center here doesnt do the tats or markers anymore. The markers were used the 1st simulation and I have 1 very small tat to know where the breast mold stops at.
They also gave me a tube of Natural Care Gel. I will try it and let ya all know if it works........I am fair skinned and always burn the first time or 2 out in the sun.
Let the radiation begin...........I put in the air conditioners on Friday!!
I'm always tired anyhow, so I'm not sure if I will be able to tell the differnce when the rad fatigue hits!
mammogram 3/08
dx 3/08 DCIS left breast stage 0
also LCIS in same breast
stereotactic biopsy 4/08
surgery on 4/24/08 clear margins
ER+ PR+
mom..double mastectomy 12/06
turning 50 this year!
Rads starting on 6/9/08 finished 7/31/08
tam

Sue T.
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RE: Radiation Tips and Experiences - Sunday, June 08, 2008 7:40 AM
Bump - for newbies!!
Atlanta GA
Dx 7/23/07 DCIS&IDC
Lumpectomy & SNB 8/13/07-nodes clear
Strongly Triple +++
OncotypeDX 45
4 AC (dense dose)done 11/07/07
Taxol w/Herceptin x 12 weekly done 2/13/08
Rads x35 done 4/10
Herceptin thru 10/29/08
Arimidex started 10/12/08 - 10 years

susan448
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RE: Radiation Tips and Experiences - Sunday, June 08, 2008 8:06 AM
I will be starting rads in a few weeks.
What I'm hearing is I might/will experience some redness, to use a skin cream to fight irritation, and I will get tired. One of my friends took a 1 hour nap every day after lunch, and this got her through just fine.
Am I forgetting anything important?
Am I likely to experience so much fatigue that it will slow down my life significantly?
I want to go Zip-lining with my grandsons in July, and I'd hate to have to bail out because of fatigue. It would also be a way of saying
F*** You to the BC.
<message edited by gentlearts on Sunday, June 08, 2008 8:13 AM>

Kim S
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RE: Radiation Tips and Experiences - Sunday, June 08, 2008 9:39 PM
Just a bump up! I havent even gotten thru them all and I start rads tomorrow!!  lol
mammogram 3/08
dx 3/08 DCIS left breast stage 0
also LCIS in same breast
stereotactic biopsy 4/08
surgery on 4/24/08 clear margins
ER+ PR+
mom..double mastectomy 12/06
turning 50 this year!
Rads starting on 6/9/08 finished 7/31/08
tam

Scarlett59
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  • Joined: 3/10/2008
RE: Radiation Tips and Experiences - Monday, June 09, 2008 1:25 PM
Glad to see this thread back in the thick of things - I first saw it when it was 1/2 the size it is now!
 
I go Friday for the simulation appt - mapping is what my onc calls it.  I had a bi-lateral mastectomy May 5 and am still healing.  Going to PT for my arms to get the range of motion back - much better than it was but I hope I can keep my arm up over my head for the required 1 1/2+ hours without significant pain - we'll see.
 
Had radiation the first time I was diagnosed, so this will be somewhat tricky.  Tolerated the first time relatively well, but I remember the pink and burn and I remember the fatique.  I am almost 12 years older, hoope I can tolerate it as well the second time! 
 
Not sure how many or when I start.  The info in this thread is great.  Looking forward to continued chatter.
S.
50
1st Dx 8/96 RB @ age 37
Lumpectomy, 5 clean nodes RAD 30 rnds
2nd Dx 10/07, RB er & pr +
Pre-surg chemo ended 3/27/08
AC, Taxol, Avastin(clinical trial)
Bi-lat Mast May 08
1/6 lymph nodes +
Rads finished 8/08 - 26 rnds
Reconstruction?

JulieS
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RE: Radiation Tips and Experiences - Thursday, June 12, 2008 1:12 PM
Bump for Stephanie!

Dawntseed
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RE: Radiation Tips and Experiences - Saturday, June 14, 2008 10:04 AM
Gentlearts,
I am on number 20 of 33 treatments and as far as fatigue I haven't had any. I don't feel that rads will slow you down too much. After 20 treatments I have just turned pink and it is starting to feel like a sun burn. I think you will be fine so keep your plans to go with your grandsons, and have the time of your life!!!yippee!
DX 10/04/2007 @ 41 yrs
IDC stage 1 grade 3
Lumpectomy 10/28/07
SNB=neg, Triple neg, BRCA=neg
Chemo 12/13/2007 - 3/26/2008
3 FEC followed by 3 Taxotere
36 Rads- Finished 7/08
My faith in God brought me through, and keeps me going!!!

Karenluhu
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  • Joined: 6/14/2007
RE: Radiation Tips and Experiences - Thursday, June 19, 2008 9:19 PM
Bump again for everyone with rads questions (like me!)
Karen, ("Lumpy McBoobykins"), dx @ 38 yo
3 kids-7, 10, 12
IDC, DCIS, stage 2, grade 3
ER/PR+, HER2-, BRCA neg  
Found lump 5/7/07
left mast, nodes 6/19/07
3+ nodes/21
(ACx4, Tx4), 7/17-10/22/07
Tamox 11/07
Delayed Rads 7/08
Lat Flap w/expanders 2/17/09
Exchange 8/27/09

cs1021
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  • Joined: 12/29/2007
  • Location: Ohio
RE: Radiation Tips and Experiences - Thursday, June 19, 2008 9:22 PM
Thank you bumping this up
dcis&idc-3cm/multifocal/stage 3a/met+/her2-/er+&pr+,dx11/23/07/3surgeries lumpectomy 11/29/partial mastectomy & axillary dissection 12/13/,rt mast on 1-10-08,tac chemo & neulasta 6 tx.,25 rads & 5 boost!
* I refuse to let this cancer defeat me! *

Dawntseed
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RE: Radiation Tips and Experiences - Friday, June 20, 2008 9:50 AM
I start my boosts on Monday. Only 5 more to go!!! I have turnd red and feeling a little burned, but nothing to bad.
 
I am so happy to be this close to DONE
<message edited by Dawntseed on Monday, June 23, 2008 9:00 PM>
DX 10/04/2007 @ 41 yrs
IDC stage 1 grade 3
Lumpectomy 10/28/07
SNB=neg, Triple neg, BRCA=neg
Chemo 12/13/2007 - 3/26/2008
3 FEC followed by 3 Taxotere
36 Rads- Finished 7/08
My faith in God brought me through, and keeps me going!!!

karey
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RE: Radiation Tips and Experiences - Friday, June 20, 2008 9:53 AM
Dana,

I haven't actually started radiation yet but at my consult they told me to just use equal parts of baking soda and cornstarch for deodorant. I know baking soda is great for odor and cornstarch absorbs moisture and reduces chafing. It sounds good to me and it is cheap and safe. I'm going to mix up a batch and try it this weekend. I can always get the commercial stuff if it doesn't work. All I can say is if it works on me, it will work on anyone. I don't perspire...I sweat buckets! It's a good thing I live where there are cold long winters!
Kathy
Diagnosed at age 47
DX: 12/13/07 IDC Stage IIa Grade 3 3.5 cm TN
Lumpectomy 1/30/08 SNB neg
Chemo-2/29/08: 4 A/C 4 Taxol-Done 6/6/08! NED!
33 Rads 7/7/08-8/20/08 Done!
12/10/09 Now Ruptured Brain Aneurysm Survivor!

milesofsmiles
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RE: Radiation Tips and Experiences - Sunday, June 22, 2008 2:42 PM
I have not started radiation treatments yet but will have 30. I go for the mold and CT on June 30. All the information has really helped. I'm sure I'll be checking in on this thread from time to time. Thanks for the good info.


dx01/17/08 port02/01/08 chemo AC Taxol 02/07-05/15/08 surgery 06/06/08 right mast w/node dissection 9+/ 9

cs1021
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RE: Radiation Tips and Experiences - Monday, June 23, 2008 1:35 AM
going though my radiation simulation tomorrow, and I want to bump this to the top so I can read these post hope you ladies dont mine...
Christine
dcis&idc-3cm/multifocal/stage 3a/met+/her2-/er+&pr+,dx11/23/07/3surgeries lumpectomy 11/29/partial mastectomy & axillary dissection 12/13/,rt mast on 1-10-08,tac chemo & neulasta 6 tx.,25 rads & 5 boost!
* I refuse to let this cancer defeat me! *

Dawntseed
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RE: Radiation Tips and Experiences - Thursday, June 26, 2008 6:08 PM
I only have 1 more rad. Then I will be done with treatment. I can hardly wait to sleep in late, and just knowing that I won't have any appointments makes me so happy.
DX 10/04/2007 @ 41 yrs
IDC stage 1 grade 3
Lumpectomy 10/28/07
SNB=neg, Triple neg, BRCA=neg
Chemo 12/13/2007 - 3/26/2008
3 FEC followed by 3 Taxotere
36 Rads- Finished 7/08
My faith in God brought me through, and keeps me going!!!

Nancy 123
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RE: Radiation Tips and Experiences - Thursday, June 26, 2008 8:02 PM
I had the quadrant brachytherapy. I finished 2 weeks ago and have had hardly any skin reaction. I do feel some fatigue at odd times.  I was very fortunate to be able to have this therapy twice a day for 5 days. That was tiring enough I cannot imagine having to go for 33 treatments as it is 100 miles round trip to the hospital.
Nancy 52 years old
dx 3/5/08
idc 1.2cm
grade 2
hr+ her2_
lumpectomy 3/22/08
node negative (I am blessed)
4/22/08 surgery for clean margins
brca 1 and 2 negative
oncotype score 13
quadrant brachytherapy 5 days 2x a day radiat

Leesa
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RE: Radiation Tips and Experiences - Friday, June 27, 2008 3:40 PM
Bump

AUTiger
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RE: Radiation Tips and Experiences - Sunday, June 29, 2008 1:15 PM
I am new to this site & still do not know how to use it properly...
I have surgery coming up & most likely radiation after that.  Had chemo 10 yrs ago, so know nothing about rads.  Are you saying that at first they radiate your entire body?  I thought it was focused on the tumor site.  I must have a lot to learn.  And to whoever started this site....THANK YOU SO MUCH!
 
4/98: Left mast w/trans-flap recon
Node -, ER+, pre-meno
Chemo, tamoxifen
Dx again 6/08, same breast!
Waiting on BRAC test

Guest
RE: Radiation Tips and Experiences - Sunday, June 29, 2008 1:49 PM
I believe they only focus on the tumor site. It was a piece of cake compared to what others have been through. My skin never burned. The hardest part was finding a cotton bra so your breasts can breathe during radiation. Found one at Walmart of all places. They do put you in a machine to align you with everything in the beginning, no big deal.Welcome.

Guest
RE: Radiation Tips and Experiences - Sunday, June 29, 2008 1:50 PM
I meant to ask you. you took the Tamoxifen after your first bout and it still returned?

AUTiger
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RE: Radiation Tips and Experiences - Sunday, June 29, 2008 7:29 PM
I did take tamox. for about 1 1/2 yr, but it made me so miserable with the side effects I stopped taking it.  Dumb, huh?  Of course, 10 yrs ago they did not really know if it helped or not, just hoped it would.  I think now they know more.  Plus now I am menopausal on my own, so it would not matter I dont think.
4/98: Left mast w/trans-flap recon
Node -, ER+, pre-meno
Chemo, tamoxifen
Dx again 6/08, same breast!
Waiting on BRAC test

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