And Life Goes ON: Daily Support

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DJ64
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Re:And Life Goes ON: Daily Support - Sunday, April 27, 2014 1:13 PM
Rena,

Headaches were stress and I think Zofran is causing me some, so I might go back on the other nausea med I had.  Taxol didn't give me nausea or vomiting.  To early to tell about Doxil.

Robert Ballard who found the Titanic now years ago, I met him.  My youngest son was very interested when he was 8 years old and I took him to the local University who had Mr. Ballard as a speaker.  Since my son was probably the youngest there, Mr. Ballard paid attention to him.  I figured he must have been bored to take so much time to pay attention to my son.  I purchased his book and he signed the book for my son.  Did you and Tricia enjoy the museum.  

DJ
"Prepared for the worst, hope for the best and, live each day to the hilt"


Stage IV  lungs, lining, ribs, left scapula and left clavicle - Used all the hormonal drugs - tamoxifen, arimidex,  , Faslodex 250 mg,  femara, , drug break using own estrogen (progression in 7 months), rebooted femara (progression on next scan) Faslodex 500 mg ended 18 1/2 years on hormonal therapies - 2013,  Taxol - 2014 now on Doxil. 

Tricia Keegan
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Re:And Life Goes ON: Daily Support - Sunday, April 27, 2014 2:52 PM
DJ, we had a lovely visit there and enjoyed it very much thanks, we were lucky it was a nice sunny day too, I can't believe Rena's trip has come and gone already but happy we both enjoyed it, but knew we would.:)

Sorry for your headaches, however this drug gave me headaches at the start for a few days too, as well as sinus issue's, hoping it gets easier for you.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Ree T
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Re:And Life Goes ON: Daily Support - Friday, May 22, 2015 10:45 AM
[font="verdana; font-size: 12px; line-height: 16.7999992370605px; background-color: rgb(248, 248, 248)"]It is so helpful reading about your "true" feelings, from all of you.  I have been having a hard time being "positive" all the time. It seems that is expected and I have begun to understand that it is ludicrous to think that I can be that.  I found a saying on Facebook that just said it all for me.  "I'm exhausted from trying to be stronger than I feel." I couldn't figure out why I feel so tired. Had blood tests run and all is well.  I'm realizing that I just wasn't allowing myself to honestly feel sad and changed. I thought that since I found the cancer early that I didn't have the right to say I'm a survivor. However, I'm realizing that all the same fears and losses happened to me. I lost my breasts! I hate looking in the mirror! I'm scared the doctors are wrong! Those who say, "you will be fine" just don't have a clue and I hope they never will. They mean well and just trying to care, but it sure doesn't help. Starting Tamoxifen today and really nervous about it. I have terrible reactions to medications, but the oncologist wants me to give it a try.  DREADING IT!
Ree, Aurora, CO, Age 65
Invasive ductal carcinoma, left breast
ER+, PgR+, HER2 by IHC Negative, Stage I
Bilateral Mastectomy 3/20/15
Cancer found in right breast after surgery

Nodes clear, clear margins

scootersmom
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Re:And Life Goes ON: Daily Support - Friday, May 22, 2015 12:00 PM
Ree:

So sorry that you were drafted into this club that no one wanted to join.  You are correct.  It is tiring trying to stay positive and put up the "front" for others.  You need to take that time to grieve the loss of your breasts.  You need time to absorb what has happened.  So much is out of our control and that is hard to accept.  Looking at yourself again will happen.  While you won't see your breasts you will over time see a strong woman who has survived and eventually will thrive.

I too did not feel like a survivor as my cancer was stage 0.  I guess you really can't get any earlier than that.  Because I didn't go through what others did I felt like what did I survive.  I guess I felt less of a cancer patient.  But one day looking at my battle scars (my mastectomy scars and reconstruction scars) it hit me.  I won.  I am a survivor because I didn't let this break me.  It changed me into a stronger woman who is no longer content to blend into the background.  The tears will come and go but you must take the time you need to heal.  There are no handouts or manuals on how you should feel.  Everyone is different but you will find your strength.

Good luck to you.  Remember we are here for you as well.

Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




Ree T
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Re:And Life Goes ON: Daily Support - Friday, May 22, 2015 12:18 PM
Thanks for those words of encouragement. All I can do now is cry, which I didn't much allow myself to do. Guess I'm learning new things about myself. It's ok for me to be human. What a thought!
Ree, Aurora, CO, Age 65
Invasive ductal carcinoma, left breast
ER+, PgR+, HER2 by IHC Negative, Stage I
Bilateral Mastectomy 3/20/15
Cancer found in right breast after surgery

Nodes clear, clear margins

princess
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Re:And Life Goes ON: Daily Support - Wednesday, October 26, 2016 9:54 AM

I know exactly how you feel..I don't know who I am anymore. The woman I was is no longer here. Cant wear the clothes I use to wear.


Tricia Keegan
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Re:And Life Goes ON: Daily Support - Wednesday, October 26, 2016 3:17 PM
Princess the site is quiet of late but you can chat to lots of others in a similar situation on our Facebook group here https://www.facebook.com/groups/1588741974737166/
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

nuzzysnana
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Re:And Life Goes ON: Daily Support - Thursday, December 21, 2017 12:46 AM
I have not been a visitor to this site for quite a while now. But at one time I was a "regular". I just want to touch base with the 
old-timers who might remember me and to let them know that I am still kicking. And I also want to give encouragement to those of you more recently diagnosed. My screen name is Nuzzysnana and I have been cancer free since 2005. I am a prevailor of Stage 1, Grade 3, Triple Negative and a BRCA carrier. 

My message to all of you still in treatment is: you can do this! 
Diagnosed in 2005 at age 69 Two Centimeter IDC, Stage 1, Grade 3, Lumpectomy, Dose dense chemo, radiation. No family history. Tested positive for BRCA2 in 2007 Who knew?

Tricia Keegan
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Re:And Life Goes ON: Daily Support - Monday, December 25, 2017 4:43 PM
Hi NN,
 
So glad to see you still alive and kicking and glad to say I am too.:)  The site is very quiet since we set up the Facebook closed group which is keeping me very busy indeed. A lot of the people you knew are on there although I'm sad to say we just heard that Deborah Weaver passed on in the past few weeks, she had other medical issue's as well as bone mets sadly.  Deborah moderated this site along with me for a while you may recall and lived in New Mexico and will be missed. It's good to hear from you and hope you have a happy and healthy New Year. xx
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

nuzzysnana
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Re:And Life Goes ON: Daily Support - Wednesday, December 27, 2017 11:25 PM
I am not a user of Facebook. To me, it seems so intrusive and the people who operate it think they have a right to do whatever they decide to do with it. I guess that is their choice. How would I go about setting myself up on the "closed" site? Do I have to become a member and provide Facebook with all kinds of personal info so they can take control of my life and, instead of being a convenience they end up becoming a nuisance.

HAPPY NEW YEAR!!!!!!!!!!!!!!!!!


Diagnosed in 2005 at age 69 Two Centimeter IDC, Stage 1, Grade 3, Lumpectomy, Dose dense chemo, radiation. No family history. Tested positive for BRCA2 in 2007 Who knew?

Tricia Keegan
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Re:And Life Goes ON: Daily Support - Thursday, December 28, 2017 9:48 AM
Hi NN,

My hubby feels the same way about Facebook so I do understand. I'm really not sure if you have to join FB to access the group (which is a closed group so only the people within the group see this what is posted) but I'll post the link here just in case you can simply go to FB and see if it loads. Once on the page just ask to join and I'll add you straight away.   

This is the link https://www.facebook.com/groups/1588741974737166/

If that doesn't work I check back here regularly too but it would be nice to have you as a member there. In the meanwhile Happy New Year to you and here's hoping for good health and peace of mind
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Tricia Keegan
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Re:And Life Goes ON: Daily Support - Thursday, December 28, 2017 9:50 AM
P.S If the link doesn't load for you just copy and paste it in to your browser.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

scootersmom
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Re:And Life Goes ON: Daily Support - Thursday, January 11, 2018 8:53 PM
Hi NN:

I remember you helping me along my journey.  I still check in also and do see many of the others on Facebook.  There are others that I have not seen and wonder about.  I thank you for your support during my time with the unknown.

Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




Tricia Keegan
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Re:And Life Goes ON: Daily Support - Friday, January 12, 2018 10:03 AM
Hi Tina, nice to see you checking in too, NN still looks in too but I think most people just use FB now.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

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