And Life Goes ON: Daily Support

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chelmsing
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Re:And Life Goes ON: Daily Support - Wednesday, April 04, 2012 8:18 PM
Tricia - I was thinking of scrabble too. 

It sounds very different from the electronic version that I play, when you need to match up the tiles to remove them from the board, and can only be removed if they are on an edge with no tiles on either the right or left.  I'm familiar with the tiles as they use similar ones in the electronic version.  I spent an hour playing it on my ipod on Monday, waiting for my lab and then onc visit.

Sharon - my husband has played Catan a couple times.  They have many different versions of it in the game store here too.

Cathy
dx 10/28/10, 11/11/10 lumpectomy, 11/24/10 re-excision of margins, 1/17/11 mastectomy
er+/pr+, 2.4 cm tumor & DCIS
2/14/11 4x dose dense AC followed by 4x Taxol
No rads
7/22/11 DIEP reconstruction for right breast

annette53160
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Re:And Life Goes ON: Daily Support - Thursday, April 05, 2012 11:28 AM
I am the Debbie Downer for the day...sorry ladies.  Does life really go on after bc or do we just exist as best as possible?   I am recovering from trigger finger surgery(very minor really) due to the femara.  Faced with job loss(not because of bc) and don't have the stamina or energy to put 110% into a new job because of bc.   My physical presentation is not the greatest due to weight gain from femara(bc again).  Feel like I will be a bag lady pushing the shopping cart around.  So sick of starting over and struggling.  I know there are no guarantees in life and that things change......but geeze...wish I could catch a break. 
<message edited by annette53160 on Thursday, April 05, 2012 11:29 AM>
IDC October 2009
Lumpectomy x2 to get clear margins
Stage 2a Grade 3
1/11 nodes positive 
er+
4 DD A/C
12 Taxol
Radiation
Femara

Army Mom
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Re:And Life Goes ON: Daily Support - Thursday, April 05, 2012 11:51 AM
Hi ladies,

 Great forum and something we needed. I think all of us can understand what each is going through even though no breast cancers are the same. It does seem like it never ends and is one thing after another. Since BC I now have stage 3 liver fibrosis, possibly from the Tamoxafen. scheduled to have ovaries removed in May. Follow up with my Rheumy doctor this week. No lupus even though ANA is elevated. I do have arthritis just about everywhere and also found out I have Psoriatic (sp) arthritis. On a sulfer drug due to I am limited as to what meds I can take due to liver issues. Also on a muscle relaxer, small dose of pred as well.
I am trying to be active but it is so hard when you hurt everywhere. I know if I veg up I will become a veg permantly. This weekend going to a dog show, showing my corgis and my friend is going to show my old Am Staff for me. (Can't show the big dogs right now). <sigh>  I take it day to day, I will not give up no matter how hard it gets.

Grace
Grace 

Lumpectomy June 18,2009
4 rounds T/C DONE !
33 rounds of rads DONE !!
1 yr of Herceptin - DONE  !!!
2 yrs Tamoxafen/ taken off due to elevated liver enzymes.
oophorectomy 05/2012

March 27,2015 DX right breast
Lumpectomy April 16th 2015
To start chemo soon

54 years young  :)
Mother of 2 sons in US Army
Wife of wonderful husband
and of course I am now.
KOMAN STRONG  :)



scootersmom
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Re:And Life Goes ON: Daily Support - Thursday, April 05, 2012 1:09 PM
Annette: Sorry for everything that you are going through right now. Interesting question though. You exist only if you go through the motions without any thought or satisfaction. You live when you can find a little happiness or satisfaction in the smallest of things. Therefore, I think that we are all living life to the best of our ability and doing our damn best to conquer the obstacles in our way. Grace: Good luck with the dog show.
Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




ElaineQW
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Re:And Life Goes ON: Daily Support - Thursday, April 05, 2012 2:37 PM
Grace:  Good luck and good fun at the dog show :)

Tina:  Have fun in Las Vegas and if you gamble I hope you win big!

Annette:  I'm so sorry you're feeling so down and I understand that you're sick and tired of it all.  I think though that you've bee through hard times in life and have always come out on top.  So I'm pretty sure you will do the same again.  One thing at a time....  

Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






scootersmom
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Re:And Life Goes ON: Daily Support - Thursday, April 05, 2012 9:35 PM
Thanks Elaine.  I am hoping to have better luck in Vegas than I did with the Mega Millions.  Either way, getting away from the people I work with is going to be wonderful.
Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




Rena
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Re:And Life Goes ON: Daily Support - Friday, April 06, 2012 8:58 AM
Annette and Grace, I'm sorry that you are both feeling overwhelmed right now. You both have strong spirits that will help you through these harder times. Hugs to you both.
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Tricia Keegan
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Re:And Life Goes ON: Daily Support - Friday, April 06, 2012 12:55 PM
Annette tomorrow's another day and its okay to feel bad some days so be kind to yourself, life will get better and you've just had surgery so give yourself a break!Pals
 
Grace I'm sorry you're going through so much too and hope the dog show will raise your spirits so good luck!
 
Tina here's hoping for a big win for you!!
 
Happy Easter to everyone and enjoy that chocolate ladies its good for you!!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

scootersmom
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Re:And Life Goes ON: Daily Support - Friday, April 06, 2012 1:28 PM
Happy Easter to all who observe it. For those celebrating Passover, happy holiday to you as well. Thanks Tricia. If I do win anything big, I'll be sure to let everyone know. (yeah, like I'll hit the big one playing low denomination machines). lol
Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




SKalsta
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Re:And Life Goes ON: Daily Support - Monday, April 09, 2012 11:24 AM
It has been a long time since I posted on this site. My, have I had some issues. Some normal and some not so normal. I completed my 33 treatments of radiology with the last 5 being the boost. I was severely burned in 3 areas and the rest of the area was as expected with moderate to severe burns. 8 days after my last treatment, my incisions split open again. I had this issue after surgery but this time it was caused from radiation. So, I really felt like I was in deja vu. Here we go again. I am expected to heal from the inside out as before and it will take approx 4-8 weeks to heal. If for some reason I do not heal, then I would need some kind of graft performed to close up the wound. On top of that, my under lying issue of A/S (Anklosing Spondylitis)is flaring up and what they are calling severe complications due to post-chemo - A/S. I completed chemo on Nov 30 and completed Radiation on March 5. Fortunately, I do not have any infections going on, but BP has dropped to all time low, low grade fever, chills, elevated ESR, CRP, kidneys started to go out of wack, decreased RBC and H&H. At the moment, I have 5 doctors all looking at me and trying to figure out what is going on. No Cancer, but sure feels like I am reliving the moments when I was first diagnosed. I had lab tests performed every day last week. I have had a biopsy performed and other tests. Hoping just to find the cause or at least get things straightened out. Some days I feel like Why me? Can't I catch a break at some point? But, it is what it is and I have to accept the cards that are dealt to me. Having a place to just scream for a second or minute is great. Because when I am done, I can pick up and move on. Women are tough, and we are faced with so many stresses that I feel that men are not. When a man multi-tasks they get a pat on the back. But when a woman does not multi-task she is ridiculed. I guess that is what makes us tough. And you add the layer of cancer on top of that. I am just rambling on and on.
Sue K
Invasive Ductal Carcinona
Diagnosed 7/1/2011
Stage III Grade 2
Tumor Size 6cm
2+/18 nodes
ER+/PR+
HER2 Negative
7/28/2011 - Right Modified Mastectomy w/ lymph nodes removed.  Left Prophylactic Mastectomy
Not a candidate for reconstructive surgery. 
Chemo 5 out 8 completed.
Radiation completed.
Lymphedema and scar tissue issues

ElaineQW
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Re:And Life Goes ON: Daily Support - Monday, April 09, 2012 1:26 PM
Oh shit Sue!  I'm so sorry about your problems with surgery, radiation, and the AS.  But you have an amazing attitude!  YES, you will move on when this is done and it WILL be done..

I think you'll agree wit the quote in my signature :)

Hug
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






SKalsta
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Re:And Life Goes ON: Daily Support - Monday, April 09, 2012 3:32 PM
Thanks Elaine - Great signature and statement and YES, I agree 100%. And thanks for letting me vent. I was rambling, and only gave some of the issues - but ATTITUDE is so much a part of recovery and survival. But once in awhile, we are entitled to let down our guard and scream for just a few minutes. Then we pull up our boot straps and march on.
Sue K
Invasive Ductal Carcinona
Diagnosed 7/1/2011
Stage III Grade 2
Tumor Size 6cm
2+/18 nodes
ER+/PR+
HER2 Negative
7/28/2011 - Right Modified Mastectomy w/ lymph nodes removed.  Left Prophylactic Mastectomy
Not a candidate for reconstructive surgery. 
Chemo 5 out 8 completed.
Radiation completed.
Lymphedema and scar tissue issues

ElaineQW
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Re:And Life Goes ON: Daily Support - Monday, April 09, 2012 6:34 PM
Sue - You're right again!  Letting go and crashing sometimes is part of being strong!

Hug
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Rose Cafe523
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Re:And Life Goes ON: Daily Support - Monday, April 09, 2012 9:27 PM
Sue K ,
   Glad they are keeping a close eye on you and what is going on to figure it all out.  Most likely all your labs are off due to the burns from radiation but they need to watch you closely for any infections.  So let the multiple doctors figure it out as long as there is ONE that is overlooking all of it. 
Rose
 Pink Impacts Forever
5-23-06 DCIS High Grade
Strong family history BC/OVCA
denied(lost appeals)out of network surgery
10-30-06 BM SICA left,DIEP right
Nodes Neg No chemo or rads 
Revisions along with LAVH/BSO/TVT 1-23-08
Biopsies x 3 10/20/08,neg
Bone scan 2/23/11 spot on R frontal and occiptal bone
PET/CT scan 3/4/11 negative

Army Mom
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Re:And Life Goes ON: Daily Support - Thursday, April 12, 2012 11:19 AM

To all you gals having issues. It is so hard sometimes but know we are all here for you.

I had a wonderful time at the dog show this weekend but have been paying dearly for it since Sun night when I got home. I am hurting so bad. ankles and feet very swollen and hands hurting. No doubt from the arthritis flaring up.  I also started taking a very small dose of pred along with the other meds. Hopefully it will help ease some of this pain.             
Grace 

Lumpectomy June 18,2009
4 rounds T/C DONE !
33 rounds of rads DONE !!
1 yr of Herceptin - DONE  !!!
2 yrs Tamoxafen/ taken off due to elevated liver enzymes.
oophorectomy 05/2012

March 27,2015 DX right breast
Lumpectomy April 16th 2015
To start chemo soon

54 years young  :)
Mother of 2 sons in US Army
Wife of wonderful husband
and of course I am now.
KOMAN STRONG  :)



JulieS
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Re:And Life Goes ON: Daily Support - Thursday, April 12, 2012 1:20 PM
Grace, Glad to hear you had a nice time, even though the payback sucks. At least while you are sitting nursing your feet and hands you have some good memories to review. Do take care of yourself! Hope you are feeling better soon. Sue, That is what is so wonderful about this group....we all have bad days (weeks) and it does help so much to have a place to vent to those that understand and care. Hope you are feeling better. Hope and strength, Julie PS Hoping this will post with paragraphs and not all run together!
Bothell, WA
dx 5/07 IDC
lumpectomy 6/14/07 1.5cm
er/pr + Nodes negative
finished rads 9/13
Tamoxfen 9/07- 8/09
Arimidex 8/09-

DJ64
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Re:And Life Goes ON: Daily Support - Thursday, April 12, 2012 3:39 PM

Grace,

I have osteoarthritis everywhere too.  PTTD ankle, bone spurs behind my knees and etc.  I wear compression socks.  They help a lot in keeping the swelling down.  I bought a couple of pairs at the medical store (didn't like them all that well) but, the Walmart one's are great.  I really love those.  Though I don't enjoy giving Walmart any publicity.  They are about half the price too. 

You might try a pair and see if it helps with your feet.    

DJ
"Prepared for the worst, hope for the best and, live each day to the hilt"


Stage IV  lungs, lining, ribs, left scapula and left clavicle - Used all the hormonal drugs - tamoxifen, arimidex,  , Faslodex 250 mg,  femara, , drug break using own estrogen (progression in 7 months), rebooted femara (progression on next scan) Faslodex 500 mg ended 18 1/2 years on hormonal therapies - 2013,  Taxol - 2014 now on Doxil. 

Rose Cafe523
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Re:And Life Goes ON: Daily Support - Friday, April 13, 2012 10:20 PM
Grace,  Sounds like you had such a fantastic time with friends, pride with the showing of your dog and made it through it although suffering with the aches and pains.  Man, it is heck to get older isn't it?!!!  I have had surgery on both hips now for torn tendons and still toss and turn at night with being uncomfortable.  I work in a job with lifting and know my lower back along with many other areas are showing issues of joint disease issues.  worry sometimes about all the ibuprofen I take and try to cut back.  But~~ keep hanging in there. 
   I wish I had more freinds to do things with though.  Have to find a way to figure that one out cuz I know it is very important as we age and live alone.  
   So glad there is the internet now, it helps with not feeling quite so alone.  I have children, but need friends my own age without that responsibility of caregiving.  I do that toooooo much!!
Rose
 Pink Impacts Forever
5-23-06 DCIS High Grade
Strong family history BC/OVCA
denied(lost appeals)out of network surgery
10-30-06 BM SICA left,DIEP right
Nodes Neg No chemo or rads 
Revisions along with LAVH/BSO/TVT 1-23-08
Biopsies x 3 10/20/08,neg
Bone scan 2/23/11 spot on R frontal and occiptal bone
PET/CT scan 3/4/11 negative

JoGrif316
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Re:And Life Goes ON: Daily Support - Saturday, April 14, 2012 3:42 PM
Sue****so sorry you are having so many issues--sometimes it does feel like we can never get a break. I was burned very badly with the radiation also, and have permanent scars over about a 3rd of my breast. It used to bother me a lot because it shows if I wear even a moderate v-neck. But then I found Dermablend and fix myself up before I go out!***We all do what we have to do.***I never thought I'd actually ASK for a hysterectomy, but after 4 years of Tamoxifen induced issues, I did. It's great to have that behind me.****I actually don't anticipate any doctors appointments this year, other than meeting my new primary care physician and having a mammogram!!!!!****It took 7 long years, but I guess I can say, I'm back to almost normal.....hang in there.**** Joyce
Portland, OR. DX: 6/09/05 IDC lb Age: 54 PR/HR+ Her- Lumpectomy/SNB 6/22/05 Nodes Neg! 33X Rads Comp 10/12/05 Tamoxifen: '05-'10 PT for lymphydema in breast '06 BRCA Neg 7/08! Tamoxifen induced uterine issues '07-'11 Total LA hysterectomy 12/11

farla
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Re:And Life Goes ON: Daily Support - Saturday, April 14, 2012 11:13 PM
Oh hey gals. Sorry I haven't been around lately. We had our Passover (had 29 and then 27 people over for the dinners) and then rushed right out for the old college tours with kid #3. Had to drop off kids #1 here, kid #2 there, got to Baltimore at 3 AM. Saw a few schools, flew to Atlanta (Emory) flew back, just in time for the end of the holiday. Just now got my house in order. Flew without that sleeve - just forgot all about it until my elbow started feeling funky and then oh damn damn! But I think I'm OK. So - to get back on track - 1) Real (American or Jewish) mah jongg is like gin rummy except you have a card that tells you what hands you can go for. You know, pick a tile, do you need it? Toss a tile. The online versions are just solitaire. Annette - oh baby, I know it is hard, this never goes away, but you have come so far, we've been on this road, what, 2 years? You can do it, just keep trying. And Grace - yep - sometimes it feels like it is one thing after another. But you are lucky to have the dogs in your life - an interest is something helps keep people lively and I bet there is some study somewhere that shows that people who are actively involved in things live longer. Sue - oh ouch ouch - just hearing what you are going through - but it is not cancer! Yippee! oh, come on, stop rolling your eyes at me - I'm serious! You can survive this, I know I can survive anything, just anything as long as that beast doesn't come near me. Elaine - I love you saying after your signature. And I CANNOT believe that I had enough memory to do all that, OH!! HAPPY EASTER to everyone who celebrates it.
Farla
dx 8/09, R double lumpectomy, invasive mixed DCIS/LCIS
ER + PR + Her -
1/3 Sentinel pos. 1/15 nodes pos
 Stage 2A  Grade 2, Nottingham 6
chemo A/C x4, Taxol x 4 started 9/21/09 DONE!!!
femara  started 2/5/10
rads  2/8/10 DONE!!!
Now - osteoporosis?  Vit D, calcium, and a baby aspirin to boot!

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