A question of intimacy...

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Anna Rae
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A question of intimacy... - Sunday, June 30, 2013 8:50 PM

How is your SEX LIFE?

Mine is TERRIBLE!!! Excruciating Pain , even with lubricant. I saw my GYN on Friday and we discussed some options, Pros and Cons. She asked if I had talked with Onc about this. My Onc has told me to go live my life and see my PCP for general health issues. I was HER2+ only and ended Herceptin last June.

After weighing the risk and considering QUALITY OF LIFE, I decided to try the vaginal estrogen cream, low dose for a week or 2. GYN will be calling Con to discuss and I see ONC in 3 weeks.

I have been reading about HRT and as far as I can tell, estrogen is generally OK if there is no uterus present. I have mine.

Are any of you using HRT, or ANYTHING else that helps with this sort of pain?

Thanks for your help. 



Like Jerry said, What a long, strange trip it's been... 

DCIS Stage 0, Right Side Unilateral Mastectomy -  May 14, 2010
HER2+ BC Stage 3C, Right Side Lymph Nodes - 6 Months Later
End of Tx, June 8, 2012
NED - July 5, 2012

http://www.caringbridge.org/visit/annaraebamberggilder

Anna Rae

Tricia Keegan
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Re:A question of intimacy... - Monday, July 01, 2013 1:45 AM
Hi Anna,

I thankfully haven't had to use any estrogen creams as yet but HRT would be a big no no for me I think and there's no doubt many of us do suffer with intimacy issue's after BC. I recently had a pap smear and it was very painful so next time I'll be sure to accept the lubricant that was offered, I think a low dose estrogen cream is a chance I'd be happy to take if it helped and hope you find this helps you.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Anna Rae
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Re:A question of intimacy... - Monday, July 01, 2013 9:29 AM
Tricia, 

Be prepared, lubrication may not help very much. Sex WITH lubrication feels like razor blades!

I will let y'all know how things go after a week of Tx. I HOPE THIS WORKS!
<message edited by Anna Rae on Monday, July 01, 2013 9:54 AM>
Like Jerry said, What a long, strange trip it's been... 

DCIS Stage 0, Right Side Unilateral Mastectomy -  May 14, 2010
HER2+ BC Stage 3C, Right Side Lymph Nodes - 6 Months Later
End of Tx, June 8, 2012
NED - July 5, 2012

http://www.caringbridge.org/visit/annaraebamberggilder

Anna Rae

Tricia Keegan
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Re:A question of intimacy... - Monday, July 01, 2013 10:35 AM
Ouch thanks Anna and I hope it works, in my case its more an issue of lack of libido since my treatments ended!Pals
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Anna Rae
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Re:A question of intimacy... - Monday, July 01, 2013 10:49 AM
Oh I've got that too! In fact, that's what started me down this path in the first place. 

I have used testosterone cream in the past. My current gyn said that I'm not "broken" and suggested some pretty reasonable things to do to get back into the groove so tho speak; date night, scheduling sex, more kissing, dedicated time alone, looking at each other, massage... These have worked for me. When it came time for the real deal, I had to put a halt to it immediately!

Someone just reminded me to, "Use it or Lose it". This is my problem as may be likely be the same for others.... atrophy.

I am REALLY looking forward to next week!

Like Jerry said, What a long, strange trip it's been... 

DCIS Stage 0, Right Side Unilateral Mastectomy -  May 14, 2010
HER2+ BC Stage 3C, Right Side Lymph Nodes - 6 Months Later
End of Tx, June 8, 2012
NED - July 5, 2012

http://www.caringbridge.org/visit/annaraebamberggilder

Anna Rae

Anna Rae
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Re:A question of intimacy... - Monday, July 01, 2013 10:54 AM
Like Jerry said, What a long, strange trip it's been... 

DCIS Stage 0, Right Side Unilateral Mastectomy -  May 14, 2010
HER2+ BC Stage 3C, Right Side Lymph Nodes - 6 Months Later
End of Tx, June 8, 2012
NED - July 5, 2012

http://www.caringbridge.org/visit/annaraebamberggilder

Anna Rae

ElaineQW
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Re:A question of intimacy... - Monday, July 01, 2013 11:37 AM
Anna Rae - I've been using the EstRing from the get-go.  I heard the words "vaginal atrophy" and that was simply not acceptable- :)  So I immediately got a prescription from my onco doc.  First things first, I figure!!!  HA HA  Anyway, it's worked wonderfully for me.  It's a little rubber donut you insert into the vagina...doesn't matter where or how it lands.  Stays there for three months. You can have intercourse with it there or you can take it out and put it back...  Onco doc has been measuring my estradiol levels and they are negligible -- under 7.  

Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Tricia Keegan
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Re:A question of intimacy... - Monday, July 01, 2013 4:26 PM
Thanks for the link Anna and Elaine I'm glad this is working for you, as Boy George once said I'm more into enjoying a cup of tea these days sex lol!!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

ElaineQW
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Re:A question of intimacy... - Monday, July 01, 2013 9:48 PM
Tricia - I love a good cup of tea but........   :)

Hug
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Tricia Keegan
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Re:A question of intimacy... - Tuesday, July 02, 2013 5:52 AM
Pals
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Anna Rae
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Re:A question of intimacy... - Tuesday, July 02, 2013 7:26 AM
Hot tea, Oolong my favorite in the winter, Iced raspberry tea in the summer!

Interesting.... 66 views and only 3 participating in this discussion. I guess the article I posted is correct in that no one wants to talk about this. 

I hope that some good information is being passed along to those who would benefit.

Cheers Ladies!

<message edited by Anna Rae on Tuesday, July 02, 2013 7:29 AM>
Like Jerry said, What a long, strange trip it's been... 

DCIS Stage 0, Right Side Unilateral Mastectomy -  May 14, 2010
HER2+ BC Stage 3C, Right Side Lymph Nodes - 6 Months Later
End of Tx, June 8, 2012
NED - July 5, 2012

http://www.caringbridge.org/visit/annaraebamberggilder

Anna Rae

Tricia Keegan
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Re:A question of intimacy... - Tuesday, July 02, 2013 9:16 AM
Anna maybe the other sixty three are all off having sex or tea!!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Anna Rae
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Re:A question of intimacy... - Tuesday, July 02, 2013 8:49 PM
You are hilarious!!! I absolutely love you!!!
Like Jerry said, What a long, strange trip it's been... 

DCIS Stage 0, Right Side Unilateral Mastectomy -  May 14, 2010
HER2+ BC Stage 3C, Right Side Lymph Nodes - 6 Months Later
End of Tx, June 8, 2012
NED - July 5, 2012

http://www.caringbridge.org/visit/annaraebamberggilder

Anna Rae

Tricia Keegan
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Re:A question of intimacy... - Wednesday, July 03, 2013 3:49 AM
Love you too Anna, we really need a sense of humour when it comes to BC and its aftermath on our lives!!Pals
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

sharonma
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Re:A question of intimacy... - Tuesday, July 09, 2013 3:19 PM
Haha Tricia, maybe we are having tea IN the bedroom!  
And perhaps answering this question privately
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

Tricia Keegan
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Re:A question of intimacy... - Tuesday, July 09, 2013 5:21 PM
Oh well, if you're going to get saucy Sharon.....
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia