Introduce Yourself

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Tina29xx
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Re:Introduce Yourself - Sunday, June 27, 2010 7:33 PM
Hello My name is Tina Im 37 years old and have been dealing with breast cancer since 2006 this past jan I had a total mastocmy and in april I had my reconstruction done.......
I am thankful its done now and I don't have to go back until august but I have noticed alot of changes in my feelings towards people and life in general////////At times I cry alot and want to be alone and watching the hurt my 2 daughters went threw while we were going threw it all tears me up and now one is acting out making me feel even worse then I already do......I can't believe how much changes when you go threw it all.......Any advise out there on how I'm feeling?????and is this normal??

Rena
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Re:Introduce Yourself - Sunday, June 27, 2010 7:59 PM
Hi Tina. Yes, your feelings are completely normal. Goodness, think about what you've been through. Anger, fear, sadness--these are emotions we all feel in this situation. I encourage you to seek some counseling to help you find ways to express the feelings and deal with them. My first three years were the hardest, and counseling helped me tremendously. Most oncologists' offices will have resources to help you find a good therapist. You don't say how old your daughters are, but if they're old enough, family counseling could be a good idea, too. Sometimes just having a trained counselor present can help parents and children find a better way to communicate about all the feelings that have come up.  I'm sending a hug and all my best wishes. It gets easier with time, but I think it's important to get help early on. By the way, I was diagnosed at 37 also, and I'm now going on 61. I was very afraid and angry at first, but here I am all these years later, cancer-free and living life. Be kind to yourself and just know that this will pass. All my best, Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

PDoodles
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Re:Introduce Yourself - Sunday, June 27, 2010 11:12 PM
   Hello Everybody~~~My name is Dawn and my world was turned upside down 2 weeks ago when my mother(80) was diagnosed with breast cancer.We are in the very early stages of this so called adventure.There are numerous questions that I have and this site seems to be one of the best places to be.One of the 1st questions I have is that among some of the health issues that my Mom has is that she has a problem with her kidneys.The other day when they went to do one of the scans to find out if whether or not the cancer has spread beyond her right breast and the lymph nodes in the underarm on the right side,the tech had said that he couldn't do the one scan because the radiation might harm the kidneys~~does anybody on here know anything about this??????Is there any other options that we may have if this is the case????We are prepared to do anything and everything to fight this dreadful monster....As you can tell we are very,very early in all of this and I'm trying to read as much as I can in a short amount of time and finding out all sorts of info.Any help that anybody could give would be much appreciated.Thanks!!!!!!!!!!!

Rena
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Re:Introduce Yourself - Monday, June 28, 2010 10:18 AM
Hi PDoodles. I'm sorry about your mom's diagnosis. I don't really know about the scans--which ones expose us to more or less radiation. I know that an ultrasound can be done safely, and I've had an ultrasound of my liver. I think you'll need to talk to her doctor to find out what can be done to rule out any spread of the cancer if the usual scan can't be done. Have you been able to go to her appts. with her? It's hard for the patient to take everything in because so much info gets thrown at us so quickly. If you can be there as a second set of ears and to ask questions that she may not think to ask, that will help a lot. My best to you both. Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Tina29xx
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Re:Introduce Yourself - Monday, June 28, 2010 3:19 PM
Rena My daughters are 15 and 14 I have also called my oncologist and asked him to set me up and appt to talk to someone.........Since 2006 I had my first lumpsectomy then in 2007 I had another and in 2009 it came back again and did another lumpsectomy then dec 09 i was tested and they told me I am postive in the BRCA1 and I also had another lump come back and thats when we decide to hit it head on and went with the total mastomy........Its been hard and the mood swings are crazy at times.........Hopefully I'll end up like you and a 23 year survior............

PDoodles
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Re:Introduce Yourself - Monday, June 28, 2010 4:37 PM
  Hello Rena~~~~~I just wanted to thank you so much for the great advice.I found it to be very helpful.We've only met with the surgeon once(we are still waiting to hear the results of the scans that were done,once the results get back,we are suppose to hear back from the surgeon).We have yet to meet with the oncologist.Should we be making an appointment with the oncologist now and see what he/she says or wait till we know what the surgeon has to say and wants to do?????Like I said in my opening post last night,this is all very new to us and we aren't sure of a number of things.I will indeed be going to every Dr.'s appointment with my Mom to be a second set of ears.You have given me a great sense of hope with knowing that you are a 23 year survivor.Thank you...............

PDoodles
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Re:Introduce Yourself - Monday, June 28, 2010 11:43 PM
 Hello Everyone~~~~My name is Dawn(I see that we have another Dawn on here as well).Just about 2 weeks ago,the world around me was turned completely upside down.My mom(age 80)was diagnosed with breast cancer in her right breast,the cancer has spread to her lymph nodes in her underarm on the right side.We are just beginning the diagnoses stage of the game.We've met with the surgeon once and are awaiting results from the scans to see if the cancer has spread any further then the lymph nodes.There are so many questions that I have and I'm finding this site very,very helpful.The one thing that I have learned from this site,is that I will be going to every Dr.appointment with my Mom so that I can be a set of "second ears",to make sure that we get every ounce of information and instructions that the Dr. gives us.The 1 question I have is that should we be making an appointment with a oncologist now or wait until we see the surgeon again(which should be sometime in the next few days when we get the scan results back)and see what he wants to do?The Dr. did mention the following~~~surgery first and then radiation or just go straight to the radiation or whatever else kind of therapy Mom will get.Mom has already decided that if she does need surgery,she will go with the mastectomy of the right breast.Ok,I guess this is enough for now.But I know that I will be posting again many times.Take care everybody

Tricia Keegan
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Re:Introduce Yourself - Tuesday, June 29, 2010 4:44 PM
Hi Dawn and welcome,

The usual way it works is that once you have surgery you get a path report and on the basis of that, if needed, you'll be referred to an onc or rad onc!   If caught very early it's possible no more treatment is needed is your Mom is not showing positve for hormones.
If you go to the welcome thread above this, you'll see lots of explanations of reading your path report and what it all means.

You're not alone, there are ladies going through every part of treatment here and many who have finished that can help you:)

Also a good reputable site for understanding this is www.breastcancer.org

Please check the other forums and ask any questions you may have:)

My best to you and your Mom through this. x
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

PDoodles
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Re:Introduce Yourself - Tuesday, June 29, 2010 9:19 PM
          Hello Tricia~~~~~Thank you so much for your advice.I really do appreciate it so very much.I will be sure to check out the website that you had mentioned.We did get the news today that the results from the scans that my Mom had done last Friday showed that the cancer has not spread beyond the lymph nodes in the right underarm(there was a scare that the cancer may have spreaded beyond the lymph nodes since it had gone beyond the right breast).We feel somewhat relieved now that we know the scan results and know what the next step is(the waiting and not knowing can be so very hard).My Mom will be going in for her mastectomy next week,if given the choice my Mom would have gone in this week to have the surgery,she wants to have it asap,but my Mom takes coumadin and needs to be off of that for at least 5 days before the surgery so that is why we have to wait until next week.I've only been on this site for a short time,but already I feel more at ease when I see how much support everybody gives everybody else.I feel quite confident that whatever questions I may have,somebody on here will be able to answer them.Thanks so much.Take care~~~~~~~

Tricia Keegan
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Re:Introduce Yourself - Wednesday, June 30, 2010 4:57 AM
Hope your Mom has a sucessful surgery and quick recovery Dawn, wonderful news on the clear scan too:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

PDoodles
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Re:Introduce Yourself - Saturday, July 03, 2010 1:09 AM
We found out yesterday that my Mom will be going in for surgery(Mastectomy) next Friday.As of right now,she'll be in the hospital for about 1 or 2 days after the surgery.Then she's to come home with the drains for 2 weeks with a nurse coming to the house every day to check out everything.Anybody got any info on the drains and what we can expect when my Mom comes home from the hospital?????Thank you in advance,we all really appreciate it

heelio
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Re:Introduce Yourself - Monday, July 05, 2010 11:45 AM
Hi. My name is Mike. I live in the US. I have a friend who lives in the Philippines, and her mom was recently diagnosed with breast cancer, and she had it removed and has started on chemo. I am engaged to the daughter and I willingly helped pay for the operation and the first round of chemo. I am not rich however, and it seems a good bit more chemo is to be required. The family is pretty much broke and I was starting to look around for any charitable organizations that might be willing to help them out in the near term. It looks like the remaining chemo will run them close to $7000, plus there may be more followups. And the mom can't work while this is going on so there's lost income there also. Does anyone here know of any good source of some help for this family? Thanks for any assistance.

JulieS
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Re:Introduce Yourself - Monday, July 05, 2010 12:15 PM
Poodles,
Here is a link to the surgery part of this forum

http://apps.komen.org/forums/tt.aspx?forumid=43

There are several threads talking about before surgery and after surgery and what to expect.  I hope this helps...let us know how your mom is doing....we are always here for you and for her.

Hope and Strength,
Julie S


Bothell, WA
dx 5/07 IDC
lumpectomy 6/14/07 1.5cm
er/pr + Nodes negative
finished rads 9/13
Tamoxfen 9/07- 8/09
Arimidex 8/09-

Tricia Keegan
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Re:Introduce Yourself - Monday, July 05, 2010 3:53 PM
Hi Mike - this may be of help to you http://www.icanserve.net/financial.php

I saw another site and will post when I check it out!

http://tpmovers.wordpress.com/about-bcsmi/    if you google financial help for breastcancer in the phillipine's you'll get lots more that may help.

Good luck to you all!
<message edited by Tricia Keegan on Monday, July 05, 2010 3:57 PM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

PDoodles
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Re:Introduce Yourself - Tuesday, July 06, 2010 1:02 AM
   Thank you so very much for the link info below Julie,we really appreciate it.I will be sure to check it out,I'm sure that I will be able to find all of the answers to our questions.Like I said in another post tonight,this site is awesome!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Poodles,
Here is a link to the surgery part of this forum

http://apps.komen.org/forums/tt.aspx?forumid=43

There are several threads talking about before surgery and after surgery and what to expect.  I hope this helps...let us know how your mom is doing....we are always here for you and for her.

Hope and Strength,
Julie S



thinkpink
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Re:Introduce Yourself - Tuesday, July 06, 2010 10:04 AM
Sorry PDoodles to hear about your Mom.    Recently I have been going through all this and obtained info from this site (below) and friends that helped me and my family & might help you....

Also, I had a nurse come too - and they very helpful - to show you how to take care of the drains....

Hugs to you and your Mom....

Let us know how she is doing....

ThinkPink

Suggestions:

Ride home: Button down top, slip on pants (easy clothes), pillow to put where seat belt will rest.

Surgeon may suggest home health care - or make sure she inquires - this is extremely helpful to make
sure drains are done right, bandages... vital signs.

2 Camisoles with drain pouches (these you can purchase online) or at a store - if she has trouble locating one -
there is one in Newport News called Silhouette - 12715-V Warwick Blvd.

Soft ice packs - several to rotate  (check with doctor first) may recommend warm..

Place simple items in the kitchen on the counter to reach easily -  like dishes, etc.

Medicine - If child proof caps & keep on hand where she will be resting

Bathroom - We set up a hand held shower hose - worked great!  Also, kept all products within a easy reach!

Comfortable Chair  or Recliner - the most comfortable chair for her, and set up simple items by it - phone, thank you notes...
magazines...Pillow / Blanket...

For the bed - a wedge pillow or large floor pillow for under the pillow - to help when sleeping.

Not sure how your appetite will be - but for me soup was it!  Until anesthesia wore off, etc.

We arranged it so someone was with me for each day - at least the 1st couple of weeks.  This was very helpful!
And scheduled a hair appointment - 3rd week or so... great booster!!!  4th week toes!

Info:
Susan G. Komen site is a great place to go for information!!! & when you're ready to message board with others... great support.

Someone sent this to me asking me to pass it on to anyone who is interested.

http://www.cleaningforareason.org 





ThinkPink - Mammo /Ultrasound- 6/29/09 Core Biopsy - 6/30/09 a-hyperplasia DCIS/LCIS Lumpectomies Left Side 9/9/09, 10/7/09, 11/11/09 (sentinel lymph node biopsy & auxillary lymph node dissection)Bilateral mast & Beg. Reconstruction (TE's) 1/26/10 Exchange Surgery (gummyimplants)-6/22/10 Diagnosed surgery - skin cancer 8/16, 1/18, 4/6 surgery 5/16,5/23 Clear Margins Yeah! BRAC/Neg, Gummy Implants FDA Approved![/colo

karak
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Re:Introduce Yourself - Monday, July 12, 2010 8:16 PM
Hey,
     I'm kara.  Finished treatment.  Diagnosed with Stage 3 Level 3 left breast cancer in June 08.  Proestrogen and Estrogen + Her 2 -.  Chemo july 08 to Dec 08; complete mastectomy Dec 08; complete hysterectomy Dec 08; radiation Jan 09 to March 09; intestinal prolapse march 09; DIEP in Oct 09.  I've been treated for depression since may 09.  My husband left in aug 09.  Discovered affair in Nov 09.  Oh yea, I was 35 when diagnosed.  I have tried to make contact with support groups.  Never was able to stay.  Basically just buried myself in work.   Which I was fired 1 month ago.  Now I never leave my apartment.  Anyone my age with advise on how to get over this?  I could use some advise from women from my background.

Thanks

Tricia Keegan
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Re:Introduce Yourself - Tuesday, July 13, 2010 2:57 AM
Hi KaraK,

I'm sorry for all you you've had to go through, I'm older than you are and havent faced this problem, but wanted to suggest you start a new thread on the sound off forum.

It's busier than this one and more people will see your question and reply:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

PDoodles
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Re:Introduce Yourself - Wednesday, July 14, 2010 6:45 PM
Just wanted to give an update on my Mom~~~~She had her mastectomy of the right breast last Friday and everything went well.The Dr. did discover some tumors in the right underarm,he removed a number of the lymph nodes(although I'm not sure how many).We won't know anything until we get the path report back later this week.She came home Monday afternoon with only 1 drain.Mom is back in the hospital now,she went in late last night,Mom had a fever of 101.4 & her pulse rate was well over 120.They did manage to get the fever down put the pulse rate is still up there.I was wondering if anybody could tell me if Mom's latest symptoms were from the surgery or not.Thanks

Tricia Keegan
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Re:Introduce Yourself - Thursday, July 15, 2010 7:48 AM
I'm sorry I cant help with your question but do hope your Mom is feeling much better soon. :)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

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