It still amazes me after 3 years the KOMO story on IBC, called the Silent Killer, is still helping women. My daughter and were on that piece you watched.
There are many many women with IBC, and too many to count on www.ibcsupport.org.
That is a site you should join, as the people there are fighters, supporters and advocates all related to just Inflammatory Breast Cancer. Also through that portal you can connect with women in your area and possibly a support group for IBC.
The statistics might say that IBC is 'very rare', but I have seen too many women with this to believe it is that rare.
Visit our website sometime and you will see the giant strides in treatment for IBC.
KOMEN has helped the IBC Clinic in Houston TX with millions of dollars, and you are lucky (if I read you right) that you are in Texas. The first and only dedicated IBC Clinic right on your backdoor step.
Wishing you well,
Patti Bradfield, President
The Inflammatory Breast Cancer Foundation www.eraseibc.com
<message edited by ateepay on Tuesday, June 09, 2009 11:26 AM>