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 Stage iv?? This thread is for you!
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Kaityf

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Re:Stage iv?? This thread is for you! - Wednesday, March 12, 2014 9:06 PM
Thanks, Tricia. I am trying. I did find breastcancer.org, and posted on the Stage IV forum there. I learned some things, but I was getting a little uncomfortable because some people were telling me not to trust my doctor, but get second opinions. I was also told that chemo isn't the best option for Stage IV bone mets. I started thinking everything being done for me was wrong.

I found this forum and thought maybe I should get some second opinions here! Lol. Yes, I have a positive attitude. My philosophy is to worry about only what you know and can do something about. I didn't worry about mets until I knew I had it. Now I don't worry about what it will do to me because there is nothing I can do to get rid of it. I just want the best plan of attack because that IS something I can do something about.

I don't ask "Why me?" I answer that question with "Why not me?" We all have to die sometime from something. As I said, though, I'm 67 and have had a good life. I am sure I would have a much, much different reaction if I were young just starting out in life and/or I had small children. My heart goes out to women in that situation.

I also approach life with humor. Without it, life is so much harder. Laughter is the best medicine, they say, and I love to laugh. When I first was diagnosed with breast cancer, some of my friends didn't like my jokes. They were concerned for me, which I appreciate, but I wanted them to laugh with me.

When I told my 24-year-old son that I had breast cancer that had spread to my lungs, I could see from his face that he didn't know how to react. I could see that he was upset, but I could see a flash of anger. He didn't know what to say. So I told him that I was making jokes that my friends didn't seem to appreciate. My son and I have the exact same sense of humor. After a bit, he said, "Wait...your cancer spread to your bones?" I said, "Yes." He said, "And the doctors don't find that humerus?"

I thought that was hilarious. The cancer is in my shoulder and neck, not my arm, but it was still funny. And it helped my son know that it was okay and that he could talk to me about it without feeling uncomfortable or stressed out.
DJ64

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Re:Stage iv?? This thread is for you! - Tuesday, March 18, 2014 3:19 PM
Hi,

I'm 67 yrs young with mets to ribs, both lungs and pleura (lining around the lungs)  I was dx in 1994, my recurrence in the axilla while on Tamoxifen was in 1999 and the ribs 2001, I went on Arimidex.  In 2008, it was found in lungs and pleura and went on Faslodex 250 mg (1 shot) then Femera (3 years) Faslodex 500 mg 1 year and been on Taxol for 1 year having run out of hormonal therapy.  I still have Aromasin but it is do close to Femera and my oncologist thought the cancer knew how to stop the hormonal drug therapy.   Hope that helps.

DJ
"Prepared for the worst, hope for the best and, live each day to the hilt"


Stage IV  lungs, lining, ribs, left scapula and left clavicle - Used all the hormonal drugs - tamoxifen, arimidex,  , Faslodex 250 mg,  femara, , drug break using own estrogen (progression in 7 months), rebooted femara (progression on next scan) Faslodex 500 mg ended 18 1/2 years on hormonal therapies - 2013,  Taxol - 2014 now on Doxil. 
Kaityf

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Re:Stage iv?? This thread is for you! - Wednesday, March 19, 2014 2:20 PM
Hi DJ. You have been fighting this disease for a long time. I'm glad to see you are still kicking. I hope I manage to keep going as long as you have. I'd like to see my son graduate from college, get a job, get married, and be settled before I go. But I'm happy that I got to see him grow up.

I'm actually amazed at the progress we've made in treating cancer. Now if only we could just cure the monster! I imagine I'm going to be learning a lot about all these different drugs in the next few years.
Tricia Keegan

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Re:Stage iv?? This thread is for you! - Wednesday, March 19, 2014 4:04 PM
So true Kaity and I'm guessing you'll become an expert like most of us over the following months!!:)  On a positive note though you do meet some amazing people by having this disease and I'm thankful cancer has at least given me a few very close friends I never otherwise would have met.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
jeanmac

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Re:Stage iv?? This thread is for you! - Sunday, April 13, 2014 4:16 PM
Dear Michele I am new to this forum, joined about a month ago. I am newly diagnosed in Feb 2014, and it was just confirmed I am already stage 4, bone mets to spine. I am not sure how uncommon this is, to be stage 4 at diagnosis. My tumor was triple positive, lumpectomy had clear margins, and no positive lymph nodes! How can I be stage 4? An aggressive grade, grade 3. I need support, I am still processing all of this. this website is so supportive, I already love you Trish! Each time I feel the anxiety bubbling up, I come here and get some hope. I will begin treatment next week, after trying to get a 2nd opinion about treatment, and learning if there is a clinical trial out there for me. I would love support from you, Michele and anyone else out there who is stage 4! As I progress on my journey, I will try to offer any support I can, as well. I think this week I will seek some counseling, my emotional health really needs some TLC. thanks to all of you out there! Love, Jean
Tricia Keegan

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Re:Stage iv?? This thread is for you! - Sunday, April 13, 2014 4:26 PM
Jean thank you, love you too and would love to help if possible, do check the link on the other thread you posted as I replied to you there. I'M sure we can all help you though this and with a good response you'll be passing on advice to others before you know it:) It sounds like you are getting the best treatment for your dx to me, hang in there and know there are many here to support and help you and you're not alone.

Please feel free too to send me a pm although you need to allow for the time difference if I don't reply quickly, holding good thoughts for you!!  (((hugs))))
<message edited by Tricia Keegan on Sunday, April 13, 2014 4:29 PM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
AZGal

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Re:Stage iv?? This thread is for you! - Saturday, May 03, 2014 2:02 PM
Well, here I am.  It's hard to believe that I'm Stage IV.  My lobular carcinoma has progressed into the dermis of my skin and now, I have malignant pleural effusion.  I think I'm still a little stunned.  Don't know what to think. Thank heavens, I don't feel particularly bad right now...a little fatigued but that seems to be a common side effect of the chemo I'm on.   Hoping that it will stop this in it's tracks.  
  
<message edited by AZGal on Saturday, May 03, 2014 2:07 PM>
Shirley age 67, AZ
Lt idc lumpectomy, chemo & radiation 2003
ER+, Tamoxifen
Rt ilc, ER+ 09/26/08
BM 10/30/08 w/reconstruction
No chemo, no rad, Femara
Recurrence Rt breast, surgery 09/21/2011
Chemo, radiation, Faslodex
Recurrence Rt breast, surgery 05/30/2012
Recurrence Rt Breast, Latissimus Flap 10/2012
rad. Dec 2012, Aromasin
Recurrence May 2013, chemo Taxotere,
Oct 2013 Gemzar, Alleric reaction, Apr 2014 Afinator
Apr 2014 Mali
Tricia Keegan

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Re:Stage iv?? This thread is for you! - Saturday, May 03, 2014 5:30 PM
Oh Shirley I really am sorry for this recurrance and you've been through a lot already, I of course remember you posting in the past and sad you're back with this sad news. 

On a positive note its good to know you're well apart from the fatigue which I suffered from a lot too, all you can do is listen to your body and rest as often as you need to. What chemo are you on??  I assume they've tested the mets to see if the her2 or hormone status has changed at all??

I'm sorry this forum (and the message boards) are fairly quiet these days which is probably a good thing I suppose, if you don't get many replies here do post on sound off and check www.breastcancer.org if researching, sending good wishes and I hope you'll keep us posted. 
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
GodsGirl

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Re:Stage iv?? This thread is for you! - Sunday, May 04, 2014 6:05 PM
Just wanted to say hello and wish you the best of luck and health.  I too had no health issues, worked out regularly, ate very carefully and even quit smoking.  Both sides of my family have heart disease, high blood pressure, diabetes and high cholesterol.  I was expecting to get one of these eventually but have been blessed not to.  Needless to say when I was diagnosed with stage 4 breast to bone I was in disbelief.  Funny thing is I never had a moment of breaking down and it has been 5 months.  I have a strong relationship with the Lord but I am sure that eventually all of this will hit me as real.  My pain is everywhere and constant but I press on because I feel blessed to have time and an excellent Oncologist Dr. William McNulty.  If I can be an ear for you please let me know.  BTW I just turned 51, have 2 grown sons and an awesome granddaughter with whom I am very close and would like to see her grow up and get married.  She is 15 and is very involved with my cancer treatment and all the information she can get her hands on.  I will be praying for you and for good results.
Robyn
nikkiw1973

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Re:Stage iv?? This thread is for you! - Monday, May 05, 2014 10:08 AM
Hello all. New to this. 40, diagnosed stage IV on march 5, 2014. Went to hospital for breathing problems for what i thought was pneumonia and after many tests, was told that breast cancer had spread to lungs, spine and ovaries. I am learning the terminology so forgive me. HER2 positive. Positive for estrogen and progesterone. I am on tamoxifen and have been on it for about a month and a half. I start herceptin on May 8th. Have been trying to be positive but depression has started creeping in.
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