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 Introduce Yourself
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dawn31337

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Re:Introduce Yourself - Monday, September 27, 2010 1:57 PM
Hi, I'm Dawn.  I'll be 49 Thursday.  Single (and was looking until 2 weeks ago), 2 kids 19 and 23.

I was diagnosed 9/13, I am stage 1, triple negative, and am scheduled for double mastectomy with reconstruction on Oct 15.  My mother died of BC and my cousin had it as well.  Yolanda, looks like i'm right behind you.  

What kind of reconstruction did you get?  How was your recovery?
Tricia Keegan

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Re:Introduce Yourself - Monday, September 27, 2010 2:20 PM
Hi Dawn,

Feel free to post a new thread so others will see your message more easily:)

I'm so sorry for your diagnosis but it sounds like it's been found early which is good news. 

If you check out the recon/surgery forum you'll find lots of info and tips on all types of recon and also what to expect from surery. :)  xx
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
ballard2girl

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Re:Introduce Yourself - Monday, September 27, 2010 7:08 PM
Hi Everyone, my name is Dale Ballard-Hill and I am seeking support to help me help my sister.  She was diagnosed with stage 3 breast (right side) this July.  She had surgery in August and nodes were removed.  She is now undergoing kemo and she is in a lot of distress (pain).  We live about 300 miles apart and I work full time.  The best that I do is call her everyday and we talk about her day, my day, husbands and our grown kids and grandkids.  She then begins to tell me of her pain.  The only thing I can do is listen.  Does anyone have any receipes, supplements/nourishment, meditations, prayers, anything that I can research and share with her.
 
I am grateful.  Thank you.
 
Dale Ballard-Hill 
Dale Ballard-Hill
Tricia Keegan

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Re:Introduce Yourself - Tuesday, September 28, 2010 7:23 AM
Hi Dale,

You may get more suggestions if you post this on the family and friends forum jjust below this one. :)

I'd also suggest you check out the chemo forum where you'll get many tips and advice.   In general if your sis is in pain she should tell the chemo nurse or onc as they usually do all they can to minimize side effects:)

Tell her not to take any supplements during chemo without asking her onc as many can prevent the chemo being absorbed correctly, this also applies to grape fruit!
<message edited by Tricia Keegan on Tuesday, September 28, 2010 7:24 AM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Gina3013

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Re:Introduce Yourself - Thursday, September 30, 2010 12:21 AM
Hi everyone,

My name is Gina. I am 25 years old and newly diagnosed with breast cancer. Thankfully I started going for routine MRI's last year when I found out I am BRAC1+ so we were able to catch it very early on. I am going to have a unilateral mastectomy...probably in the next month. I'm still torn on what kind of reconstruction to have done though. I already met with the plastic surgeon and I am a good candidate for the implants as well as the TRAM. I can see the pros and cons in both procedures. I just didn't think I would have to make such a life altering decision at such a young age.
sharonma

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Re:Introduce Yourself - Thursday, September 30, 2010 7:49 AM
Dear Gina,
I'm so sorry you had to join us at the young age of 25,  it's horrifying enough to hear those words when you are 50.
Since your questions are mostly about reconstruction I'll tell you what I know 
I see that you are in PA.  If you are anywhere near, and I mean within a 2hr drive to Philadelphia, I would head straight to Fox Chase Cancer Center to Dr Neal Topham.  He did my reconstruction and I would see him again in a heartbeat ,if I ever had too again.
The reconstruction issue is going to be a big decision, soyou'll want to learn everything you can before proceeding.  For me, implant was not the right choice for various reasons. 
Then it was on the the autologous flap or tissue flap.  Tram (pedicled)... or free tram (diep) or a variation of the diep called siea.  I had the DIEP and am very satisfied with the final result, minus the tatoo, which kind of fell off.  I chose the diep because 1. I trusted the surgeon 2. I did not want to compromise my abdominal muscle and Possible core weakness or hernia.
The one disadvantage of the diep or tram is that you are left with a hip to hip incision(scar) on an otherwise healthy body part,  as well as the repositioning of your belly button(another incision)
The one thing that I would strongly recommend is to get at least two opinions from board certified plastic surgeons, that specialize in breast reconstruction.  You may find that   a ps that does not perform the diep or siea will not recommend them.  It is a specialized micro surgery that takes an experiened team to be successful .
I saw three ps, one recommending an implant, second recommending a tram, and then Dr Right, offering me what I knew was the right reconstruction option for me.

The Breast Reconstruction Guidebook by Kathy Steligo is a great comprehensive guide.  I would recommend reading it cover to cover before you make a decision.  I think I got it on Amazon.
Feel free to pm me if you want to talk about it or want to hear more about my experience.
Best of luck to you Gina, and a big Welcome hug to you
Sharon
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  
cmorris1015

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Re:Introduce Yourself - Thursday, September 30, 2010 9:06 AM
Hi,
 
My name is Cindy, I am 44 and I was just diagnosed with invasive ductal carcinoma 2 days ago.  The mass is located in my left breast, 8mm in size, DCIS is present and I am ER/PR+.  I have no idea what all this means.  Ever since the word, "cancer" came out of the Radioligist's mouth, haven't heard anything but "wah, wah, wah".  I am just so numb.  I am trying to stay positive, which is very difficult for me to do as I am such a pessimist.  I just have no idea what to do or where to turn.  I have made my appt. with an Oncologist Breast Surgeon for Tuesday.  I am hoping to understand a lot more after that appt. 
Gina3013

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Re:Introduce Yourself - Thursday, September 30, 2010 2:44 PM
Sharon,

Thank you for all the information. Philadelphia is a little far for me to drive. Right now I go to Penn State Hershey. The doctor that will be doing the surgery actually did my aunt and grandma this past year. (Yes all 3 of us were diagnosed within about a year of each other). My aunt also had the same PS that I have. I really like him and feel comfortable with him. My grandma opted not to do reconstruction since she's in her 70's.
I just never thought I would have to make such a decision at such a young age. I see the pro's and con's in both procedures so I just need to take some time and really think everything through before making a decision.

Thank you for your help!
Gina
serenity

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Re:Introduce Yourself - Thursday, September 30, 2010 5:48 PM
Dale,
  sorry to hear of your sisters diagnosis. i am sure it is hard for family to be so far apart during this time. mine is miles away.
  did your sister describe her pain to you? has she shared her symptoms with the chemo staff? they have been receptive to me.
  i just finished 15 of 16 chemo treatments. if you have more specifics and we have similar issues i would be willing to share my remedies.
  send me a 'private message' if that would be good for you.

hugs to you and your sister,
serenity
     

serenity

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Re:Introduce Yourself - Thursday, September 30, 2010 6:07 PM
cindy,
  you have come to a very supportive and friendly forum. i ask you not to not to be a pessimist any longer. as you gain knowledge in your journey, everything will fall into place. remember to take an advocate with you to appointments so you can listen and they can write. ask, ask and ask any question you have. this is all about you now. a must that you feel comfortable and are informed as much as possible.
  take one day at a time. if you have a belief system... use it.
  this is your journey. it will have its ups and downs.
  i have been on my journey since 4-28-10. i can honestly say the downs have been few. God has never given me anything i could not handle and He has always stayed at my side.

hugs + peace,
serenity
 
 

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