Komen reunion!

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DJ64
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Re:Komen reunion! - Thursday, April 11, 2013 6:04 PM
Thank you all for your kind condolences.  My Dad did pass away on Tuesday.  The pain he has suffered so long with is over.  I am thinking of all the positive things about his life and that is helping, along with re-reading the emails that I have kept.

Best to you all,

DJ
"Prepared for the worst, hope for the best and, live each day to the hilt"


Stage IV  lungs, lining, ribs, left scapula and left clavicle - Used all the hormonal drugs - tamoxifen, arimidex,  , Faslodex 250 mg,  femara, , drug break using own estrogen (progression in 7 months), rebooted femara (progression on next scan) Faslodex 500 mg ended 18 1/2 years on hormonal therapies - 2013,  Taxol - 2014 now on Doxil. 

Tricia Keegan
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Re:Komen reunion! - Thursday, April 11, 2013 6:18 PM
I'm so sorry DJ and hope in time the happy memories you shared will bring some comfort to you. (((((hugs))))
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

sharonma
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Re:Komen reunion! - Thursday, April 11, 2013 6:24 PM
DJ,
I do hope the emails bring you comfort and help you to recall warm and wonderful memories about time with your Dad ((((())))))
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

ElaineQW
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Re:Komen reunion! - Thursday, April 11, 2013 8:15 PM
So sorry DJ - I hope reading his emails and remembering the good times helps you in your grief.  I received a letter from my father a week or two after he passed which had been forwarded from my old address.  It was strange and comforting all at the same time.  

Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Susan
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Re:Komen reunion! - Friday, April 12, 2013 1:20 PM
Don't feel bad about the date Ruthie. Mine says I joined in 2005...WRONG. I was dx in March of 2007 and came here shortly afterwards. It is not something I can fix, or I would have by now...at least I don't think I can. Dancing bananas aren't working for me, nor the smileys, so I just have to do the "plain Jane" posts and replies. HUGS :)
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue

Tricia Keegan
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Re:Komen reunion! - Friday, April 12, 2013 4:25 PM
Susan the smilies don't work with Firefox if you're using that (as I do!)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Ilene
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Re:Komen reunion! - Friday, April 12, 2013 5:30 PM
My sympathies are with you, DJ.  As hard as it is to lose a loved one, to lose them at this time, while you're in the midst of your fight, must really test your faith and strength.

Sending you a cyber-hug.  He's watching over you!

(BTW, Tricia and Susan ... I don't know where to even FIND the faces, etc. anymore!)
Ilene
Cali
Diag 1/2006, DCIS-left, IDC-right, ER+/PR+, Node Neg, Stage 1
Bilat Mast 2/2006
6 Rnds Chemo (FAC)
Right then Left exp infect/removed
Right lat dorsi 10/2006
Left lat dorsi 1/2007
EXCHANGE 4/23/2007!
On Tamoxifen since 2007 (on 10-yr cycle)

Tricia Keegan
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Re:Komen reunion! - Friday, April 12, 2013 5:55 PM
Ilene if you post via the short message box you can't see them, but if you click on reply you'll see an oblong box to your left with the smilies, if you're not usimg Firefox they should work for you!:)
<message edited by Tricia Keegan on Friday, April 12, 2013 5:57 PM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

DJ64
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Re:Komen reunion! - Friday, April 12, 2013 8:11 PM
Thank you all again.  I began my 2nd cycle of treatments.  The oncologist does believe that Taxol will knock those renegade cells out.  Since I haven't had chemo for 18 years, they should be totally confused and die off in wonder of what happen to their good food Estrogen Blockers.  My dry cough is gone so that is a good sign, the wheezing is still with me and I hope it takes a hike soon as it is annoying.  The Center took such nice care of me, gave me lunch offered it to my son too.  I go for the first treatment at the Cancer place that is an hour away and visit my oncologist at the same time.  The next 3 will be at my local center which is smaller and I know all the people.

My blood rebounded, only a few places were low or high.  WBC in the normal range a far cry from where it was several weeks ago.  It's a the bottom of normal but still normal.  The RBC were still low but in better shape that what it was.  I was very happy with it all.

Thanks for being here for me.  

DJ

Snowing here where I live, I hope it's the last we see of this white stuff until next winter.  How I hate it.
"Prepared for the worst, hope for the best and, live each day to the hilt"


Stage IV  lungs, lining, ribs, left scapula and left clavicle - Used all the hormonal drugs - tamoxifen, arimidex,  , Faslodex 250 mg,  femara, , drug break using own estrogen (progression in 7 months), rebooted femara (progression on next scan) Faslodex 500 mg ended 18 1/2 years on hormonal therapies - 2013,  Taxol - 2014 now on Doxil. 

Tricia Keegan
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Re:Komen reunion! - Saturday, April 13, 2013 8:46 AM
DJ I've been wondering how you were so thanks for the update and its good news so far and I really hope that continue's and Taxol gives you a great response, I always got offered my dinner at my hospital too but felt too queasy to eat it.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

ElaineQW
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Re:Komen reunion! - Saturday, April 13, 2013 9:47 AM
DJ - So happy to hear that you are feeling better and I'm sure those nasty cells will run for their lives!!

P.S.  I had dry cough caused by my blood pressure meds (Lisinopril)...changed meds, cough gone.  May be totally different for you, but thought I would mention it.

Hug
Elaine


 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Ilene
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Re:Komen reunion! - Saturday, April 13, 2013 11:31 AM
DJ - That's fantastic news!  Hopefully, those cancer cells will all run for the hills now that big and mighty Taxol is in town!  Sounds like your treatment center is a comforting place.  Mine didn't offer anything but a basket full of snacks (raisins, crackers, trail mix, fruit).  My husband, though, bought all of the nurses ice cream on my last chemo day (we actually had a contest to see which nurse could get the line in since I didn't have a port and my veins were DONE).

Hope this goes as smoothly as is possible for you.  Thanks for the update.    
Ilene
Cali
Diag 1/2006, DCIS-left, IDC-right, ER+/PR+, Node Neg, Stage 1
Bilat Mast 2/2006
6 Rnds Chemo (FAC)
Right then Left exp infect/removed
Right lat dorsi 10/2006
Left lat dorsi 1/2007
EXCHANGE 4/23/2007!
On Tamoxifen since 2007 (on 10-yr cycle)

Anna Rae
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Re:Komen reunion! - Sunday, April 14, 2013 5:59 AM
Top o' the mornin' to ya!

This really does feel like a reunion, I am up very early today.... just like the bad old days! 
I didn't even consider the SGK Message Board when I had the mastectomy. It was "just" a simple procedure, I would have reconstruction and that would be the end of it. But that wasn't the end of it because as many of you know, lightening does strike twice.

I found you when I needed you most and some of you found me. Finding each other has truly been a blessing.

I love each and every one of you because you are.

This is Maya and me, I love her too!




Like Jerry said, What a long, strange trip it's been... 

DCIS Stage 0, Right Side Unilateral Mastectomy -  May 14, 2010
HER2+ BC Stage 3C, Right Side Lymph Nodes - 6 Months Later
End of Tx, June 8, 2012
NED - July 5, 2012

http://www.caringbridge.org/visit/annaraebamberggilder

Anna Rae

Tricia Keegan
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Re:Komen reunion! - Sunday, April 14, 2013 6:30 AM
Anna its great to see you here and what a wonderful photo, you and Maya look adorable!!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

ElaineQW
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Re:Komen reunion! - Sunday, April 14, 2013 8:29 AM
Wonderful picture Anna Rae!  Maya is sweet!

Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Pat Patterson
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Re:Komen reunion! - Monday, April 15, 2013 6:51 AM
DJ - my heart goes out to you.  I know what it's like when your dad goes, and I can only imagine having to deal with it with all your have on your plate.  It's times such as this when we really depend on each other here and please know, if we don't, or can't, post as often as we would like that you are always in my thoughts and prayers.  That is such good news from your doctor...good luck with the treatments!!!
 
Anna Rae - great picture:-)
DX 5/13/08 Clearwater, FL HER2 +
IDC Stage IIIA changed 12/2/08 to IIB Grade 3
Taxotere, Carbo & Herceptin  6/11/08
Part Mas 11/5/08 SNB neg & addl node neg - CLEAN MARGINS!
Arimidex 11/25/08  35 Rads 12/15/08

ctGailco
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Re:Komen reunion! - Wednesday, April 17, 2013 9:26 AM
Good day all! I just caught up to quite a few pages of newsy news on yas and am so glad to see so many doing well. DJ, I too am sorry to hear about your dad passing. Since I couldn't log on to my old account I had to start a new one but I did come to Komen the night I was diagnosed -full of questions and concerns and dear Sue M. and others were right there to assure me I wasn't alone. Bless you all, Gail
Life doesn't have to be perfect to be wonderful!

Tricia Keegan
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Re:Komen reunion! - Wednesday, April 17, 2013 11:15 AM
Great to see you here Gail!:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Ilene
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Re:Komen reunion! - Saturday, April 20, 2013 9:13 AM
Hi, Gail!  Welcome to the reunion!

Great picture Anna Rae!
Ilene
Cali
Diag 1/2006, DCIS-left, IDC-right, ER+/PR+, Node Neg, Stage 1
Bilat Mast 2/2006
6 Rnds Chemo (FAC)
Right then Left exp infect/removed
Right lat dorsi 10/2006
Left lat dorsi 1/2007
EXCHANGE 4/23/2007!
On Tamoxifen since 2007 (on 10-yr cycle)

Dana Timmerman
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Re:Komen reunion! - Wednesday, May 08, 2013 7:07 AM
I am very late to the reunion. It was fun to look through all the entries and see familiar names and faces. Love to All.

Dana
northern Indiana
Dx'd 11-2-07 @ age 45
ER/PR -  Her2+++
Taxotere, Carboplatin, Herceptin
Radiation
NED!
3 daughters
great husband


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