Komen reunion!

Change Page: < 123456 > | Showing page 3 of 6, messages 41 to 60 of 107
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Rena
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Re:Komen reunion! - Sunday, April 07, 2013 12:36 PM
Hi everyone! It's so nice to see you all here. I found this site in 2005 when I was already 19 years out. I came here because my daughter was studying in Barcelona and had found a lump. Poor girl was running all over the city, trying to communicate with doctors who spoke only Catalan. She was due home in six weeks, and the doctor there said he was sure it was a cyst. I set her up with appts here, but those six weeks of waiting were awful--for both of us. When I logged on and told my history and what was happening with my daughter, the greeting I got was unreal! All these women, some of whom were in the midst of treatment and feeling like crap, rallied round to support me. I've never left. I admit that I'm not quite as active as I used to be, but I still hang around to give support when I can. I've often said how much I wish I'd had a site like this when I was diagnosed. These boards make going through cancer a much less lonely experience. I'm glad to hear that you're all doing well. Love, Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Nuzzys Nana
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Re:Komen reunion! - Sunday, April 07, 2013 6:34 PM
Ilene, It's great to know that I am not totally tech illiterate.
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

Ilene
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Re:Komen reunion! - Sunday, April 07, 2013 6:53 PM
LOL!  And I AM a techie, so that's really sayin' somethin'!
Ilene
Cali
Diag 1/2006, DCIS-left, IDC-right, ER+/PR+, Node Neg, Stage 1
Bilat Mast 2/2006
6 Rnds Chemo (FAC)
Right then Left exp infect/removed
Right lat dorsi 10/2006
Left lat dorsi 1/2007
EXCHANGE 4/23/2007!
On Tamoxifen since 2007 (on 10-yr cycle)

sharonma
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Re:Komen reunion! - Sunday, April 07, 2013 6:56 PM
hope lots of the oldies plan to stay around.  there are many newbies that need encouragement and a kind word.and.... and.. not enough of us left to answer all the pleas for an ear or shoulder to lean on!
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

bezerk
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Re:Komen reunion! - Sunday, April 07, 2013 7:18 PM
Wow isn't this place wonderful, so many sistas. Thanks Tricia great idea to do this and also thanks for all you help you and everyone...I am in this site for the long term...so cheers...break open a bottle of champagne and let's reunion!!!
50 yrs, Rt breast lump found 4/12/09 during shower. 5/7/09 Organs, bones & head clean. 5/8/09Bilateral Mastectomy/ skin sparing surgery, implantation of skin expanders, removal 3 lymph nodes,one pos., tumors 1.5 cms x 0.8 cms & 0.8 cms x 1 cm, one tumor surprise, hidden. DX:Mixed Lobular and ductal adenoca. rt breast with badly defined borders.
Est. Pos. nuc. ( +/+++) Prog pos. nuc. intense ( +++/+++) Her2- non-amplified, KI-67 pos. less than 30%

Tricia Keegan
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Re:Komen reunion! - Monday, April 08, 2013 1:41 AM
Thanks Bezerk and huge thanks to everyone who logged in and posted here, its great to see so many old names and to know everyone is doing well.:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Ilene
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Re:Komen reunion! - Monday, April 08, 2013 9:26 AM
Thank you, Tricia, for organizing the "reunion!"  Not only does it make us alumni (for lack of a better word) feel good, but I'm sure it is helpful to newbies to see that life continues.

Now that Nuzzy's Nana gave me that tip about easily navigating to recent posts, I'm going to try to check in more often so I can lend my support, encouragement, tips, co-miseration to the conversation.

Love you lots.  Next reunion should be in Ireland!
Ilene
Cali
Diag 1/2006, DCIS-left, IDC-right, ER+/PR+, Node Neg, Stage 1
Bilat Mast 2/2006
6 Rnds Chemo (FAC)
Right then Left exp infect/removed
Right lat dorsi 10/2006
Left lat dorsi 1/2007
EXCHANGE 4/23/2007!
On Tamoxifen since 2007 (on 10-yr cycle)

Tricia Keegan
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  • Location: Ireland
Re:Komen reunion! - Monday, April 08, 2013 9:36 AM
Now that WILL be a party Ilene!!!!:)love the avatar too btw!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

DJ64
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Re:Komen reunion! - Tuesday, April 09, 2013 11:40 AM
Hi,

At first I said, "I'm not an old timer" and then I figured well, maybe I've been around for a while now and am not a newbie.  I came on ready for a fight, I was angry, really angry at "cancer" but Tricia continue to stay with me.  She inquired if I was just going to come on every 6 months and be angry.  Anger phase has passed.  Mostly to tired these days for much of anything.  I start my 2nd cycle tomorrow and then we scan to see if Taxol is doing any good.

I'm 18 1/2 + years since diagnose with 18 doing only hormonal therapy drugs.  I still have Afinitor and Aromasin to keep me going after this chemo phase is finish.  Have to make sure those renegade cells have forgotten what hormonal drugs are before starting up again.  I've lost my hair for the first time.  Didn't on my first chemo back in 94/95.  Learning to like the hats and turbans.  I found it doesn't bother me as much as I thought it would.  I did have lovely thick hair and it took over 2 weeks to loose it all.  I still have a few hairs that sort stick right up in the air when I take my hat or turban off.  It reminds me of a cartoon character that stuck it's finger on a live wire.  Any way, it's not the worse thing and I save the cost of visiting my hairdresser.  Though she was so kind when I told her where I was.  We've been together long before the cancer experience began back in 1994.

It's a sad day for me.  My dad has been in Hospice for over a week. Today is the day they think my father will pass on, as major organs are now failing.  He is tough, I admire this.  He has been the "come back, kid" for so long.  He had so many health issues heart, two types of cancer, totally deaf, lost an eye and etc. and been a death's door so many times and always revived.  We don't expect that to happen today.  He has had a long, productive life nevertheless.  I am trying to remember all the good times and focus on the positive part of his life.  We don't live close and he ordered me stay with the treatments, so I am not there with my siblings.  We said all there was to say.  It's part of life...isn't it.  

I like coming here, made some good friends that I can count on support and occasionally I can help someone with their questions.  

So, I figure I'm part of the reunion, can't have champagne on Taxol but Ginger Ale is good too.
Thank you Tricia for all you do.

DJ
"Prepared for the worst, hope for the best and, live each day to the hilt"


Stage IV  lungs, lining, ribs, left scapula and left clavicle - Used all the hormonal drugs - tamoxifen, arimidex,  , Faslodex 250 mg,  femara, , drug break using own estrogen (progression in 7 months), rebooted femara (progression on next scan) Faslodex 500 mg ended 18 1/2 years on hormonal therapies - 2013,  Taxol - 2014 now on Doxil. 

California_Danielle
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Re:Komen reunion! - Tuesday, April 09, 2013 4:37 PM
Surprised I still remembered my login... I think I'll be a 9 yr survivor at the end of this year. Losing track...which is a fantastic thing!
39 years old
SIMI VALLEY, CA (Los Angeles area)
DCIS diag. 10/04, left breast mastectomy 12/04
ER/PR –, Her 2+, clear sentinel node, except one or two BAD micromets.
Did 6 rounds FEC chemo to insure those were gone, then 12 mos. of Herceptin.
8-year SURVIVOR...approaching 9 years since diagnosis!

Rena
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Re:Komen reunion! - Tuesday, April 09, 2013 6:05 PM
DJ, I'm so sorry about your father. What an act of love it was for him to tell you not to come but to stay home and take care of yourself. 

And of course you're part of the reunion--a very important part! You model the courage and persistence that we all hope we would have if we ever found ourselves in your situation. 

Sending you a big hug. Pals
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

scootersmom
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Re:Komen reunion! - Tuesday, April 09, 2013 8:25 PM
 I too am sorry about your dad.  It's tough I am sure for you not to be there with him and your family.  

Sending you a hug and a prayer.  Pals
Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




sharonma
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Re:Komen reunion! - Tuesday, April 09, 2013 8:35 PM
DJ,
I have been wondering about you.  
I too am so sorry about your Dad, and hope his death will come without pain and suffering.
I'm sure he knows you would be there if you could.   I will lift him up and hope that his suffering is minimal.  
Sending you strength for your fight.  PalsPals





dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

Ilene
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Re:Komen reunion! - Tuesday, April 09, 2013 8:35 PM
Omg, Danielle is attending our reunion!  You were one of the first sisters I 'met' when diagnosed in 2006! How have you been?  
Ilene
Cali
Diag 1/2006, DCIS-left, IDC-right, ER+/PR+, Node Neg, Stage 1
Bilat Mast 2/2006
6 Rnds Chemo (FAC)
Right then Left exp infect/removed
Right lat dorsi 10/2006
Left lat dorsi 1/2007
EXCHANGE 4/23/2007!
On Tamoxifen since 2007 (on 10-yr cycle)

Ilene
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Re:Komen reunion! - Tuesday, April 09, 2013 8:40 PM
DJ ... Just read your post.  So sorry about your dad, but he's right ... Keep fighting. It sounds like he has gained a lot of wisdom through his life and struggles.  I'm sure he know that you love him, even though you are not logistically close.  I hope his passing is peaceful and full of love, and that he will be able to order up miracles for his little girl so that your cancer disappears.

And, of COURSE you can come to our reunion!  I don't drink, so I will raise my glass of Ariel dealcholized champagne to your health and your dad's life!
Ilene
Cali
Diag 1/2006, DCIS-left, IDC-right, ER+/PR+, Node Neg, Stage 1
Bilat Mast 2/2006
6 Rnds Chemo (FAC)
Right then Left exp infect/removed
Right lat dorsi 10/2006
Left lat dorsi 1/2007
EXCHANGE 4/23/2007!
On Tamoxifen since 2007 (on 10-yr cycle)

Tricia Keegan
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  • Location: Ireland
Re:Komen reunion! - Wednesday, April 10, 2013 2:40 AM
DJ I'm so very sorry for your loss and I'm leaving for a hospital appt shortly but had to post a quick hi before I leave and will chat soon and will be thinking of you. ((((((hugs))))))))
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

ElaineQW
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Re:Komen reunion! - Wednesday, April 10, 2013 8:20 AM
DJ - I am sorry about your dad, but there's no question but that he would want you to keep fighting.  I hope his passing will be peaceful.  

Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






California_Danielle
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Re:Komen reunion! - Wednesday, April 10, 2013 10:37 AM
You're funny Ilene! I'm good. It got tough coming on here back in the day when I was trying really hard to move forward. I'm sure you can relate. I happened to log on yesterday and saw this and thought I had to check in. How are you?
39 years old
SIMI VALLEY, CA (Los Angeles area)
DCIS diag. 10/04, left breast mastectomy 12/04
ER/PR –, Her 2+, clear sentinel node, except one or two BAD micromets.
Did 6 rounds FEC chemo to insure those were gone, then 12 mos. of Herceptin.
8-year SURVIVOR...approaching 9 years since diagnosis!

Tricia Keegan
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  • Joined: 1/1/2005
  • Location: Ireland
Re:Komen reunion! - Wednesday, April 10, 2013 1:53 PM
Danielle great to hear from you again and huge congrats on nine years!!!:)................DJ, my apologies, I was dashing out for my zometa appt this morning and must have been speed reading and thought your Dad already passed, I'm so sorry but know from our chats the time is near and will continue to think of you all and of course you're part of our reunion!! (I remember my nick name for you was "Angry of Komen lol)!!!:)......xx
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Ilene
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Re:Komen reunion! - Wednesday, April 10, 2013 3:57 PM
I'm doing great, Danielle!  I understand completely re stepping back.  I, too, started getting a bit afraid and had to pull back to find my new normal for a couple of years, but when Tricia posted in our FB group about the 'reunion,' I couldn't help myself.  Now I'm going to try to stick around a little to help some of the newbies as I was helped (by people like you).  It is such a valuable tool - I'm sad that it doesn't seem to be as active as it was when we were going through all of this, but, perhaps if some of us can stick around and check in every day or every couple of days, we can provide that understanding and love that we received.  Are you still at HealthNet?
Ilene
Cali
Diag 1/2006, DCIS-left, IDC-right, ER+/PR+, Node Neg, Stage 1
Bilat Mast 2/2006
6 Rnds Chemo (FAC)
Right then Left exp infect/removed
Right lat dorsi 10/2006
Left lat dorsi 1/2007
EXCHANGE 4/23/2007!
On Tamoxifen since 2007 (on 10-yr cycle)

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