The waiting room!!!

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SusieH
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Re:The waiting room!!! - Wednesday, June 23, 2010 9:17 AM
I just had my third blood draw for the elevated liver enzyme ALP. If it hasn't came down I will need a liver and bone scan to check for mets. I was just diagnosed with BC six months ago with stage 1 grade 1, now we're talking about the posibility of mets. Please say a little prayer for me, it's getting hard not to dwell on it.
Susie
Diagnosed 12/22/09 IDC 1.7cm Stage 1 Grade 1 ER+ PR+
HER2- Oncotype DX score 16, Arimidex 

sharonma
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Re:The waiting room!!! - Wednesday, June 23, 2010 10:31 AM
Susie,
Saying a prayer for you.  I'm thinking it would be quiute unusual for it to be mets with your dx, but I know the worry and anxiety you must have none the less.  Hopefully it is a problem with your meds and not mets.
Sharon
Any news beachgal?
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

LaudyLo
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Re:The waiting room!!! - Wednesday, June 23, 2010 11:00 AM
Hi Susie, I'm praying for you and thinking of you more than you may ever know.
I'm sending a ton of hugs along with lots of positivity your way. It's near impossible not to dwell on this, please come here for support no matter how many times you need to! If you haven't as yet, please ask your doctor for an anti anxiety medication. I hope your results come to you right away & that they're good results!

Like Sharon already stated:It would be very unusual for it to be mets with you dx so please try not to get to anxious although I know that it is easier said than done.  XOXO,Laurie.
Laurie/S.Fl.
DX@ age: 46 on 8/17/09
IDC Stage 1, Grade 3, Node Neg. Hert2-
Lumpectomy R.B. 1.08 CM.  Er+ & PR+
Onca score:  "24"          BRCA-Negitive!
Chemo-(8) C.M.F...   DONE final 3/17/10
Rads x 36..............   DONE final 6/04/10
1200 UI Vitamin D    & Tamoxifen 5 yrs.




Tricia Keegan
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Re:The waiting room!!! - Wednesday, June 23, 2010 12:27 PM
Sending good wishes Susie, I agree with Sharon/Laurie that it's doubtful this would be mets but a scan will put your mind at ease. 

There are reasons other than cancer for this to rise too so please stay positive and keep us posted:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Rena
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Re:The waiting room!!! - Saturday, June 26, 2010 12:08 AM
Susie, you'll be in my thoughts. As the others have said, the odds are in your favor. Sending a hug, Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Sharon
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Re:The waiting room!!! - Saturday, June 26, 2010 1:51 PM
Hi Susie

I hope you are reassured from the Ladies Posts that it unlikely to be Mets, but of course you are worried, that's natural, so sending prayers and good thoughts your way.
Sharon
Non Hodgkins Lymphoma Extra Nodal (Stomach + BM)
Stage IV C. Survivor x 5 years
T/ment: 8 cycles Rituxan CVP x 8 + Rads. x 30
Friends affected by Breast Cancer


beachgal
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Re:The waiting room!!! - Saturday, June 26, 2010 4:36 PM
Thank you all for your good vibes.  Unfortunately the news is not what I was hoping for.   I have a lot to process and do in the days ahead.  thank you all!

LaudyLo
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Re:The waiting room!!! - Saturday, June 26, 2010 5:02 PM
Oh Susie I don't know what to say right now,I'm sending you all my love.......
Please when you are able let us help you through what ever it is that you are facing.
Laurie/S.Fl.
DX@ age: 46 on 8/17/09
IDC Stage 1, Grade 3, Node Neg. Hert2-
Lumpectomy R.B. 1.08 CM.  Er+ & PR+
Onca score:  "24"          BRCA-Negitive!
Chemo-(8) C.M.F...   DONE final 3/17/10
Rads x 36..............   DONE final 6/04/10
1200 UI Vitamin D    & Tamoxifen 5 yrs.




Tricia Keegan
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Re:The waiting room!!! - Saturday, June 26, 2010 5:05 PM
Beachgal,

I'm so very sorry as I know many of the member's here will be:(

I understand completly if you need time to process whatever news you received, but please know we're all here for you, we want to help you though this whatever it is.

Most importantly, remember it's still viable to get back to NED!!!!!

(((((HUGS)))))
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Rena
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Re:The waiting room!!! - Saturday, June 26, 2010 5:42 PM
Susie, I'm so sorry that the news wasn't what you wanted. Whenever you feel like talking or venting, we're here. All my best, Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

farla
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Re:The waiting room!!! - Saturday, June 26, 2010 10:08 PM
OK, Beachgal, wow, it is hard news to process.  We are here for you - what ever you need to do or say, we'll listen, and understand.  Lots of love and prayers are headed to you.  You CAN get back to NED.  REMEMBER that.
You, too, Susie, I'll think of you, and pray it is not mets.  You must be so worried.
Farla
dx 8/09, R double lumpectomy, invasive mixed DCIS/LCIS
ER + PR + Her -
1/3 Sentinel pos. 1/15 nodes pos
 Stage 2A  Grade 2, Nottingham 6
chemo A/C x4, Taxol x 4 started 9/21/09 DONE!!!
femara  started 2/5/10
rads  2/8/10 DONE!!!
Now - osteoporosis?  Vit D, calcium, and a baby aspirin to boot!

ElaineQW
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Re:The waiting room!!! - Sunday, June 27, 2010 3:47 AM
Hi everyone,

I was away for a couple of weeks and just now catching up - YES, at 1:45am!!!  

So happy for the good news (fatty deposits and all :)  Beachgal, please let us know how you're doing and very sorry that the news was not you hoped for.  It is a fear we all share.

Hug,
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Sharon
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Re:The waiting room!!! - Sunday, June 27, 2010 1:46 PM
Hi Beachgal

Been checking here waiting for your news, I am sorry it's not the best. Take care.

Sharon 
Non Hodgkins Lymphoma Extra Nodal (Stomach + BM)
Stage IV C. Survivor x 5 years
T/ment: 8 cycles Rituxan CVP x 8 + Rads. x 30
Friends affected by Breast Cancer


thinkpink
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Re:The waiting room!!! - Sunday, June 27, 2010 2:26 PM
Sending positive thoughts and prayers to all of you...... 
<message edited by thinkpink on Sunday, June 27, 2010 2:33 PM>
ThinkPink - Mammo /Ultrasound- 6/29/09 Core Biopsy - 6/30/09 a-hyperplasia DCIS/LCIS Lumpectomies Left Side 9/9/09, 10/7/09, 11/11/09 (sentinel lymph node biopsy & auxillary lymph node dissection)Bilateral mast & Beg. Reconstruction (TE's) 1/26/10 Exchange Surgery (gummyimplants)-6/22/10 Diagnosed surgery - skin cancer 8/16, 1/18, 4/6 surgery 5/16,5/23 Clear Margins Yeah! BRAC/Neg, Gummy Implants FDA Approved![/colo

Gail L
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Re:The waiting room!!! - Monday, June 28, 2010 12:02 AM
Susie, so sorry that you didn't get good news. Just remember everyone is here for you and willing to listen whenever you are ready. ox gail
Age @ DX 47
12/05 Axilla lymph node biopsy pos
1/31/06 bilateral mast
IDC 3cm 10+ lymph nodes
Stage IIIc/High Grade
A/C x4 Taxol x4
Rads x 35
TX done 9/06, Tamoxifen 5/09,Femara
5/09 PET Scan mets to liver & nodes
7/09 Avastin/Ixempra x8
1/10 Avastin/Xeloda x ?

sharonma
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Re:The waiting room!!! - Tuesday, June 29, 2010 9:02 AM
Beachgal,
Sending positive thoughts and prayers your way.  We are here when you need us!

Susie,
Any news yet?

I'm not really back in the waiting room, but I am waiting to be scheduled for a culposcopy, d&c, and uterine bx in early August, the only time we coordinate our schedules.  I'm not going to worry about it until I have to. (still beating back the total hyst/ooph)
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

Pat Patterson
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Re:The waiting room!!! - Tuesday, June 29, 2010 12:45 PM
Just checking in..I had my grandson over the weekend and he is always on the computer!  I didn't get any time to myself!  Not complaining, just stating the facts. 
Sharon, I have had a uterine biopsy... good luck!  Pals  My daughter has had the culposcopy (SP?) for HPV...you are sure having your share right now.   I am praying it all turns out well and you can escape the hysterectomy. 
 
Beachgal...my thoughts and prayers are with you...
DX 5/13/08 Clearwater, FL HER2 +
IDC Stage IIIA changed 12/2/08 to IIB Grade 3
Taxotere, Carbo & Herceptin  6/11/08
Part Mas 11/5/08 SNB neg & addl node neg - CLEAN MARGINS!
Arimidex 11/25/08  35 Rads 12/15/08

Gail L
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Re:The waiting room!!! - Tuesday, June 29, 2010 1:28 PM
PET/CT scan tomorrow. Results on Tues 6th, hoping to hear that things are still stable.

gail
Age @ DX 47
12/05 Axilla lymph node biopsy pos
1/31/06 bilateral mast
IDC 3cm 10+ lymph nodes
Stage IIIc/High Grade
A/C x4 Taxol x4
Rads x 35
TX done 9/06, Tamoxifen 5/09,Femara
5/09 PET Scan mets to liver & nodes
7/09 Avastin/Ixempra x8
1/10 Avastin/Xeloda x ?

Rena
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Re:The waiting room!!! - Tuesday, June 29, 2010 1:52 PM
Good luck, Gail! I hope you get that huge muffin afterwards and excellent results!
Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Tricia Keegan
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Re:The waiting room!!! - Tuesday, June 29, 2010 2:12 PM
Good luck and thoughts to Gail, Susie, and Sharon, thinking of you all ladies and hoping for the best results for all of you:)

I also am awaiting mammo results which I won't have until July 7th when I see my onc.   Officially the 8th July is my fifth year out from bc so I'm hoping for a double celebration:)

I could be accused of being over optimistic as have already planned a great family celebration for the 13th which is the only day I can get them all together due to work commitments:)
It's all about thinking positivly!!!  xx
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

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