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 Stage iv?? This thread is for you!
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ElaineQW

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Re:Stage iv?? This thread is for you! - Friday, July 25, 2014 6:27 PM
Thank you Tricia!
Hug
E
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 





Krisynicole82

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Re:Stage iv?? This thread is for you! - Friday, July 25, 2014 9:00 PM
My Mawmaw was just diagnosed with stage 4 breast cancer. It has mets to her spine and liver. She also has a fracture on her c-spine which may need to be addressed before the chemo. I'm searching for support and answers regarding this BC I don't want her to go. Is there hope at stage 4? 
Tricia Keegan

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Re:Stage iv?? This thread is for you! - Saturday, July 26, 2014 6:28 AM
Hi, I'm so sorry your family are facing this, stage iv is serious of course but with a good response to chemo its still possible to get back to NED (no evidence of disease) does your GrandMother have a treatment plan as yet?
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Luckycat

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Re:Stage iv?? This thread is for you! - Monday, August 04, 2014 2:11 AM
I don't know if anyone with triple negative  breast cancer that has metastasized to the lungs and neck has had any luck with cannabis oil either with or without chemo. My mom has been diagnosed with this after being diagnosed with stage 2B triple neg BC in 2007. We are looking at all alternatives and she wants to know if anyone out there felt like they were desperate to live and was willing to try anything and if so, was it the oil and how did it work for you?
Any feedback will be much appreciated.
Tricia Keegan

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Re:Stage iv?? This thread is for you! - Monday, August 04, 2014 5:20 AM
Hi Luckycat,

As far as I'm aware the cannabis oil only helps with side effects rather than heals but I hope your Mom has a good response to the chemo, you could also try looking at www.breastcancer.org as you may learn something to help there.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
suz777

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Re:Stage iv?? This thread is for you! - Friday, August 15, 2014 9:23 PM
Little update: My oncologist is switching me from Faslodex to Aromasin. Hopefully I'll get a nice little run on this med now. All additional scans showed mets in boney areas; no organs (more boney areas than I like, but I'll still take it as good news, all things considered!) 3 more rads left to L5... :-) Suzanne
Tricia Keegan

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Re:Stage iv?? This thread is for you! - Saturday, August 16, 2014 6:07 AM
Thanks for the update Suzz and hoping you get a good response with the Aromasin.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Marcia Louise

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Re:Stage iv?? This thread is for you! - Saturday, August 30, 2014 2:21 PM
Hello there. I'm brand new here, forgive me if I'm doing this wrong. I just very recently got my 5th chemo infusion. After my next one I'm having testing done to see how my treatment is going. As far as I know, at that point (assuming all goes as planned) I'm to go on a hormone maintenance pill. I was under the impression that there was only one pill and either my body would respond to it or not. I see by reading through these posts that there are more options for therapies out there. I guess my oncologist forgot to mention that. I will be for sure asking about it when I see her next. 
Anyway, I do find all of your posts very uplifting and inspiring, so I wanted to introduce myself. I think I will need this support more and more in the future. Thank you so much for reading my post, and if anyone wants to reply with encouragement that would be greatly appreciated. Have a great day.
Stage lV advanced BC. ER+/PR+/HER2-/ mets to nodes traveling up neck. Dx in April, 2014. Previously on Taxol. Currently taking Arimidex.
Tricia Keegan

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Re:Stage iv?? This thread is for you! - Saturday, August 30, 2014 3:00 PM
Hi Marcia Louise and welcome,

I'm sorry you had to join us though, this thread is often quiet these days and most people tend to post just on the Sound off forum so don't worry if you don't get many replies but feel free to post anywhere.  

There are a few different hormone therapy pills, generally Tamoxifen is given to people who are pre menopausal although not always, Arimidex and Femara are sister drugs usually given to post menopausal women and I took Arimidex for eight years and just stopped this summer. Aromasin is another that works a little differently and Faslodex is usually given to anyone stage iv so hope this helps. 

Hopefully you've had a good response to the Taxol and if researching stick to reputable sites like www.breastcancer.org  and please keep us posted on how you get on.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
ElizWhitney

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Re:Stage iv?? This thread is for you! - Friday, September 05, 2014 9:16 PM
My sister, Marilyn, has Stage IV mets, and was diagnosed in April 2013.  She was in remission for seven years and then the cancer came back with a vengeance.  Marilyn has cancer in her liver, lungs, lymph, spine, bones, brain and bloodstream. After being diagnosed in April 2013, she underwent brain surgery to remove a large but superficial tumor, and then ten days later had CyberKnife radiation therapy for the large tumor on her spine at T2, and then Tomotherapy radiation for the large tumor on her spine at T7.  A few weeks later she had Gamma Knife radiation on her brain. The docs tried immunotherapy for the first six months and that didn't help, so they put her on chemo.

Over the last year, Marilyn has been on three different kinds of chemo, which helped in some areas but not others.  Her last CT scan revealed two new tumors in her brain, which were treated by CyberKnife therapy this past Wednesday. The week prior, Marilyn had a PET scan which revealed more legions on her liver and lymph but there was some improvement in the bones.

The reason I am writing is because I am having a hard time coping and would sincerely appreciate your advice, if you are willing to share.

The issue for me right now is that my sister has been distant since our father died of colon cancer in 2002. We used to be very close but after dad passed, and after Marilyn was initially diagnosed with breast cancer in 2007, she began distancing herself from me.  My mother and I thought it was because I had four children and Marilyn could not have any children after chemo triggered menopause.  While my sister kept a very close relationship with my children, she has completely cut me out of her life.

Our mother has been battling bladder cancer and had four surgeries last year, and is now in remission. At a time when you might think this would bring Marilyn and I closer together, she became even more distant and verbally absuive.  This was just before she was diagnosed with Stage IV mets in April of 2013.

Since Marilyn was diagnosed with mets last year... she wants nothing to do with me at all. She won't speak to me, won't allow me to visit her in the hospital or support her in any way.  Marilyn and her husband Kim were blessed with two beautiful boys they adopted at birth, Robert age 7 and Emerson age 5. Marilyn will not allow me to have a relationship with her boys either, even though she sees my children frequently.

My mother is caught in the middle and is afraid to talk to Marilyn about restoring our relationship because Marilyn might cut her out the way she did with me. She wants to be there for Marilyn and is with her as often as Marilyn needs her to be.

You should know that we also lost a brother at the age of 18, Robb was his name. He died suddenly from a brain aneurysm.  Marilyn was 15 and I was 14 years old.

I am really struggling right now because there is a high probability that I will lose both my mother and sister in the next five years (mom is 82 yrs old).  With my dad and brother gone, and then my sister and mother pass... I honestly don't know how I will manage to survive. 

There are no words to describe the pain I'm feeling. I feel so bad, and guilty, that my sister is harboring bitterness toward me. I want her to be able to let that go and allow me to love her, and be there to support her in any way possible. The negative energy she is holding onto is not helping her medical condition and I feel responsible. I also feel horrible that I'm not there to love and support her.  If she dies with hatred in her heart toward me... I will have to live with that the rest of my life. Knowing that I contributed to her pain... I don't know if I can live with that. 

Then there's a part of me that's angry because Marilyn and I could be spending time together, and it's such a waste of precious time for her to be angry at me... and for what?

I feel so helpless but don't know who to reach out to because I don't want to make this about me.... my dear sister is the one who is battling cancer.

Do you have any advice for me?  Is there something I can do to help her understand how much i love her and want to be there for her?

I'm so sad.

Elizabeth


<message edited by ElizWhitney on Friday, September 05, 2014 9:22 PM>
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