PATIENT ADVOCATE INFORMATION

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sharonma
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PATIENT ADVOCATE INFORMATION - Tuesday, January 18, 2011 8:35 AM
The National Patient Advocate Foundation is a policy office located in Washington DC.  The companion organization, Patient Advocate Foundation, is a direct patient services organization that provides management to patients free of charge.  The trained case managers assist with medical debt crisis, job retention, insurance denials and many other issues.  Their website is www.patientadvocate.org
 
 This is from some research I did a while back seeking information for a Sister that was having trouble with her employer/insurance.  I just came across the paper that had all the info and wanted to post in case it would be of help to anyone.
The contact at that time was
Amy Boivin  (don't know if she is still there)
Director of Government Affairs   
 National Patient Advocate Foundation 
 725 15th Street, NW
Washiongton DC
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

Nanaz
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Re:PATIENT ADVOCATE INFORMATION - Tuesday, January 18, 2011 6:58 PM
Thanks Sharon,
 
I am definately going to look into it. 
 
Christy
 
 

Tricia Keegan
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Re:PATIENT ADVOCATE INFORMATION - Tuesday, January 18, 2011 7:06 PM
Great info, thanks Sharon and I'm sure it'll be helpful to many posting here:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Jennifer Mishe
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Re:PATIENT ADVOCATE INFORMATION - Sunday, January 23, 2011 7:03 AM
I also highly recommend Livestrong's SurvivorCare program, which partners with the PAF and provides you with a case worker for several different areas of concern that cancer survivors have.
http://www.livestrong.org/Get-Help/Get-One-On-One-Support
Jennifer
DCIS
lumpectomy 5/02/05
32 rad tx comp 7/07/05
tamoxifen
comp. hysterectomy 4/04/06
Paducah, KY

sneha123
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Re:PATIENT ADVOCATE INFORMATION - Thursday, February 10, 2011 2:06 AM
Hello friends,,,sneha here,,,i like this post,,I think,,,its so great information, thanks Sharon and I'm sure it'll be helpful to many posting here,,,keep it up,,,,:) 



sharonma
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Re:PATIENT ADVOCATE INFORMATION - Tuesday, March 29, 2011 6:21 AM
This post dissappeared.  Komen, please repost
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

sharonma
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Re:PATIENT ADVOCATE INFORMATION - Thursday, July 07, 2011 7:57 AM
bump
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

sharonma
  • Total Posts : 4093
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Re:PATIENT ADVOCATE INFORMATION - Wednesday, August 24, 2011 6:53 AM
bump
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

Newport CB
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Re:PATIENT ADVOCATE INFORMATION - Tuesday, September 20, 2011 6:14 PM
Thank you....I'm contacting them now....can't get United Health Care to cover BRAC testing but 2 independent doctors has said I should have it conducted.

Tricia Keegan
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Re:PATIENT ADVOCATE INFORMATION - Wednesday, September 21, 2011 4:44 AM
Sharon I've pinned this thread to the top so others can avail of the info and to ensure it does'nt slip down again!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

donnapetry
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Re:PATIENT ADVOCATE INFORMATION - Wednesday, September 21, 2011 9:59 AM
Newport - My insurance company wouldn't cover my BRAC testing because I am adopted they said that since I didn't have any history they wouldn't do it, which I think is totally crazy. However, since I had 2 cancers they did end up covering it. I have my onco to thank for informing the BRCA clinic of this.
ER 80% and PR 70%.
DCIS, IDC Diag 4/12/11
Left Mastectomy 3 nodes positive removed 5/26/11
Stage 2, Triple positive (ER 80%, PR 70%, Her2 +3)
Chemo 6/30/11 Carboplatin/Taxotere/Herceptin Completed chemo 10/13/11
BRCA 1 & 2 Negative 
Herceptin for 1 year - completed 5/10/12
Arimidex for 5 years starting 11/3/11
Right simple Masectomy 11/29/12
Take one day at a time and always try to find something positive out of the negative!

Linda O
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Re:PATIENT ADVOCATE INFORMATION - Thursday, January 03, 2013 7:55 PM
Thank you so much Sharonma for posting this info. I wish I had found this site months ago. While I was recovering from my breast cancer surgery and before my 6 weeks of radiation, my boss came to my home and fired me. I had worked at this job for 11 years, always received a raise and bonus, and never was written up on anything. He said they needed someone to be at the job more than what I could do at this time. They then had the nerve to hire a young man for 12 hours a week to do it. I mention age and sex because I am an older woman and wonder how much that had to do with it. Then after a couple of months, they ended up hiring an older woman.  Seems to me someone told them what they needed to do to cover themselves from a discrimination lawsuit. Of course, age and sex are not the only forms of discrimination and I'll be following up with this info on what I can do for their discriminating because of disability.
Again, thank you.  ~Linda O

tracyw52
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Re:PATIENT ADVOCATE INFORMATION - Thursday, July 11, 2013 8:50 PM
Newport CB - I realize your post was awhile ago but I thought people might want to know.  I also have United Healthcare and they covered the test for me.  I do not have a history of breast cancer on my father's side of the family and I was unsure of my mother's side.  I do not know if my age had anything to do with it - I am 43 and have been told several times I pretty young for this.  Maybe they changed their policy recently??  

Nate jacob
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Re:PATIENT ADVOCATE INFORMATION - Thursday, September 01, 2016 10:05 PM
To avoid this situation, plan ahead and discuss various treatment scenarios with your doctor, your family and other advisers.
Keep your eyes on the stars, your feet on the ground.