Introduce Yourself

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scootersmom
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Re:Introduce Yourself - Saturday, January 23, 2016 12:35 PM
Welcome back Polly.  Sorry to hear that this has raised it's ugly head again but I am wishing you the best.
Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




helpingleo
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Re:Introduce Yourself - Saturday, January 23, 2016 1:33 PM
Hello all, has anyone heard of breast thermography before, or tried it?

scootersmom
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Re:Introduce Yourself - Sunday, January 24, 2016 11:18 AM
Based on what I read, it sounds like an additional test using a different type of xray looking for suspicious "hotspots".
 

<message edited by scootersmom on Sunday, January 24, 2016 11:21 AM>
Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




emes
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Re:Introduce Yourself - Saturday, January 30, 2016 8:55 AM
I just signed up: I am not sure how this works. Where do I post my question and how do I find the answer(s)? What are all these icons above? I am Em and I just finished my radiation txs which went well, glad they're over, tho'. I am interested now to learn about aromatase inhibitors which I need to start soon. I am very concerned about side effects and would like to hear fr anyone who is on them. How bad are they , when do they start to lessen and is one (of the three that are available) less likely to cause bone and joint pain (which I already suffer from, long before I got cancer). Also, what does"subscribe to the thread" mean? Thanks a lot. EmEs

scootersmom
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Re:Introduce Yourself - Saturday, January 30, 2016 9:04 AM
Welcome to the site.  It's a little early on the boards but there are women on here that can direct you the best forum in the message boards to talk about the treatments.  I'll see if I can find them and post back.  If I can't, I know Tricia will be along soon and will know exactly where they would be and might have more information.

I have no experience with the radiation or with the inhibitors so I cannot comment.  Just know that I wish you well in this journey.

If you go to the forum menu:  maybe some of the information can be found in the forums: Radiation, Hormone theraphy or even in survivorship.  This might be a place to start until one of the other ladies can be more specific.
<message edited by scootersmom on Saturday, January 30, 2016 9:07 AM>
Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




Tricia Keegan
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Re:Introduce Yourself - Saturday, January 30, 2016 1:49 PM
I found this link explaining what it is but I haven't seen any studies on how reliable it is though and imagine all the hospitals would be using it if it was found to be better than a traditional Mammo http://www.thermologyonline.org/Breast/breast_thermography_what.htm
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Tmitch5006
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Re:Introduce Yourself - Friday, February 12, 2016 1:57 AM
Hello, my name is Teresa. I found my breast cancer the day  after a gynecological exam-August 2006.The days flew quickly after that. And yet it seemed like my mind just stopped. Luckily I had a dear friend Kate who stood by me the entire process, from first surgeon visit to all chemotherapy and radiation. She is and always will be my angel. 
I found I had stage 2 b(surgeons discription) 3a(oncologist discription). Confusing huh. I had a lumpectomy first, then 7days later a mastectomy of my left breast. The chemo was grueling. The radiation a huge blister on my chest. 
Last year my doctor finally said I could have my mediport removed.
Today after 9 years I am still affected by the chemo. I cannot smell fresh cut grass or a rose, nor the smell of the air after a fresh cool rain. I miss these little things a lot. I cannot taste an m&m, my favorite candy, I could eat them everyday before. I can only taste salty , spicey and very sweet like a pineapple. When I do smell something it isn't what I remember, like someone peeling an orange smells like expelling gas. My left arm always hurts. Massage therapy helps an awful lot. 
Since I became full diabetic in June of last year, the neuropathy is debilitating. My hand hurt as I type. They sting and feel like needles are in them. I feel like one huge burning bruise. I spilled milk all over my mom last week as I was trying to give her a glass. She was happy I could laugh about it with her. I am just tired of breaking things. I am tired of the fatigue and pain. The sleeplessness. The loneliness in the middle of the nights. I just want someone to say its OK, they feel the same thing. This after cancer seems to go on forever. My son who was nine at the time asked me if I was ever going to get out of the fog. I have forgotten so much. He reminds me, when I don't remember, he remembers. I hate the forgotten memories, I know they were important. 
Each and every day is important, now. Cancer did make me prioritize. My life is only worth the love and laughter I can share with friends and family.
Thank you for being here for me SGK!

Tricia Keegan
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Re:Introduce Yourself - Friday, February 12, 2016 2:29 PM
Hi Teresa,

I'm so sorry you're still suffering all these side effects, maybe speak to your Dr about them? especially the neuropathy which he can give you meds for and you may need your arm checked and measured by a PT trained in Lymphedema.  I hope you get some help, I was dx a year before you and although my eye sight and teeth have deteriorated I'm grateful that in general I'm doing well without too many side effects.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Tmitch5006
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Re:Introduce Yourself - Tuesday, February 16, 2016 4:51 AM
Thanks Tricia, I spoke to one of my doctors yesterday, an endocrinologist who gave me a medicine that she hopes will help me sleep and help with the neuropathy. I too lost a tooth from the radiation. Its funny I still dream about all my teeth just falling out. I guess its the fear I will lose them all. My eyesight has always been terrible! I am so excited to find these message boards and you, its good to know I am not alone.
Thank you so much!


Tricia Keegan
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Re:Introduce Yourself - Tuesday, February 16, 2016 2:20 PM
You're more than welcome Teresa and its a shame the board is a little quiet today or you would have had more replies. If you're on Facebook do look for me there or the Komen breast cancer support group, its a private group so only members can see what you post and mainly consists of all the members from here and is very busy so if you can find us I feel sure you'd enjoy it.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Jahawkins
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Re:Introduce Yourself - Monday, February 22, 2016 11:12 PM
Hi I'm Jessica and I'm 24 years old and breast cancer runs in my family and I just got the genetic testing done and I found out I am positive for BRCA2 I'm pretty scared, nervous, depressed, angry kinda everything. I'm just trying my best to find a support system to help that doesn't involve having to talk to someone on talk the phone about it because it makes things worse for me I guess I'm still in denial I don't know and I really don't know what else to do so I figured I would see what this website is like too who knows tho

Tricia Keegan
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Re:Introduce Yourself - Tuesday, February 23, 2016 2:07 PM
Hi Jessica, I'm sorry you've tested positive, this is a good site with lots of helpful info for people in your position and they also have a message board to chat to others. http://www.facingourrisk.org/index.php
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Nan The Cat
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Re:Introduce Yourself - Tuesday, February 23, 2016 9:24 PM
Hi I'm new to the Komen boards and trying to figure out how to post.  I've got a lot to figure out today.  Just diagnosed with Invasive Lobular Carcinoma.  Testing to-date has been mammos, ultrasounds and core breast biopsy.  Tests so far show no lymph invasion, grade = low, ER+, PR+, HER2 negative, 2 cm, best guess is stage 1.  I'll have an MRI soon and meet with an oncologist and surgeon next Wednesday.  Just told one of my kids today, 2 more to tell, and I'm recently divorce after 25 years of marriage; he seems to have had a mid-life crisis.  I could be moving and have surgery all at the same time. Some days it's like bring it on!  My Avatar is Pete the Cat.  My favorite saying of his is "it's all good."  I'm going to lean in and go with that.  Hoping to find inspiration and words of wisdom on these boards.

ElaineQW
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Re:Introduce Yourself - Wednesday, February 24, 2016 1:16 PM
Hi Nan,

Sorry you had to join us here, but sounds like you've got "attitude" -- in a good way :)  We all go through this experience differently and with different outcomes, side effects, etc.  But one thing for sure is that you came to the right place to vent, rage, share good moments and bad -- with women who are truly warriors!

I'm an 8 year survivor of hormone positive, 9.5cm (yes, CM) tumor.....so anything is possible :)

Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Tricia Keegan
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Re:Introduce Yourself - Wednesday, February 24, 2016 2:24 PM
Hi Nan,

Phew you have a lot going on and sound like a strong positive woman and I'm sure you'll handle whatever comes but there's no doubt it's easier when shared with others that have been there and done that etc.  Good luck with your next appointment and hope you'll keep us posted and perhaps find us on FB.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Nan The Cat
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Re:Introduce Yourself - Wednesday, February 24, 2016 8:32 PM
Hi Elaine & Tricia,

Thanks for your replies.  Phew love hearing success stories.  So told my sister today and my 13 year old daughter.  Daughter is taking this pretty well so far.  I hadn't planned to tell her for a few more days but was caught by surprise when she asked if I'd gotten the results back from the biopsy (she saw me icing last week).  Framed it all as positive and optimistic as possible.  She's agreed to see the school guidance counselor.  I plan to call her school tomorrow.  First the divorce, soon a move and mom's been diagnosed with breast cancer.  Sounds like a bad soap opera.  She's got good friends.  So do I.  One will go with me to my appointment next week as a second set of ears.  So blessed to have wonder friends.  Next, to tell one more son then my elderly parents.  I'll check the other thread to see if I can figure out the fb group thing.  Thanks again.

beachw3
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Re:Introduce Yourself - Thursday, March 10, 2016 3:34 PM
Hi everyone, I was diagnosed with Ductal carcinoma in suti with high comedia....very lucky and thankful.
 
I had a lumpectomy and will have 33 sessions of radiation.  But....I have a thought in the back of my head that maybe i should (and can still do) have a mastectomy.  I get advise from everyone.  I am worried about it returning and returning as invasive.  I feel like if I get a double mastectomy then I won't have that worry.  I am premenapausal and 49. 
 
I would love everyone's thoughts.  I don't want to operate out of fear, but I also don't want to wish I had done something other than lumpectomy and radiation.  I'm thinking long term...

beachw3
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Re:Introduce Yourself - Thursday, March 10, 2016 3:51 PM
also....why do i still feel that feeling like i should have a mastectomy?  fear? that gut instinct?

scootersmom
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Re:Introduce Yourself - Thursday, March 10, 2016 9:03 PM
Hi beach:

The choice is yours to make.  There isn't an easy decision when it comes to this disease. Unfortunately no one can make that decision except you. You have to do what will give you peace of mind.

Have you talked your feelings out with your doctor?  Based on all information out there, there isn't much difference with regards to survivorship between a lumpectomy and a mastectomy. Many women have chosen lumpectomy and are really happy they did.  

You are in the middle of the "what ifs". That is a difficult place to be.  For every answer you get, it seems like two more questions pop up. 

Talk to other women about the reasons for the choices they made. Maybe this will give a new perspective.  Think it out.  As others have said in the past, once your breast is gone, it's gone.  There isn't any putting it back because you change your mind.  Give it a LOT of thought as it really isn't an easy choice.  As you will see in my signature, there were factors involved in my decision to have a bilateral mastectomy.  PM me if you would like additional information.  
Good luck with your decision.
 
Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




karey
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Re:Introduce Yourself - Thursday, March 10, 2016 11:43 PM
One of the reasons I opted to have a lumpectomy is one that I do not think gets talked about very often but for me it was important. Contrary to what a lot of people may think, having a mastectomy does not mean it is impossible to have a recurrence. They cannot remove breast tissue/cells 100% therefore while it is small, there is still a risk. At the moment, due to some results from genetic testing, I am having to make a decision about having my ovaries removed and just today I had that conversation with my OB/GYN who made it very clear to me that the removal of my ovaries will not give me a 100% guarantee that I will not get ovarian cancer anymore than a mastectomy means you will not get breast cancer. In regards to my lumpectomy, I decided that I wanted to still be able to have mammograms. I did not like the idea that if I had a recurrence on that side, it would be on the chest wall. Granted it still could be but I liked the odds of "could" rather than "would". We all have to decide what is best for us but this was the logic behind my decision.
Kathy
Diagnosed at age 47
DX: 12/13/07 IDC Stage IIa Grade 3 3.5 cm TN
Lumpectomy 1/30/08 SNB neg
Chemo-2/29/08: 4 A/C 4 Taxol-Done 6/6/08! NED!
33 Rads 7/7/08-8/20/08 Done!
12/10/09 Now Ruptured Brain Aneurysm Survivor!

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