what the heck is pneumonitis?????

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Tricia Keegan
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Re:what the heck is pneumonitis????? - Wednesday, January 13, 2010 3:14 PM
Good luck with the rads Lucinda, I was fine and found it a breeze after chemo.  I used natural aloe vera after treatment which I'm sure helped and just went pink and itchy rather than red and sore!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

MJG
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Re:what the heck is pneumonitis????? - Thursday, January 14, 2010 2:41 PM
Does anyone know how far out from radiation can you be and  still get pneumonitis? I am on Nexium for an irritated esophagus and acid reflux and my PCP thinks I may have some damage to the nerves in my esophagus from rads that were over in 04. I did have some unusual problems with rads and a lot of inflammation that lab said was from radiation. 
 
Thanks,
MJG
<message edited by MJG on Thursday, January 14, 2010 2:45 PM>
Dx. in 04 - age 63 IDC/grade 3/stage 1/HR+PR+HER-/16 nodes all neg./lumpectomy/36 rads w-boosts/ Arimidex 5 years/5 other biopsies on same breast all (inflammation and fibrosis from LE and rads- scar tissue) LE of trunk, breast and arm..(under control) 2014 angiosarcoma from radiation treatments. Surgery and scans May 2014...all clear.. watch closely and PRAY!

Tricia Keegan
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Re:what the heck is pneumonitis????? - Thursday, January 21, 2010 3:08 PM
I just saw this MJG, I think pneumonitis can happen any time.

I also take nexium daily and have some damage which they think was from chemo but who knows??

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

LuCinda
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Re:what the heck is pneumonitis????? - Thursday, January 21, 2010 3:23 PM
Tricia,
Hi and Thank You for your never ending support!!
I think I'm going to get some Aloe too.I've read most of these Threads and Aloe seems to help alot.
It's so good to talk to you again.....and hope to talk to you again soon.
I'm tired but I'm going to make it.
Your friend and sister always,
Cindy



Diagnosed-March 30,2009 Stage 2 ER/PR NEG. HER-2 postive
Lumpectomy-May 14,2009
Chemo-2 weeks after surgery
A/C- 4 treatments every 3 weeks-1st treatment June 3,2009
Last Treatment Aug.6,2009=DONE
Taxol + Herceptin weekly for 12 weeks
First treatment Aug.27,2009
Finished Taxol Nov.13,2009
Radiation-36 treatments-Start January 8,2010
Herceptin- every 3 weeks for 9 months

If it wasn't for the rain we wouldn't have rainbows.......

farla
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Re:what the heck is pneumonitis????? - Friday, January 22, 2010 2:44 PM
Hi everyone.
 I am starting rads in a week or so, should I start the nexium again?  Have a lot of people used it for rads, too? It was wonderful during the chemo (for the steroids they gave me).
Farla
Farla
dx 8/09, R double lumpectomy, invasive mixed DCIS/LCIS
ER + PR + Her -
1/3 Sentinel pos. 1/15 nodes pos
 Stage 2A  Grade 2, Nottingham 6
chemo A/C x4, Taxol x 4 started 9/21/09 DONE!!!
femara  started 2/5/10
rads  2/8/10 DONE!!!
Now - osteoporosis?  Vit D, calcium, and a baby aspirin to boot!

Tricia Keegan
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Re:what the heck is pneumonitis????? - Thursday, January 28, 2010 1:00 PM
Hi Farla, no you don't need to take nexium and it won't help you with rads.  MJG and I only continue taking it due to tummy issue's from chemo!    Good luck with the rads, it was a breeze for me and hope it will be for you too.

Hi Lucinda, I don't get on here and the chemo forum as often as I used to, but do try to keep up with everyone.
I remember feeling just as tired during rads, but hang in there...you're definatly on the home stretch!!!  xx
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

corrinne
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Re:what the heck is pneumonitis????? - Sunday, March 16, 2014 3:15 PM
I finished my treatments in Oct 2011. Dble mastectomy, chemo and rads. I thaught I would feel great but then found I have arthritis in every joint which they say has nothing to do with treatment. Over the last 4 months my energy level has deteriated and I have a heavy feeling in my chest with an occasional cough. My oncologist ordered a cat scan to rule out scarring etc but it came back that I have two very small lung nodules and have to go for a pet scan now. The good thing is they are very small but it does mean the pet scan won't be able to be accurate and it will be a wait and watch time. I don't know if the rads increase the possibility of cancer in the lungs. I know if you have it as a child it can cause it as an adult Originally I had two invasive stage three tumours one lobule and the other tubule which had spread to 3 lymph nodes qnd the armpit itself. My cancer was eastrogen + but have been unable to take the meds due to extreme bone pain it caused. It had me down and out on the sofa, not a quality of life.
stage 3 invasive ductal and lobular carcinoma in left breast with insitu lobular in situ 3/9 nodes positive
Bilateral mastectomy 2/7/11 (rad in left right breast was neg for any cancer) Immediate recon with expanders
4 rounds A/C 4 rounds Toxal  6 weeks rads
HER neg  prog neg  eastrogen positive

Tricia Keegan
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Re:what the heck is pneumonitis????? - Sunday, March 16, 2014 6:32 PM
Hi Corrinne,

I think any form of rads increases our chances of a different cancer later in life but hoping these nodules are B9 and please keep us posted. I had a lot of bone pain from the A1 initially too but my Onc suggested a daily supplement of Glucosamine/Chondroitin  which helps a bit, please keep us posted.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Katmauller
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Re:what the heck is pneumonitis????? - Sunday, January 10, 2016 2:30 PM
Hi I am starting chemo January 21st for stage II breast cancer. Cancer was found in my lymp nodes. Radiation is being recommended and I am trying like heck to find an alternate treatment or if i would be making a terrible decision if I were to decide against it. I have concerns with radiation all the damaging effects it has on the tissue, lungs and body.
Any advise?

Nuzzys Nana
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Re:what the heck is pneumonitis????? - Sunday, January 10, 2016 3:48 PM
I only know one person who decided to short change herself regarding treatment. She skipped chemo, had minimal radiation treatment via that new 5 day routine, which has now shown not be as effective as the longer course. She had a local recurrence after three years. At 5 years she was diagnosed with metastasis to her bones. She regrets the course of treatment she chose at her doctor's urging and her own case of extreme denial. Alternative treatments only work for the pitchmen who sell them.
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

ElaineQW
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Re:what the heck is pneumonitis????? - Thursday, January 14, 2016 3:11 PM
Nuzzy!  You always tell it like it is!  Hope all is well with you :)  
Hug
Elaine


 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Nuzzys Nana
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Re:what the heck is pneumonitis????? - Friday, January 15, 2016 1:48 PM
Elaine - I miss you. I turned 80 yesterday and am so glad to be alive. I now have 3 grandsons ages 6 months, 3 years and 14 years old. I am thrilled to still be around to see, hold and know them. My oldest has just be diagnosed with scoliosis/kyphosis and I am hoping that is the extent of the matter. He is in the process of appointments with various specialists.**********Have a Happy New Year.
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

Tricia Keegan
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Re:what the heck is pneumonitis????? - Friday, January 15, 2016 2:48 PM
Wow NN, a very happy belated birthday from me and many congratulations!!!! 


Any chance your fourteen year old grandson can get you on facebook where we all are?? we've just recently set up a private Komen group there too so only the people who are members can view your posts, would love to see you there.:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

ElaineQW
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Re:what the heck is pneumonitis????? - Tuesday, January 19, 2016 12:58 PM
HAPPY BIRTHDAY NN!!!   And here's to many, many more!


Hug
Elaine


 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Nuzzys Nana
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Re:what the heck is pneumonitis????? - Wednesday, January 20, 2016 8:08 PM
I have decided I have at least another 10 years in me. Besides wanting to see my grandsons grow up, there are still many people I have not pissed off yet. Gotta get busy.
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

ElaineQW
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Re:what the heck is pneumonitis????? - Monday, January 25, 2016 12:27 PM
Love you even more after than post!!  Go get'em!!  I hope to have ten more years myself and I hope I'm cranky enough to make it happen :)

If I'm ever in your neck of woods, you'll hear from me!  
Many hugs,
Elaine



 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Nan The Cat
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Re:what the heck is pneumonitis????? - Tuesday, February 23, 2016 9:40 PM
Hi Tricia,

I'm new to the Komen boards.  Newly diagnosed. . . today.  Can you tell me more about the Komen private group on facebook?

Tricia Keegan
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Re:what the heck is pneumonitis????? - Wednesday, February 24, 2016 2:16 PM
Hi Nan,

Love your avatar lol, so sorry about your diagnosis though and I know its a scary time but things will get easier honestly.  I can guarantee you lots of advice, help and support within the facebook group and as it's private only the other members can see what you post. You can either do a search there under Komen breast cancer support group, or look for me and send a friend request and I can then add you, I live in Bettystown Ireland so although there are others the same name you should be able to find me or the group.:)dancingcat
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Nan The Cat
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Re:what the heck is pneumonitis????? - Wednesday, February 24, 2016 8:53 PM
Hey Tricia,

Love love Pete Dancing!  Going to look for you and the board on facebook.  Might have found you.  Can't seem to search you with Bettystown, Ireland.  Sent a friend request and fb message on a chance I hit right. I'll also private message you here with more about me. Thanks so much.  Nan

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