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 Introduce Yourself
Change Page: << < ..121122123124125126127128129130.. > | Showing page 128 of 136, messages 1271 to 1280 of 1351
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Rena

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Re:Introduce Yourself - Monday, September 21, 2015 10:22 AM
Hi Kathy. I know how hard the waiting is. I hope your results come in soon and that you get good news. No matter what the results, though, you'll get through this. I don't think any of us knew before cancer just how tough and resilient we are. I know that the thought of three types of treatment is daunting. Everyone here probably felt the same way right after diagnosis, and the not knowing is one of the hardest parts of all of this. Please let us know what you find out. 
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!
eowynshieldmaiden

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Re:Introduce Yourself - Wednesday, September 23, 2015 7:28 PM
Because I promised some truly wonderful people here I'd keep updating, here's the hit-the-highlights version of how my stereotactic biopsy went!


*We got to the clinic in plenty of time. :)


*A very nice gentleman wheeled me down, and my brother-in-law wheeled me the rest of the time.


*The whole team working on me could not have been nicer (despite a "rather have Hodgkin's than Crohn's" comment from my fellow...but hey, what does she know? She's in training. ;) ). :) The senior tech was a total angel, attending and fellow were awesome, all ladies, all super encouraging. The tech even stood there and rubbed my back while they were doing the numbing injections, which barely hurt at all, and they kept really encouraging me. Had a tiny amount of mild discomfort, but I've had accidents at home which hurt worse than this. Very nice, very sensitive, got me into a mostly-comfy position, went GREAT. :)


*Now the dread of the biopsy is over. :) Whatever happens, now I just have to wait for answers. And those will come within a week or less. And then I'll *know* whether it's cancer or not. And knowing means that whatever it is, I can do something appropriate! And if it's not cancer, I won't be so nervous if I ever have to have another biopsy. The team was awesome.


*And now I'm sitting here drinking V8 and ice water, watching DVDs, and occasionally icing my L breast as per discharge instructions. :)


So - those are my good things for today. :) Hoping to hear results Fri, but I realize it could be as late as Wed next week.


Thanks for caring,
Eowyn :)
Tricia Keegan

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Re:Introduce Yourself - Thursday, September 24, 2015 4:21 AM
Thanks for the update Eowyn and I replied on the daily joy thread and will be keeping everything crossed for you.:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
eowynshieldmaiden

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Re:Introduce Yourself - Thursday, September 24, 2015 8:44 PM
Hey again, everyone -

I just got my biopsy results back. My biopsy went a lot better than I was afraid it would. The team was really fantastic. :) My results were not 100% what I'd hoped, but they could have been much worse. It appears to be DCIS, stage 0, though the bMRI might tell us more - there's a possibility it could be present and invasive in another area which didn't show up on the mammogram. However, my NP seemed optimistic that we've caught it early. Strongly fed by ER/PR, Her-2 positive but unless it's invasive elsewhere we wouldn't do chemo or Herceptin. We're evaluating both lumpectomy w/radiation or bilateral mastectomy, possibly w/reconstruction, though I'm leaning toward the latter b/c I have some complicating factors which might limit their ability to radiate successfully - prior mantle radiation for Hodgkin's, prior Adriamycin in ABVD chemo, systemic lupus - b/c patients in my situation sometimes don't have good results with radiation. Plus we'd have to make sure they could handle it back here b/c it's too far to go to my diagnosis center every day for weeks. 

Any advice, support, etc. anyone has would be greatly appreciated. I'm doing all right so far, but I know from my past cancer experiences that that can be quite changeable from hour to hour and day to day. 

Appreciatively,
Eowyn
eowynshieldmaiden

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Re:Introduce Yourself - Thursday, September 24, 2015 8:46 PM
Oh, and they're going to do the sentinel node biopsy deal as part of whichever surgery I have. I remember when I was a fresh out of school med librarian and that procedure was brand new! So great it's established now. :)

-Eowyn :)
Tricia Keegan

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Re:Introduce Yourself - Friday, September 25, 2015 6:00 AM
Hi Eowyn,

Well if you're going to have breastcancer there's no better one to have than dcis!:)  I'm really pleased you've caught it early, if you're undecided on treatment options you could always get a second opinion.  I also was her2+ but did chemo herceptin etc, in many cases Herceptin is given anyway regardless of stage etc so if I'd any advice to give it would be to be certain you don't want to push for this as her2+ is/was a very aggressive type before Herceptin.  There's a support site where you could learn more and perhaps talk to others who were stage 0 and may have had herceptin at www.her2support.org 
Thanks for the update and although you have to deal with this and make lots of treatment decisions I'm really pleased it wasn't worse.  Pals
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
makadiff6

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Re:Introduce Yourself - Friday, September 25, 2015 10:08 AM
Hi, my name is JoAnne Garza and I just found out that my biopsy showed cancerous cells. My surgeon called me yesterday with the news. A few weeks ago I felt a thickening on my right breast and walked in for a mammogram. I mentioned to the tech. about what I felt. Next morning a get a call to expect a call from Kaiser BP for an appointment to go in for a sonogram. Which I did in the next few days. I was given a paper after my test stating that in was Normal/Benign. I was elated and went on my way to spread the good news to my husband and family. Still something told me if not cancer then what was this I felt? I made an appointment with my primary doctor to ask her what else it could be. She then sent a referral to surgeon. It was at this appointment that he suggested a biopsy be done, I agreed and he did it right away. Yesterday morning he called and said yes it showed cancerous cells. and that this Monday the department was going to meet to go over new cases and he would discuss mine with the other specialists. I am to expect a call sometime after mon. as to what will happen next. One of my biggest concerns is my carrier does anyone else have any experience with Kaiser? We are in the open enrollment period and I could change right now for the new year. Also I am extremely claustrophobic and he did mention a special MRI of the breast but I am a big woman and don't think I can tolerate that tube. I had one before and totally panicked. Please does anyone have any advice?  
Tricia Keegan

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Re:Introduce Yourself - Friday, September 25, 2015 2:21 PM
Hi,

I'm sorry for your diagnosis but it sounds like you've caught it very early indeed which is good news.  I can't help much on the insurance but you may find something in this link to help you https://apps.komen.org/Forums/tt.aspx?forumid=68

I also am claustrophobic and can well understand your fear, I've only ever had one but managed it because they gave me something to help calm me beforehand and I closed my eyes before I went in and didn't open them again until I was out.  I think you should explain your fear to the surgeon, perhaps an Ultrasound or CT may do instead..  I hope you'll keep us posted and let us know how you get on.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
eowynshieldmaiden

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Re:Introduce Yourself - Friday, September 25, 2015 11:02 PM
Thanks so much! I'm looking into it - my breast NP was out today, but I've got a Herceptin question in for when she gets back Monday. Her staff have assured me they'll make sure she gets it first thing. :) It could be a concern that I've had prior treatment for my Hodgkin's which including an anthracycline and mantle radiation, so I'm not sure whether they're mainly concerned about my heart and lungs. But I've got an e-mail in with ALL of my specialists there, checking what the concerns are for cardiology, late effects issues, lupus, you name it. And perhaps I misunderstood my NP, b/c it sounded like she was saying all DCIS is considered HER-2 positive...I just don't understand how that could be, b/c I know DCIS progresses to IDC, and not all IDC is HER-2 positive. So...maybe she can clarify. I wrote stuff down, but I wasn't 100% processing perfectly and thinking of every question beyond what I had written down....

I don't know how much I'll be on this weekend - I'm going to try and take a day or two "off" from cancer for my mental health. We're getting the ball rolling on scheduling first my final attempt at the bMRI, and then the surg onc, reconstructive surgeon, and rad onc, hopefully all in one trip, and I might try to fit a couple of my other drs or so in there too, save some travel later in the month. But I did just watch a lovely movie that helped shed some light on HER-2, and it's called "Living Proof" - stars Harry Connick, Jr. It was available at a nearby public library (large one), and I highly recommend it. Somewhat emotional - I did do some crying - but it was a great film. :) 

And I'm going to see whether my insurance will cover a visit with the integrative health RD, b/c the two they have did a wonderful food and cooking class at my cancer center a couple years back. My husband and I got to attend, and we were very impressed. They're all about anticancer and anti-inflammatory foods, but they're complementary - they work with your conventional treatment, not against it. It's not about juicing and going vegan in lieu of surgery or radiation or whatever. It's about supporting the efforts of your conventional medical care to help reduce the risk of recurrence. I see an integrative health NP, and I really love her. She's improved my quality of life a good bit; my survivor NP connected me with her, and I'm very grateful.

Oh, and I was able to get some good recs for drs from a post-surg nurse at my place. She was so helpful. She takes care of post-mastectomy pts every night (she's night shift). :) I happen to know one of the drs she mentioned had the same kind of cancer I did. I met him years ago and hoped he could do my surgery if, God forbid, I ever needed it. Here's hoping it works out now.

Biopsy site's looking pretty good. It bled yesterday, but I forgot and pulled my arm up a bit. :P Today I've remembered better, and I got a shower without pounding it (yay shower sprayer). 

Cheers,
Eowyn :)
Tricia Keegan

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Re:Introduce Yourself - Saturday, September 26, 2015 2:05 PM
It can be good to take a break from this Eowyn so can well understand that, not all dcis is her2+ as you say, just enjoy the weekend as best you can and post as and when you need to  and we'll be thinking of you.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
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