Visit Komen.org
Lower Your Risk
Prev Thread Prev Thread   Next Thread Next Thread
 Her2 Positive and need info??
Change Page: < 123456 > | Showing page 4 of 6, messages 31 to 40 of 53
Author Message
Tricia Keegan

  • Total Posts : 19215
  • Reward points : 13465
  • Joined: 1/1/2005
  • Location: Ireland
  • Status: offline
Re:Her2 Positive and need info?? - Monday, November 23, 2009 6:50 PM
Well done Brenda and delighted to welcome another her2 sister here:)

If you haven't checked out the her2 site for info be sure to take a look www.her2support.org
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
PatriciaJH

  • Total Posts : 16
  • Reward points : 1805
  • Joined: 9/3/2009
  • Status: offline
Re:Her2 Positive and need info?? - Saturday, January 02, 2010 9:12 PM
Great book:  Her-2: The Making of Herceptin, a Revolutionary Treatment for Breast Cancer by Robert Bazell Reads like a novel (maybe because I am HER2 positive :-)   It's a stunning story and one that made me grateful.  The movie "Living Proof" is a shorter version of the story.  I owe my life to Dr. Dennis Slaman and Lilly Tartikoff, it seems!
Pat
Stage 1 DCIS diagnosed August 2009
HER2 Positive, ER/PR Negative
A/C four cycles ended 12/10/09
Taxol/Herceptin weekly started 12/31/09
Found lump by accident, did not show on mammogram
Neoadjuvant therapy with Herceptin
Surgery in Spring 2010 (clinical trial participant)
Kimberly Oliver

  • Total Posts : 136
  • Reward points : 6195
  • Joined: 8/16/2009
  • Status: offline
Re:Her2 Positive and need info?? - Thursday, January 07, 2010 5:36 PM
Wow, I should pop into these forums more often!  Just found this thread!  My tumor was also HER2+.  I consider myself cancer free from the date of my last breast surgery on July 23, 2009, as all of my scans came back clear & my oncs are using the terms "full remission & totally cureable" when talking to me. 

I just finished chemo, 6 rounds Taxotere, Carboplatin, Herceptin, on December 10, but will stay on Herceptin for the balance of a year, which will be in late August this year.  Had my 1st Herceptin only infusion on New Year's Eve.  Sooo much nicer to be in & out in about an hour!

Anyway, my MUGA scan reading was 81%, so looks like I'm probably good to go to finish out the year, more than likely.  Just started the radiation yesterday, so I'm sure I'll be posting on that thread soon...as soon as there's something to report! LOL!  Pretty uneventful thus far....

Thanks for these links about HER2+ info. 

=)
<message edited by Kimberly Oliver on Friday, January 08, 2010 9:29 AM>
I'm not saying, I'm just saying...

Dx June 30, 2009
Infiltrating Ductal Carcinoma - left, ER- PR 9%+ HER2+
7/9/09-lumpectomy, 4/15 nodes pos
7/23/09- Reincision for clear margins 
Chemo TCH DONE 12/09  
Rads DONE 2/10
Herceptin DONE 8/10
Start Tamox 9/10
Blog: http://lunatechchick.blogspot.com
Tricia Keegan

  • Total Posts : 19215
  • Reward points : 13465
  • Joined: 1/1/2005
  • Location: Ireland
  • Status: offline
Re:Her2 Positive and need info?? - Friday, January 08, 2010 10:22 AM
Hi Kimberly,

Congrats on finishing your chemo and welcome !

This thread can be a little quiet at times as there really are'nt that many of us here at the moment although I do look in daily.   Your mugga score sounds great and while it may go down a little I really hope it stays high enough to complete your herceptin.
Mine only went as far 52% so managed to get the year done with minimal side effects and no breaks:)

Patricia, I read the book too and it's great and very informative.  Unfortunatly we haven't had the movie show here in Ireland as yet but when we do I'd love to see it.
Thanks for the reminder!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Deborah Q

  • Total Posts : 1
  • Reward points : 0
  • Joined: 3/5/2010
  • Status: offline
Re:Her2 Positive and need info?? - Friday, March 05, 2010 11:13 PM
HI. I was diagnosed with HER2+ April 2009, had surgery June 4 2009, had one week of twice a day intenstive radation with a mamosite device embedded into my left breast. Then got very sick and ran fever so could not start chemo until August 2009. Finished chemo last week of October 2009 and now I am doing Herceptin once every three weeks until end of this year 2010. Chemo made me really sick and I ended up in the hospital with neupetic fever (not sure I spelled that right) and then my oncoligist decided that I should stay home in isolation until after all my chemo was done. So I was at home for 4 months and returned to work Dec1. My BC diagnosis was a real surprise for me especially the HER2+ part of it but my doctors have been really wonderful and very inofrmative and straight forward with me. After my inital shock, I think my husband and family were more afarid for me than I was. I also am a diabetic, so treatment has been really rough for me. I am finally getting back to normal somewhat.  This is the first time I have been to this web site and I have read some great information about my treatment that I did not know. I hope to continue to improve. I have had my first follow up mammogram and visit with my surgeon and was told I am doing great and every thing looked clear for now.
 

Deborah
Tricia Keegan

  • Total Posts : 19215
  • Reward points : 13465
  • Joined: 1/1/2005
  • Location: Ireland
  • Status: offline
Re:Her2 Positive and need info?? - Saturday, March 06, 2010 2:54 PM
Hi Deborah and welcome,

I've been offline for a couple of days and just saw your post.
It sounds like things have been rough for you but am so glad you're getting through it all and beginning to recover. 
You can also get some great info on our type of cancer by checking www.her3support.org
Glad you found us and good luck with the herceptin:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
R. Lee

  • Total Posts : 395
  • Reward points : 525
  • Joined: 11/28/2007
  • Status: offline
Re:Her2 Positive and need info?? - Wednesday, March 10, 2010 9:01 AM
Hello Ladies.....just checking in......Bec is doing well.  The fatigue from the 16 months of chemo/herceptin is fading fast.  I no longer have to stay home until she's up and going.  Bec is now involved with a group of local women all bc survivors.....interesting to note that this sleepy little deep south community has twice the national average of women diagnosed with breast cancer.  I hope everyone has a good day.  Y'all deserve it!
Hubby to Becky 58
port/pre-op chemo A/C 4X
mast/recon 11/09/07
stage 11A node neg clear margins Herc2 pos
Taxol 5X (neuropathy)
NCS 1/21/08 FOLTX Rx
final Herceptin scheduled 11/21/08
NED HAS ARRIVED!
port removal 12/2/08
abnormal thyroid 11/09
12/28/09 colonoscopy scheduled.....something they found
     in a recent torso MRI...nothing abnormal.
Tricia Keegan

  • Total Posts : 19215
  • Reward points : 13465
  • Joined: 1/1/2005
  • Location: Ireland
  • Status: offline
Re:Her2 Positive and need info?? - Wednesday, March 10, 2010 3:44 PM
Hi ,

So glad to hear Becky is doing better and slowly but surely getting further away from her tx and doing well:)

I'm almost five years out now Ron and doing fine, hope you and Becky gain some confidence from seeing other's survive her2+ cancer so well:)

My best to you both. xx
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Tricia Keegan

  • Total Posts : 19215
  • Reward points : 13465
  • Joined: 1/1/2005
  • Location: Ireland
  • Status: offline
Re:Her2 Positive and need info?? - Thursday, May 27, 2010 3:15 PM
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Redwolf8812

  • Total Posts : 12
  • Reward points : 425
  • Joined: 7/12/2010
  • Status: offline
Re:Her2 Positive and need info?? - Thursday, July 22, 2010 9:19 PM
Just diagnosed.  IDC, clinical stage 2.  ER-/PR-/HER2+ Multicentric, lymph node positive.

So I've got a rare, aggressive bc?  Jesus help me.
Change Page: < 123456 > | Showing page 4 of 6, messages 31 to 40 of 53

Jump to:

Icon Legend and Permission
  • New Messages
  • No New Messages
  • Hot Topic w/ New Messages
  • Hot Topic w/o New Messages
  • Locked w/ New Messages
  • Locked w/o New Messages
  • Read Message
  • Post New Thread
  • Reply to message
  • Post New Poll
  • Submit Vote
  • Post reward post
  • Delete my own posts
  • Delete my own threads
  • Rate post

© 2000-2008 ASPPlayground.NET Forum Version 3.1.5