Winter chemo ladies!

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Tricia Keegan
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Winter chemo ladies! - Monday, November 08, 2010 5:28 PM
I've noticed a few new members posting who have started or just about to start chemo, we used to have a main "winter" or Spring" chemo forum so everyone could chat together about their experiences and swap stories etc.
With that in mind I thought I'd begin this thread so feel free to add to it whether to ask a question, post advice or send good wishes to those at this stage of treatment.

I also want to remind the newer members, if you go to the bottom of the page you'll see a box saying display posts "last 30 days" if you scroll down this and click on "from the beginning" you'll find much more advice from past members exactly where you are now.  Hope this helps and good luck to all you ladies starting this journey, and please know we're all here for you and as scary as it is right now, it IS do able!!!
<message edited by Tricia Keegan on Monday, November 08, 2010 5:30 PM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Bekka
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Re:Winter chemo ladies! - Tuesday, November 09, 2010 2:28 PM
Ill be the first to post...I was suppose to start Chemo on the 9 but pushed it back so that I could be able to get my port put in this Friday the 12...so I start chemo on the 16...I look forward to meeting all the ladies that will be with me in the Winter Chemo journey :)

Mom813
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Re:Winter chemo ladies! - Tuesday, November 09, 2010 2:41 PM
THANKS TRISH!!! On my winter chemo journey. Just had 2nd A/C treatment so I'm 50% done with the A/C.  Then onto the TAxol for 12 treatments.  The first treatment was harder than this treatment so I went in with a list of symptoms.  The onc adjusted the run time and changed the naseau medicine.  I'm on day 2 of the 2nd treatment and so far so good.  Just have to wait and see how the journey goes.  I hear that the T is easier than the A/C.  not sure.  Got the wigs and they seem to look okay., just one day at a time.  Good luck to the other ladies with the winter chemo journey.
Maureen
Dx 8/2010
Surg 9/30/2010 5cm lumpectomy, 4/4 +Lymph nodes, Chemo start 10/25/2010 AD x4 DONE 12/6/10 
Chemo Tx12 start 12/20/10 DONE 3/7/2011 
Rads start 3/21/2011  
Homonal pending

My journey has just begun. One day at a time

dap1961
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Re:Winter chemo ladies! - Tuesday, November 09, 2010 3:20 PM
Hello....I was diagsosed in Mid July with ductal carcinoma in situ. (estrogen receptor positive)I had a lumpectomy at end of July and a mastectomy 5 weeks ago...negative in lymph nodes and appears to have gotten clear margins (thank goodness).however, I am going to have 4 chemo treatments possibly starting at the end of this week....I had an ONCO dx score of 25, so this is why my onocologist is ordering chemo....I think this is going to be the hardest part about all of this.. the fear of the unknown. I will have 4 treatments every 3 weeks....I had a porta-cath put in during the mastectomy.  I have a tissue expander and have started the reconstruction process, which is going very well.  After chemo, I will do the last surgery with the new silicon implant and a reduction/lift in the other one.  I will be 50 in March, so I think of it as my "free boob job" for my birthday!  Maybe we can all go through these treatments together..I am so scared! My oncologist says my hair will probably fall out about 3 weeks after the first treatment....this is going to be hard emotionally for me.  

Tricia Keegan
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Re:Winter chemo ladies! - Tuesday, November 09, 2010 4:51 PM
Hi Ladies,

Thanks for starting us all off Bekka,sorry your chemo is delayed but the port is worthwhile and will be a friend to you:)

Maureen, the taxol was definaly so much easier to tolerate for me than the a/c, I did'nt need any anti nausea meds or neulasta!:)
It does have it's own side effects of course but I found it a lot easier and hope you will too.

Hi Dap and welcome, I think the hair loss was hardest for all of us and it is an emotional experience.  However, it may sound weird, but after the first few days I got used to seeing  myself without hair and so did my family!   It's just the initial time when it's coming out that it is the toughest.
Remember though it's all temporary and it's very exciting when it begins to grow again, this is a tough process but we do this to save our lives so is very worthwhile, and there is a finish line as you can see from so many members here.

You'll be fine ladies, just stay strong and stick together through this, I'd have found it much harder without my komen sisters holding my hand so swap aches/pains etc and know you can do this :)

I'm sure some of the longer term members will pop in from time to time and answer some of your questions if they had the same issue so you're not alone.

((((hugs))))


<message edited by Tricia Keegan on Tuesday, November 09, 2010 4:54 PM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Pamiam
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Re:Winter chemo ladies! - Tuesday, November 09, 2010 10:16 PM

Reading Mama
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Re:Winter chemo ladies! - Wednesday, November 10, 2010 4:59 PM
Well, I jump in here too, I started on Oct. 12th, 4 rounds of AC and then 4 rounds of Taxol.  Had my third round of AC yesterday and without repeating myself, the first round was the hardest and the second and so far the third are going better.

The hair loss wasn't as emotional as I expected, I knew I would buzz my hair when it started falling out, so it started falling out 10/29 and my dh buzzed it Sat night so I could wear my wig for the first time on Halloween, which I thought was appropriate! 
The first full days at work with the wig were hard, but on about Day 4, it really felt comfortable and I don't think or notice it hardly at all now. 

Funny story, my oncologist RN was on vacation my first chemo tx, so yesterday was the first time I saw her, and she looks at my chart and says, you haven't lost your hair yet?? Needless so say, that made me feel good about the wig!
8/4/10 found lump, 8/13 mammo&us, 8/31 biopsy
9/7/10 dx@ age 43 -  IDC - 2cm (4.6cm on MRI!), ER/PR--, HER2+, Grade 2, Likely Stage IIIa.  BRCA negative!
Neoadjuvant chemo - AC-dose dense, 10/10, 4tx - DONE!
Taxol - dose dense - 4tx - 12/10 - DONE!
Lumpectomy & ALND - 02/16/11 (No cancer left!)
Rads x34 - start April 2010
Herceptin for 1 year - started 12/7/10
Northern NJ, mom to dd(11) and ds(7)

Tricia Keegan
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Re:Winter chemo ladies! - Wednesday, November 10, 2010 5:08 PM
Lol Reading Mama, just what we need to put us at ease with our wigs!!!:)

Glad you posted, I just replied to you on your other thread so check that out!

Good luck with the rest of your treatments too and keep us posted.:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Kimberly Oliver
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Re:Winter chemo ladies! - Saturday, November 13, 2010 5:16 PM
Just droppin by to say HI to the Winter Chemo Ladies.  I was a Summer Chemo Lady.  Good luck to all with the treatments!
I'm not saying, I'm just saying...

Dx June 30, 2009
Infiltrating Ductal Carcinoma - left, ER- PR 9%+ HER2+
7/9/09-lumpectomy, 4/15 nodes pos
7/23/09- Reincision for clear margins 
Chemo TCH DONE 12/09  
Rads DONE 2/10
Herceptin DONE 8/10
Start Tamox 9/10
Blog: http://lunatechchick.blogspot.com

Stephanie
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Re:Winter chemo ladies! - Tuesday, November 16, 2010 12:31 AM
Hello ladies,  I am new to this forum..  I was diagnosed originally in 2007.  I had 4 lumpectomies-atc treatment-double masectomy-and full hysterectomy.  I was then put on arimidex.  4 weeks ago it was found in my lymph nodes.  I had surgery and will have a port placed this Wed. and chemo starts Friday.  This time we will do cytoxin and taxotere no adria this time.  I am very hopeful but dreading the chemo.  However I do have a good out look and God.  So chemo treatment here I come see you on the other side.

Tricia Keegan
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Re:Winter chemo ladies! - Tuesday, November 16, 2010 5:06 AM
Hi Stephanie,

I'm so sorry you have to face this again, as you can see there are other ladies starting chemo too so you won't be alone:)

I think any chemo regime has to be easier than the adriamycin so good luck and keep us posted!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

dap1961
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Re:Winter chemo ladies! - Tuesday, November 16, 2010 8:40 AM
Stephanie, will be thinking about you on Friday!  I start my first chemo today..had port put in on October 5 when I had my mastectomy.  YOu have been through a lot!  Keep us up to date on how you are doing!  Debbie

Bekka
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Re:Winter chemo ladies! - Tuesday, November 16, 2010 8:05 PM
Had my first treatment today of TC everything went really well..I start Nupogen shots at home on Thursday for 9 days...I have a friend that is a nurse and shes way to excited to help if you ask me lol
Right now Im just resting and taking my nausa pills all is well...Ill post updates as time goes on...

dap1961
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Re:Winter chemo ladies! - Wednesday, November 17, 2010 8:19 AM
HI Bekka!  We made it through day one!! Mine went well too!  I think the anticipation of that first one was worse than the actual treament.  The nurses took good care of me and I was there for about 3 and a a half hours total.  I took Taxotere and Cytoxaon.  I had a antinausea and steriod in my IV ahead of time and so far, I feel fine this morning. i am going to take an antinausea pill here too as to stay on top of it..I slept fairly well last night.I will start antibiotic on Sunday for 7 days....I believe it is Augmenten.  Just taking it easy today....Keep in touch!  DEBBiE

Bekka
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Re:Winter chemo ladies! - Wednesday, November 17, 2010 10:40 AM
Hey Debbie we are on the same Chemo treatments :) Im glad yours went well also...yea I think the first time going and all the nerves freaks you out a little but now I know what to expect its a breeze..Im really hoping that this good feeling last and the side effects are not that bad..they say with the Nupogen Ill be in pain since it effects my bone marrow but hopefully with Tyneol and Benadril everything will be fine

Does anyone know when I should watch out for side effects?I know everyone is different just thought I would ask :)

Tricia Keegan
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Re:Winter chemo ladies! - Wednesday, November 17, 2010 5:53 PM
Hi Ladies,

So glad your first tx went okay, usually side effects kick in on day three, but everyones different of course as to how we respond to this.

The anticipation is definatly the worse, and you've overcome that so hopefully you'll both get through this with minimal side effects:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

dap1961
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Re:Winter chemo ladies! - Wednesday, November 17, 2010 6:58 PM
so far, today has been good!  I went to the grocery store and bought things for Thanksgiving dinner...have been staying on top of the antinausea pills every 8 hours whether I need it or not...the only thing I have noticed so far is that my taste buds have seemed to change already..not bad, but weird!  We shall see how I feel tomorrow!  So far, so good..Oh, a little bit of acid indigestion in my throat..comes and goes...trying to drink a lot of water.  Bekka, how are you doing??

ElaineQW
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Re:Winter chemo ladies! - Wednesday, November 17, 2010 7:39 PM
Bekka,

I assumed I wasn't going to have any side effects.  I intended to deal with the side effects only when they presented themselves, and not a second before that!!  

Hug,
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Bekka
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Re:Winter chemo ladies! - Thursday, November 18, 2010 10:30 AM
Ok day 3 and all is good :) Debbie my tase buds are the same not terrible but theres a difference...Just laying around today having the dh call me all day long to make sure Im not doing anything to crazy lol gotta love him
But no big changes yet tonight is my first Nupogen...and Im hoping for no pain...the doctor said its either no pain or a lot of pain no inbetween...wish me luck
Diagnosis: 8/15/2010, IDC, 2cm, Stage IIa, Grade 2, 3/3 nodes, ER-/PR+, HER2+

TC every 3 weeks for 6 sessions

Take everyday as a step closer to the finish line and the start of your new life <3

dap1961
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Re:Winter chemo ladies! - Thursday, November 18, 2010 5:12 PM
Hi...last night, i had some night sweats, but nurse said this may be due to the steroids, which i finished last night....She said days 3-5 will be the icky days...have still felt pretty good today.  The tiredness will probably hit me tomorrow!  Maybe I should be feeling good by Thanksgiving!

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