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 Lymphedema
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RP66

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Re:Lymphedema - Tuesday, September 28, 2010 11:59 AM
Thank you B4 for your quick response!  I am going back to the pt next week.  I never knew that tramflap could cause lymphedema and even the dr/surgeon didn't seem to know either.  They said maybe from my hysterectomy??  So in a way, I'm glad that you have heard of this happening to someone else.  I can't imagine having to wear a garment on my leg, that will throw me over the edge.  So, I'm hoping that massage helps keep it under control.
Thanks again for your help~
Rene'~OH
dx 10/06 @ 40 yrs old
stage IIIa/grade3, 7/10nodes+
er/pr+,her2+
a/c/t&herceptin
rbrst mast/hyst 3/07
33rads 6/07 Tried the AI's for 18 months & switched to Tamoxifen~much better for me! 
Bilateral Tram-flap 4/08 Revision-left 7/08 
New surgeon revisions: 5/09-8/09-8/10  
Dec 2010  Finally finished! 
cp:RenePetrovich
sharonma

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Re:Lymphedema - Thursday, September 30, 2010 11:36 AM
Didn't know if I should start a new thread to ask a question.  I am two years out R mast /3 Lns.  So far have had no signs of lymphedema, .I have flown 4 times since my surgery on flights less than 5 hours, still no problems.  I am planning a 8 1/2 hour flight next month and am wondering if a longer flight poses a higher risk?  Should I be getting and wearing a sleeve for prevention, or is it not necessary?  
Thanks for any guidance!
Sharon 
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  
redspark

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Re:Lymphedema - Thursday, September 30, 2010 8:23 PM
Sharon,  The ladies on this forum convinced me to get a sleeve (and my lymphedma center also recommended the gauntlet (glove)).   They and my dr said why risk it?  The key is getting measured for it as wearing the wrong size can be worse than not wearing one.  I was lucky and could use one "off the shelf".  I thought measuring meant "custom"  made but that's not so.   Marianne
Marianne

Diagnosis: IDC Grade 1/3, Estrogen receptor +, progesterone+, Her2 neg  (9/2009) 
-Modified radical right breast mastectomy, kept areola, with  expander; 1 node positive
-A/C (4 Jan-Apr 2010), Taxol (12 Apr -July 23 2010)
- I'm done with chemo!!!!!!
Reconstruction surgery 9/10/2010

B4

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Re:Lymphedema - Tuesday, November 09, 2010 3:50 PM
There's an article about lymphedema after breast cancer in the Washington Post!

http://www.washingtonpost.com/wp-dyn/content/article/2010/11/08/AR2010110803739.html?hpid=sec-health

Every little bit of awareness helps!
B4
DC LFG

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Re:Lymphedema - Thursday, March 17, 2011 3:19 PM
Excellent discussion thread! Keep up the great information on a condition that we don't seem to want to talk about much. Also you are correct more lymphnodes removed means more of a chance for lymphedema.... However, I have seen it in just one removed. So keep them informed.
Laurie
Laurie

NP- Breast Oncology
Doctoral Candidate- U of M- Go Blue
University Prof
Impacted on by beautiful women survivors of Breast Cancer everyday.

"Live Life to the Fullest Everyday! One never knows what Tomorrow will bring! Don't miss a Thing."

TSB

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Re:Lymphedema - Wednesday, April 13, 2011 9:53 AM
Thanks for all of this information.  They think that I may have lymphedema, first they want to rule out a blood clot.  I had surgery last September so this is kind of a suprise.  My major concern right now is if the insurance will cover the therapy and compression sleeve and glove.  Called but they said they would have be get something from the therapist first before they can determine if it will be covered.
WillowMother

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Re:Lymphedema - Thursday, April 14, 2011 6:16 PM
Due to the nature of my job, child care, I was told it would be wise for me to wear a sleeve daily.  So after treatment when I started back,  I was fitted for a sleeve and wore it daily during work for 6 months.  When I went in for a follow-up with my Radiologist last month he noticed that I had dimples on the skin of my arm from the lines of my sweater.  He said you have lymphedema.  I was sent to a lymphedema specialist and it was suggested that I get a type 2 compression sleeve, which has more compression.  I also got a reid sleeve to sleep in.  It is a real drag, but I find when I don't wear my sleeve and use the reid sleeve, my arm shows signs of swelling.  Wearing the glove has helped my hand from looking puffy too.  I have surrendered and just wear them now.  I hope I can make it through the summer.  I have ordered a tattoo looking sleeve and glove from Diva Sleeves~figured I might as well have a little fun with it.  
My insurance (Aetna) covered all of it.  Therapy, sleeves, and Reid sleeve.


<message edited by WillowMother on Thursday, April 14, 2011 6:18 PM>
~Willow 49         
9/3/09 IDC Stage III 6cm. Nodes Positive ER+PR- HERs2 +
24wks Taxol/Herceptin/FEC                 
3/2010 Surgery Lumpectomy & Node dissection          
Rads x33  & Herceptin
11/15/12 Local Recurrence/Unilateral Mastectomy
DCIS & IDC HER2+
12/19/12 Beginning Navelbine & Herceptin      


Her Dotness

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Re:Lymphedema - Sunday, May 08, 2011 12:02 PM
sharonma


Didn't know if I should start a new thread to ask a question.  I am two years out R mast /3 Lns.  So far have had no signs of lymphedema, .I have flown 4 times since my surgery on flights less than 5 hours, still no problems.  I am planning a 8 1/2 hour flight next month and am wondering if a longer flight poses a higher risk?  Should I be getting and wearing a sleeve for prevention, or is it not necessary?  
Thanks for any guidance!
Sharon 

I'm late coming to this thread, so perhaps you'll already know this, Sharon, but the OT who recommended I get a sleeve and gauntlet as a preventative said that every BC patient should be fitted with one if you fly anywhere, certainly if you fly often. She said that it's the changes in air pressure that encourage swelling so even though we've never flown longer than four hours at a time, I should definitely put on a sleeve and gauntlet an hour before takeoff and leave them on for at least an hour after landing no matter how short the flight. No caffeine or alcohol before or during the flight either, she said, as both can encourage fluid buildup. 
 
During any longer flights, she said to get up and walk as I can and flex my feet occasionally each hour as swelling in the lower legs is common once your lymph system has been damaged anywhere else in the body.
 
I already have problems with my left ankle swelling which I've had since having tendonitis badly in that foot years ago, so I'm planning to heed her advice scrupulously.
 
Dot
dx 11/29/10 DCIS/IDC
1/5/11 lumpectomy, SLND 2+, ALND - 
T1c, clean margins!
er +/pr + (My little nasty was an estrogen drunk, said my med onc.) HER2 -
Chemo: TC Done 4/30/11 
Rads:  Done 6/30/11 
Arimidex 7/11-? 
ElaineQW

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Re:Lymphedema - Friday, May 13, 2011 9:29 AM
I came across a video report regarding lymphedema and lifting weights which I hope you will watch.  You all know that I believe that exercise (cardio and weight lifting) is very important to our well-being. 

http://news.yahoo.com/video/health-15749655/25218505


Hug,
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 





cindyanne56

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Re:Lymphedema - Tuesday, June 21, 2011 9:59 PM
Hi Ruthie...my right arm and hand has been swollen for a few weeks..Guess it is because nodes are involved under my arm with cancer, as I have not had any surgery or nodes removed. Could it be from biopsies taken there? It used to feel tight and hurt in my hand but seems to have gone down a little and doesn't hurt any more. I told my oncologist, and he said to elevate it and I need to be fitted with a sleeve....am checking that out tomorrow.
Cindy Ankney Chatsworth,GA
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