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 Introduce Yourself
Change Page: << < ..121122123124125126127128129130.. > | Showing page 127 of 136, messages 1261 to 1270 of 1351
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Tricia Keegan

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Re:Introduce Yourself - Tuesday, September 15, 2015 4:26 PM
Oh sorry to read this and hope the meds work and help you feel better. I think the synthetic wigs are better as you really don't have the energy for styling a real one during treatments, hang in there, you're doing great and hope you feel better soon!Pals
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
IKeepGoin

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Re:Introduce Yourself - Wednesday, September 16, 2015 8:24 PM

Thanks for your encouraging words, Tricia!  I'm sure in the end I'll look back and laugh.

Best regards,
Joyce
eowynshieldmaiden

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Re:Introduce Yourself - Saturday, September 19, 2015 10:08 PM
Hi...I hope no one minds, but I'm more comfortable hiding behind a nickname. Just call me Eowyn. :)

I was diagnosed with Hodgkin's lymphoma at age 15 (1988), and my treatment included (among a lot of other stuff) mantle field radiation, albeit in reduced doses. Fast forward a few decades...lots of late effects and other chronic and often serious health issues, including systemic lupus. One basal cell carcinoma in my radiation field and two suspicious places on my skin which were benign. My radiation at that age places me in a very high risk category despite little family history of BC.

So I've had mammograms for almost 20 years, regularly once I got into my 30s and they began sorting out that I needed it annually already. They wanted a breast MRI once I got into an awesome survivorship program (OMG, finally, the help I'd needed to find!)...but first time, the machine shut down 15-20 mins before the end and they couldn't get it to work again. :P 2nd place: back (spinal curvature) kept hitting the machine, couldn't get the scan, wedged in - they hurt me so much physically and emotionally I was on muscle relaxers and pain meds for weeks after, and sobbed uncontrollably for a good 30-45 mins right after. I wasn't that much of a mess after my non-sedated bone marrow biopsy in 1988. :P Third attempt went much better, but still couldn't get it. Back curvature again. :P There's one more place (out of town for me, like #3) we can try - sometimes they can fit people who have probs with #3's machine. Only #3 and #4 really seem to know what they're doing, and I've liked them. So...no bMRI yet, but I'm game for one last attempt.

What happened to bring me here is this: I was referred by my amazing and wonderful and compassionate survivor NP to a high-risk breast center, where I met another awesome NP, and where they went ahead and did my mammogram almost two months early. Last fall when I'd had it, I'd had to have a diagnostic mammo on my L breast b/c of suspicious microcalcifications. They were satisfied then it could be followed up in 6 months. Did that this past May. The radiologist said it was OK and I could return to my usual screening mammo schedule, no more mag views for now. Well...my two NPs weren't 100% satisifed; they ordered some mag views again. Guess what? Suspicious increase in microcalcifications in the L breast, clustering of them...BI-RADS 4. So I'm having a stereotactic biopsy on 9/23. 

There are a lot of complicating factors if this is BC, including my lupus, my prior cancer treatment (surgery, chemo, and radiation), t2 diabetes...but I'm just doing my homework/research (I'm a former medical librarian specializing in clinical and patient information and resources) and getting prepared to ask whatever questions I need. I welcome any advice. :)

About my nickname...you might be able to find me in some ped-onc and LTS type circles as Frodo. I've always felt like Frodo, like cancer made it so coming home wasn't, so to speaek, really coming home. I wasn't the same afterward. And while I'll always be Frodo...I thought the potential of a new battle deserved a new nickname. I'm more annoyed and irritated than anything else right now - it's like - if cancer is STUPID enough to mess with me a THIRD time, then it had better be prepared to drag its sorry behind out of here, b/c I am ready to FIGHT. So...Eowyn it is. :) Those who have read and/or viewed The Lord of the Rings films, esp The Return of the King, will know why I felt that character name fits a lady warrior well. :)

So - that's my story. :) Thank you all for letting people like me have a place to come to talk about these things. :)

-EowynShieldmaiden
Hodgkin's 1988-89 (staging lapararotomy, stage II-A w/bulky mediastinal involvement, 6 cycles ABVD chemeo, mantle XRT)
Basal cell carcinoma (2013 I think)
BC undiagnosed, stereotactic biopsy slated for 9/23, hoping for a benign report, but if it's there I want to KNOW NOW, not later!
Rena

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Re:Introduce Yourself - Sunday, September 20, 2015 10:19 AM
Hello Eowyn, and welcome! After what you've been through, you can have any nickname you want! All I can say is that I hope your biopsy comes back negative. It's terrible that the cure can make you sick, but with chemotherapy and radiation, so many people end up with chronic problems that have nothing to do with cancer directly. You are an informed patient, and it sounds as though you have no problem being your own advocate. I'm glad that you found two NPs who are so good and so caring and who are looking out for you. I wish you the best, and please let us know how the biopsy goes. I will think good thoughts for you. 
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!
Tricia Keegan

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Re:Introduce Yourself - Sunday, September 20, 2015 2:21 PM
Hi Eowyn and welcome,

I can only echo Rena's words, you've been through so much already that you're obviously a strong person who likes to be educated on this disease and I'm so pleased you've done so well at doing that in the past.  I'll be keeping everything crossed for you and hoping for a B9 result, please keep us posted and good luck!Pals
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Notes88

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Re:Introduce Yourself - Sunday, September 20, 2015 3:25 PM
Hello, everyone, my name is Kathy and I had a lumpectomy for invasive DCIS 2 weeks ago. My oncology team recommended sending my pathology report on for 'genomic' testing to see if I am low or high risk for a recurrence or another cancer so we are in waiting mode until results come in. If I am high risk, they'll most likely recommend chemotherapy, along with radiation and possibly hormone therapy. If low risk,  maybe radiation and some kind of anti estrogen therapy.  My Dr. had originally said after surgery, we would likely do radiation, but now that chemo is a possibility, I am pretty down about it all.  It was such a small tumor (.4 cm) that it seems like a lot. I know that it's probably best to get the testing done, but doing all three seems to be overwhelming for me. I know many of you have gone through a lot more, I'm just worried about it all. 

Dx: I DCIS (7/2015) 
ER positive;  PR positive
Family History: sister died @44 from metastatic breast cancer



Tricia Keegan

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Re:Introduce Yourself - Sunday, September 20, 2015 4:40 PM
Hi Kathy, check out the chemo for tips or feel free to pm me:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
eowynshieldmaiden

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Re:Introduce Yourself - Sunday, September 20, 2015 11:11 PM

Thanks so much, Rena! :) Wow - look at what you've survived, too! Seeing your reply tonight has inspired me so much. :) I do try to act as my own advocate, being as assertive as I can about what I need in terms of answers, help to make a procedure easier, etc....I got to talk to the senior tech about some concerns I have regarding my biopsy, as I have neck and back issues, and she was so pleased to hear I've been practicing that position so I can stay as still as possible for as long as they need me to. It's getting easier. I know it's easier lying on a bed than having a biopsy, but - at first I felt I couldn't breathe on my stomach, so I had to train myself to relax, and now I do that automatically instead of freaking out. I'm really glad that my NPs have my back all the way. :) They're so awesome! :) And thank you for those good thoughts. :) I will most certainly let y'all know how my path report turns out! Hoping for B9, but braced for anything!


Gratefully, 
Eowyn :)

eowynshieldmaiden

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Re:Introduce Yourself - Sunday, September 20, 2015 11:19 PM
Hi, Tricia!


Thank you so much for the warm welcome! I found that educating myself about the realities, harsh though they were, of Hodgkin's helped me both get through my treatment and make peace afterward with realizing the risks I'd accepted in accepting those treatments. I don't regret having them - I wouldn't be here TO get another cancer if I hadn't gone through that, most likely - but I do wish they hadn't carried such risks. But this time I know more what to ask up front, and I feel like that can be my way to exert a little control in a situation which can make one feel helpless. I refuse to be helpless...maybe i can't help what's happening to me, or whatever's going on inside that troublesome left side (why is it always left?!?! broke my left arm, my left foot, original lymph node that triggered the investigation revealing Hodgkin's was on my left side, the mediastinal mass was larger on the left side - which might explain this, b/c that side would have gotten a larger hit of radiation...)...but I sure as the world don't intend to take this lying down. If the report isn't good, I can cry, I can rant - but I know that I have to make sure I also get down to business and get the ball rolling. As I told my husband, yes, it would be a loss, but I don't write books with my boobs (I'm a writer :) ). It's a loss that would hurt, if it comes to that, but better to lose "the girls" than my life. 


B9! I LOVE that! Hoping for it - and will keep y'all posted! :D Thanks so much. :) When I came on and saw the messages from you and from Rena tonight, after a long day on the road, it just perked me right up. :)


Thanks,
Eowyn :)

Rena

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Re:Introduce Yourself - Monday, September 21, 2015 10:16 AM
Eowyn, I love your attitude! I smiled when you said you're a writer. You can write whatever script you want for your life. I'm an editor, so I come at it from a different angle--I take what I don't like and edit it. I'm a long way from editing out all the things I don't want in my life, but every little step helps. I'm glad your husband is there to support you through this. Like Tricia, I've got fingers and toes crossed for the best outcome!

Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!
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